social change – Page 6 – UAB Institute for Human Rights Blog

Why Are Chilean Civilians Protesting?

Chile is a Spanish-speaking country located to the west of Argentina in South America. Its ribbon-like shape allows it to be a part of many different climates, from the Atacama Desert to the North to the snowy Alpine climate to the South. According to the BBC Country Profile, Chile’s population amounts to about 17.9 million people, with 6.7 million people living in Santiago, its capital city.

An image of the map of Chile. — Top 10 Hardest Working Countries of the World. Source: Workspirited, Creative Commons

Chile is a free country. The Freedom in the World 2019 Profile rates Chile as Free with a score of 94 out of 100. According to the report, Chile’s Freedom Rating, Political Rights, and Civil Liberties are rated as most free due to its growing civil rights efforts that emerged after its transition to a democracy in 1990. So, why are there high-scale protests currently spanning the country? High costs and economic inequality are largely to blame.

According to the Organization for Economic Co-operation and Development (OECD), Chile’s income inequality is ranked 3^rd in the world, only behind Costa Rica and South Africa (for reference, the United States is ranked sixth).

These statistics explain why the youth in Chile are currently protesting rising transport fares. In early October, “the government announced that the metro rush hour prices would rise by 30 pesos ($0.04).” These slight rises to the metro fare were met with backlash from many school children, who responded by jumping over metro turnstiles or even destroying them while chanting the phrase “Evade, and not pay, is another way of fighting.” These protests even spread to supermarkets and petrol stations where fires raged the streets during the night. It was due to these protests that the president, Sabastian Piñera, decided to declare a state of emergency while also issuing curfews in select locations. Last used after the 2010 earthquake, the state of emergency suspends free movement and assembly with the main purpose of maintaining public order. With this employed, “the military is [tasked] to guard the streets, with generals appointed in every region where the state of emergency is valid.” Piñera claimed that Chile was “at war against a powerful enemy, who is willing to use violence without any limits” while characterized these events as a problem concerning rebels rather than the government. Although it may seem that calling a state of emergency may be justified, since these unorganized protests involved setting fire to many metro stations, attacking Chile’s largest private electricity company, and throwing stones at the police, it did not bode well for Chile’s president whose policies have allowed him to appeal to businesses and investors while staying disconnected from the Chilean people.

A stack of gold round coins, stacked like an exponential graph — Gold Round Coins. Source: Pexels, Creative Commons

Economic inequality has been a major problem in many societies around the world with about “80 [of the] richest people on the planet now own[ing] as much as the bottom half of the world’s population” today. This problem has been so profound that even the International Monetary Fund (IMF) has declared income inequality as a central challenge of this century. And, as seen in Chile, outrage over these policies have spurred many to protest the subsequent injustices and push it as a central issue in political discourse.

Inequality, especially in terms of income and wealth, has significant influence on human rights. Without access to money or a stable income, many are restricted in access to healthcare, education, food, and other commodities and services that every person should be able to access. The lack of access to these goods violates the 25^th Article of the Universal Declaration of Human Rights which states “Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services.” Due to the ubiquity of poverty worldwide, this demonstrates that much of the world still has a long way to go until universal human rights are achieved. Inequality also distances the poor from proper services, such as some form of education, proper shelter, and access to water, which creates conflict between disadvantaged and affluent communities. By denying these universal human rights, countries are willing to perpetuate (extreme) inequality, which restricts access to fundamental needs that ensure equitable and sustainable living conditions.

According to an article posted by the Center for Economic and Social Rights, focus on economic inequality remains silent despite its major ramifications on the lives of people across the world. The article questions why the human rights community is relatively silent on an issue that challenges what human rights stands for in the first place and how the community can advance policies such as fiscal reforms, wage protections and social protection floors. While it is true these reforms and actions may help bridge the gap between the rich and poor, some of the larger scale benefits these programs can fund are financial literacy and incentives for self-governance.

A Chilean Flag — Chile | Democracy Now! Source: Democracy Now, Creative Commons

Looking at Chile specifically, the “richest 1 percent of the population earns 33 percent of the nation’s wealth.” This comes with the fact that 50% of laborers earn less than 400,000 pesos a month (about $550). Although Chile is recognized as a stable, peaceful, and wealthy country, those international impressions stand on very weak pillars, especially when looking at economic inequality across the board. These protests have also been peaceful, with many involving more than 5 percent of Chile’s population. According to Stephanie Diaz, a sports teacher living in a working-class neighborhood in Santiago, in an interview with Vox, “This protest is not about 30 pesos, but 30 years. It’s 30 years since the return to democracy, but we have preserved a constitution made under the dictatorship.” Chile’s 1980 constitution, which preceded a military dictatorship, made goods and materials, even those considered as public goods, privatized. As a result, this raised the value and cost to produce and distribute such resources. Furthermore, privatization has influenced Chile to have the highest university tuitions in the world which has, alone, indebted approximately 4.5 million people in the workforce.

According to Vox, Chile’s president’s approval rating had dipped below 14 percent, a historic number when looking at the amount of people who are livid and fighting peacefully for change. Such disapproval comes as Chile plays host to the Asia-Pacific Economic Cooperation meeting in November, where President Donald Trump and China’s Xi Jinping will be visiting to negotiate a trade deal, and the UN Climate Change Conference occurring in December. A solution proposed by Shivani Ekkanath in an opinion piece of the Borgen Magazine lays along the lines of cracking down on bureaucracy, fixing the misallocation of funds, ending corruption, etc. in order to lift the economic burden of poverty and other kinks in the economic system.

Based on what has occurred in Chile thus far, it appears the rise in metro prices by 30 pesos was simply the tip of the iceberg. Growing economic inequality combined with more business-friendly practices has caused more workers and everyday Chileans to suffer and be unable to work toward a promising future for themselves and their families. And, as seen when with economic inequality, the growing gap between the rich and poor simply brings into light how it is both a cause and a consequence of violations of human rights such as access to care, education, and housing. Current protests like these help us understand that even countries regarded as stable are not always what they seem unless one looks at the lives of everyday people. Thus, we must focus on social and economic stability by employing a human rights perspective through the view of the common Chilean rather than a perspective at a state-wide level. Chile is an excellent example of people fighting for fairness in society peacefully, where progressive fiscal reforms should be utilized and promoted, rather than solely looking to appeal businesses.

Young Activists and the Burden of Change

Two girls smiling and holding up peace signs. — Children. Source: Shazron, Creative Commons

What would you do if you felt like the whole world was on your shoulders before you were even old enough to vote? Many children have faced this exact question, some of which have been acknowledged for their extraordinary efforts to make the world a better place. Malala Yousafzai. Greta Thunberg. Emma González and David Hogg. These are only few from a long list of young activists who have made great sacrifices in hopes of creating a better future for themselves and future generations.

For many, seeing children give up so much for something they are passionate about is greatly motivating. Children’s willingness to put themselves at risk for the greater good often make adults feel like they should be doing more to make a difference or that they have been underestimating the problem the entire time.

That being said, why should children have to make sacrifices in order to convince adults to change? Should the burden of change ever be placed on a child’s shoulders?

Why do they feel the need to get involved?

When discussing this issue, it is important that we consider what is causing so many young people to feel the need to take on the serious responsibilities that come with activism. It may speak to the severity of an issue when the members of society with the least responsibilities for the problems we face are the ones leading the charge for progress or, possibly, because they are the ones dealing the brunt of the impact of change.

Greta Thunberg, a sixteen-year-old environmental activist, skips school on Fridays in order to “protest outside Swedish parliament buildings, pressuring the government to pass legislation that would reduce carbon emissions in line with the Paris Agreement”. These efforts interfere with her right to an education which is recognized in Article 26 of the United Nations Universal Declaration of Human Rights and Article 28 of the Convention on the Rights of the Child). When asked about her message for world leaders at the UN Climate Action Summit, said, “You are failing us. But the young people are starting to understand your betrayal. The eyes of all future generations are upon you. And if you choose to fail us, I say: We will never forgive you. We will not let you get away with this. Right here, right now is where we draw the line. The world is waking up. And change is coming, whether you like it or not.”

Personal Connections to the Issue

For many child activists, their membership in a community that is particularly or uniquely impacted by an issue contributes to their involvement whether it is by participation or choice. Consider the activists from Marjory Stoneman Douglas High School in Parkland, Florida. Their activism began as a response to their experiences as survivors of a school shooting. Many of the activists have attributed much of their drive for promoting gun-reform to their feeling that adults are not doing enough (or are even making the problem worse). Cameron Kasky, an 11th grader at the school, said, “The adults know that we are cleaning up their mess.” Emma González added onto this, stating, “It’s like they’re saying, ‘I’m sorry I made this mess,’ while continuing to spill soda on the floor.”

In other cases, children carrying the burden of change are from marginalized groups who are disproportionately impacted by a given issue. Malala Yousafzai grew up in Pakistan, where her father was a teacher who ran a school for girls. In 2008, the Taliban overtook the town she lived in and put many harsh restrictions in place, one of which was declaring that girls could no longer attend school. Yousafzai spoke out against this and in support of girls’ right to an education (which is recognized as a right in Article 10 of the Convention on the Elimination of All Forms of Discrimination Against Women). In 2012, at the age of 16, Malala was shot in the head by a masked gunman in response to her activism. She knew that speaking out was dangerous but took the risk, because she knew, firsthand, how girls are affected when refused their right to an education.

Children should not have to lead the fights for their own rights and well-being, especially when it involves risking their lives.

Greta Thunberg sitting in a chair and being interviewed. — Greta Thunberg at the Parliament. Source: European Parliament, Creative Commons

Harmful Responses

One way in which heavy involvement in efforts for change has been harmful for children is the way people who disagree often begin to treat them. While Ruby Bridges was not an activist at the time, she still faced serious backlash when she became the first African American to attend a school that had previously only enrolled white students. Throughout her first year at her new school, there were mobs of people in front of the building every day protesting her attendance. People were angrily pointing and shouting at her as she was escorted into school every day. In an interview for NPR, she shared that some people would bring a baby-sized coffin with a black doll inside, and she would have to walk by it every day. This frightened her so much it gave her nightmares. She was simply a little girl going to school, but it was as if people stopped seeing her that way.

With the rise of social media in recent years, children who are part of social change or activism are more aware of people’s responses to them than ever before. Some adults, angered by the actions of these children for one reason or another, flock to websites like Twitter to air their grievances, seemingly without any consideration for how their words might impact the children involved. As her work has become more well-known, Greta Thunberg has faced much cruelty from adults. In August, Thunberg was traveling across the Atlantic Ocean on a high-tech racing yacht (to decrease her contributions to greenhouse emissions) to spread awareness of climate change. Arron Banks, multimillionaire and co-founder of Leave.EU, tweeted her picture with the caption, “Freak yachting accidents do happen in August…”. Others have mocked her for having Asperger’s syndrome or for displaying its symptoms.

The long-term negative impact that internalizing these kinds of harsh words and actions can have pose a threat to a child’s mental health. Article 25 of the United Nations’ Universal Declaration of Human Rights states that all people have the right to live in an environment that supports their health and well-being.

What Do We Do?

How do we deal with this issue? It is not so simple as to say that kids should be kept out of political conversations altogether. Many children live with certain aspects of their lives that require political conversations. If a child’s parents are a same-sex couple, the parents need to be able to talk to their child about the way some people treat the LGBTQ+ community. This conversation cannot be had without at least some political themes. People of color need to be able to talk to their children about certain topics which are considered political in order help keep them safe.

These conversations should not be limited to parents and children who are directly impacted by political issues. Children with privilege should not be kept ignorant of these serious issues, as gaining knowledge about marginalized groups can help them develop empathy. Additionally, children who are impacted by political issues should not be alone when having to face the difficulties of learning about these issues.

It is also important to recognize that exposure to conversations about political issues at an early age can lead to increased political engagement as an adult. Hearing their parents/guardians talk about different topics communicates to children (whether directly or indirectly) that these issues matter and have value. Political discourse that highlights the importance of such issues can, therefore, teach children to value political engagement.

One thing that we can do is spread awareness about how heavy participation in political activism can impact children, particularly their mental health. We can hold ourselves and our peers accountable for the things we say online (or in-person), hopefully decreasing the amount of mocking and bullying that children experience through the actions of adults. We can also respond to their cries for action by working toward progressive social change so that they do not have to do our job for us.

Aftermath of the Xenophobic attack in South Africa

Over three weeks ago, African immigrants in South Africa were brutally attacked and their properties destroyed by local citizens within various cities and provinces in the country. The conflict while still in its latent stage, initially began late August 2019 through petite skirmishes and altercations between foreign truck drivers and local south African citizens before it rapidly escalated into a full-blown violent conflict in mid-September 2019. The attacks which started in form of a riot protest with chants and songs that demanded foreigners return to where they came from in native Zulu language (South African native language) which was specifically aimed at immigrants from other African nations. During the protest, they began looting properties, destroying and burning down business enterprises owned by African immigrants. They also attacked any immigrant that was within protesting territories or those who tried to either protect or prevent their business stores from being looted or destroyed, which led to the death of twelve African immigrants. Properties worth millions of dollars was estimated to have been looted and destroyed, while thousands of immigrants are still licking their wounds due to the injuries sustained during the chaotic protest.

Illustration of woman screaming with terror with the word xenophobia written underneath — Source: Flickr

There are over 3.5 million immigrants in South Africa (a country with over 50 million people), 70% of which are from neighboring nations such as Zimbabwe, Lesotho and Mozambique, while the remaining 30% constitutes other nations particularly Malawi, United Kingdom, India, Nigeria, amongst others. Several of these immigrants are often business oriented with hope of exploring their entrepreneurship skills and attributes due to various economic gaps within their settlement areas. They mostly begin by creating small business enterprises and employ locals to assist in the growth of the business. This move according to the World Bank reports has greatly increased the employment rate and influenced the nation’s wage rate, with an immigrant worker generating approximately two jobs for local citizens. Although investments by immigrants has continuously and significantly improved the socioeconomic status of the country, it has also generated resentment and envy amongst locals in various communities with claims that migrants (specifically Africans) were taking away jobs meant for local citizens.

An injured African Immigrant lying face down on the ground with a armed policeman standing over him. — Source: Flickr

The aftermath of the xenophobic attacks generated a series of condemning messages and reports from several African nations, world leaders, international organizations, sociopolitical and economic heavy weight individuals and institutions, celebrities amongst others. Despite the damage achieved by locals, they continuously sent hate messages, which led to the evacuation of several immigrants from Ethiopia, Zambia, Nigeria. A private Nigerian airline provided free flights to all Nigerian immigrants, a move for which almost a million immigrants signed-up, and almost 200 people were repatriated back to Zimbabwe, amongst others. The level of damages, loss, injuries and deaths due to the xenophobic violence resulted in reprisal attacks in a few other African nations such as Nigeria, in which structures owned by South African communication company MTN and its affiliate stores popularly known as Shoprite, were attacked and operations were disrupted, Zambia closed down three South African malls and canceled a football match between both nations, Botswana has begun issuing a South African travel advisory to its citizens, while several African celebrities have vowed not to perform their entertainment tours or visit the country until there are visible signs of improvement.

During the de-escalation stages of the violent conflict, a veteran South African politician condemnation speech against the negative behaviors and violent attacks against fellow African immigrants was quickly disrupted and aggressively challenged by the people, which shows a lack of remorse or regret for their shameful acts of violence which can be said of the entire South African government. Although the South African president alongside some of his aides have tendered an official written apology letter to leaders of affected African nations, it is believed to be barely a strategic and baseless diplomatic act which could be confirmed in the words of Marc Gbaffou (a member of the African Diaspora Forum that creates awareness for the rights of migrants in South Africa) who claimed “there was no political will to end the continuous xenophobic attacks against African immigrants which has become clear for the whole world to see”.

Although the African Union Commission Chairperson, Moussa Faki Mahamat had issued a statement which outrightly condemns the violent attacks and destructions against African immigrants, much needs to be done to ensure events such as these kind will forever remain a buried issue in the past. The safety and wellbeing of immigrants are to be taken with utmost respect by rendering valuable services in all its affairs with an experiential focus mostly placed on their security which should not be bridged irrespective of any unfathomable and unreasonable excuses. There is a need to put in place restrictive measures and binding sanctions to serve as precedence that guides against the continuity of these persistent shameless acts. Despite the United Nations high commissioner for human rights, Michelle Bachelet’s statement to the South African authorities urging them to ensure adequate protection for all victims of the xenophobic attack and make all perpetrators accountable, little has been done in this regard, only a few individuals were casually arrested due to their participation in the violent attacks, while the body language of the nation remains negative towards achieving a permanent resolution.

Humanity has been at logged-head with each other for a long time and there is a need to embrace and increase the volume of peace. In the world today, more genuine efforts should be put in place to reduce and if possible, eliminate the regular occurrence of conflict and violence at both the international and national level. Africa most especially, needs to put more focus on ensuring democracy and good governance are adequately consolidated, rather than laying emphasis on misplaced priorities or negative issues. The South African government needs to address the root cause of the continuous xenophobic attacks against African immigrants, which is the high rate of “Unemployment”. The historic timeline and trends, magnitude and possible continuity of the xenophobic attacks, also call for an urgent intervention from international organizations such as the United Nations and African Union, to ensure adequate measures are truly in place to ensure discontinuity of such attacks, while strict sanctions are to be placed on them, should they fail to meet required security standards.

Mary Frances Whitfield: Why?

Mary Frances Whitfield: Why? is a collaborative exhibition between the Abroms-Engel Institute for the Visual Arts (AEIVA) at the University of Alabama at Birmingham and the Birmingham Civil Rights Institute. The exhibition is co-curated by AEIVA Curator John Fields and Dr. Brandon Wolfe, Assistant VP of Campus and Community Engagement in the Office of the Vice President for Diversity, Equity, and Inclusion at UAB. It is on display at AEIVA until November 23, 2019. The images included below are in the exhibition.

Depictions of lynchings are usually loud – they bring into focus the agony of the victims, their bodies beaten and burned, hanging from a tree, or the intense anger, absolute hatred, and pure evil of the perpetrators and spectators as they relish in their acts of terror, dehumanization and brutality. Mary Frances Whitfield invites us to consider another experience, one that often goes unacknowledged or unconsidered artistically and historically. What happens when the spectacle is over, when the crowd disperses, when the terrorists have gone home, having achieved their fill of racial violence for the day? Who comes to claim the victims, to hold their lifeless bodies one last time, to cut them down and lay them to rest?

Mary, 1994
watercolor and acrylic on canvas board
16 x 20 inches
photo: Adam Grimshaw
Collection of the artist, Courtesy Phyllis Stigliano Art Projects
©Mary F. Whitfield

Whitfield’s paintings are not loud. They depict a silent despair. She transforms the space of public spectacle, of loud chaos, into a private and still experience that focuses on the quiet mourning of the bereaved. For Whitfield, this mourning conditions the lives of black people in her ancestral history and now. Her depictions are dark and heavy, they are full of grief and despair, and this emotional weight is largely held in the bodies of the mourners who literally hold this anguish – and their faces – in their hands. The victims and the mourners are often dressed in bright pastel colors, an image that foregrounds their vibrancy against the backdrop of a thick and consuming darkness. It reminds us of the life they could have lived, a life that was cut short by hate. Wives wrap their arms around the lifeless bodies of their husbands, young boys reach for the dangling feet of their fathers, women touch their protruding bellies, desperately hoping, we might assume, that their unborn children will not meet the same fate as the victim. Bodies of men, women, children, and babies hang from trees, sometimes engulfed in flames, sometimes appearing to sway slowly in the breeze. The stillness of the victims and the stoicism of the mourners in Whitfield’s paintings reflect the normalcy and the familiarly of an ordinary experience, part of daily existence for African Americans in the 18th and early 19th century, a reality wrought with unbearable pain, constant mourning, and overwhelming fear.

Sari-Mae’s Sorrow, 1996
watercolor on canvas board
16 x 20 inches
Collection of the artist, Courtesy Phyllis Stigliano Art Projects
©Mary F. Whitfield

The title of the exhibit invites us to ask “Why?”, and the question looms on several levels. Why lynching? Why Albert? Why Sari-Mae? Why Mama and Papa? Why me? Why us? Why then? And maybe most importantly: Why now?

When the slavebody became the blackbody, white people could not let go of the compulsion to maintain dominance over black bodies and black lives. The vilification and demonization of black people took hold in the discourse, and a consensus grew around the need to protect white people and white dominance, a need so desperate it justified brutal violence and severe oppression against the newly “freed” citizens. Whitfield’s paintings are borne out of stories her grandmother told her about life during this time, a time when more than 4,000 black human beings were lynched publicly and without consequence. The work is timeless, though, and as we leave the exhibit and go out into the world, we are forced to wonder why this is still happening. Lynchings today take a different form, but they continue to terrorize and demoralize black communities all over the United States and emphasize the devaluation of black bodies and black lives in our society.

Toni Morrison says that the purpose and the power of art is in its ability to create conversation, one that is “critical to the understanding of what it means to care deeply and to be human completely.” If we can ask ourselves “Why?”, if we can have this conversation, if we can engage in this discourse honestly and authentically, if we can accept the truth about the continuing legacy of the slave trade and mass enslavement and lynchings in all of its forms – past and present – and then reconcile ourselves to that truth, then maybe through that conversation, we will see a path forward, one that leads us toward healing, one that will someday allow us to live in the peace and freedom and beauty of Dr. King’s dream. It’s a hard question to answer, not in its complexity but in its power to change our understanding of ourselves, but it’s one that we must ask.

The Evolution of How I Defined a Global Citizen

As the world has grown smaller, and the global economy and policies have pushed their way to the focus of peoples concerns, many citizens have altered their attention from the nation to the globe, defining themselves to be a global citizen. Since the introduction of social media, I have seen how easy it is to know what is happening around the world. With easy access to international information, I have seen more of my own generation focus on what they can do to help people on the international stage. Specifically, when my friends and I began deciding what we wanted to study as undergraduates, we were not focused solely on what we wanted to do but also how we could use our major to help others around the world. We would consider ourselves to be global citizens. What does it mean to be a global citizen?

Over spring break 2019, I traveled with the UAB Social Work Department along with Dr. Stacy Moak and Dr. Tina Kempin Reuter to Kenya. While we were there to work on projects that centered around a multitude of social work topics, I learned what it means to be a global citizen and how my definition of that changed throughout the trip. Before leaving for Kenya, I considered myself a global citizen, but I was not certain about what it meant to be one. From my experience in traveling, I defined a global citizen to be someone who understood that there were cultures and communities outside their own community that should be appreciated.

Before the class began, my knowledge of African culture was limited to what I saw in movies like the Lion King and Black Panther. During the class we prepared for our trip by creating lessons on our projects, expanding our knowledge about Kenyan culture, and preparing supplies to take to the groups we were meeting in Kenya. This knowledge helped me establish a basis of understanding for the communities we would be visiting. As part of our class, we read My Maasai Life: From Suburbia to Savannah by Robin Wiszowaty which educated me on many Swahili and Maa words as well as specific cultural details within the Maasai Mara. We also had a lesson on human rights and what should be available to all humans. This lesson opened my eyes to a part of global citizenship that I had not thought of because of my little education on human rights. To help communities around the globe, I must know what’s going on in international and national legislation to know where those human rights are being violated or taken away. This knowledge grants the ability and responsibility to work towards a better world where everyone has their basic rights as a human.

Emma and the Maasai women sitting in a circle having conversation — Photo by Emma Laurence

Before this trip, I had believed that this understanding would be enough to establish an appreciation for the community of the Maasai Mara. While I did appreciate the culture, I soon realized that fully experiencing a community is far more important than learning from documentaries and online sources. The experience that creates a deep connection towards communities of the world is one that is achievable when you focus on the people around you. Throughout our time in the Maasai Mara, my definition for a global citizen was redefined. From getting to go inside a Maasai community to doing beadwork with some of the hardworking Maasai mothers, I began to create relationships within the community, some even without a common language to speak.

One afternoon the students and professors sat down with the Maasai women to learn how to make soap and do beadwork, we had learned that these women used these skills to make money for their families. The woman who was tasked with trying to teach me how to do the beadwork was very patient and kind, and we didn’t even speak more than a few words to each other. I know little to no Swahili or Maa, and the woman knew no English. We were able to find a way to establish a friendship through unspoken communication, involving a lot of laughter at my inability to put beads on a string. It seemed impossible before I came to Kenya to establish a friendship with someone who came from a vastly different culture and background from mine especially if there is no common language spoken. I quickly from the trip that not only can you form relationships with people from all walks of life, but they are necessary to understand and fully appreciate the communities you visit when traveling.

While at Cara, a women’s rescue facility outside of Nairobi, I learned more about the role that I play in communities around the world. As we sat around a table where students were discussing social work practices with the counselors at Cara, I saw how the exchange between communities is important as well. We learned that the women at Cara, had the experience to help the young ladies in their facility but they needed supplies, as well as some specific lessons, plans that they hoped we could develop later for them as a future project. This exchange taught me that first, to help a community, you must be told what they need from the community itself, you cannot interpret this yourself. As an outsider in a community, I would never know what people need; therefore, by being told by the community, our group was able to help with the specific needs of the community. Second, as a global citizen, my role is not to go into communities and change them to look more like mine. My community is not always right. Therefore, you must communicate and exchange information to meet the community where they are at. Thus, I redefined a global citizen to be someone who sought out friendships so that they could enhance their love for a community and exchange knowledge to put in place future projects that would aid members of the community.

a group photo of the team from UAB — Photo by Emma Laurence

Once I returned from Kenya and quickly fell into my daily routine as a student, I found that a few more things about how I was defining a global citizen changed. The definition is not simple or short because to be a citizen of the globe involves a lot of thought and appreciate as well as work. As a global citizen, it is important to create relationships in a community to see the community as your own because as a global citizen your community is the globe. This leads to the service aspect of a global citizen. Because these communities are part of your community, you must work to help those communities where they need it, if that need is established from the community itself, while working to preserve the beauty of the culture within the area. It is your responsibility to make sure the people in your global community have the rights they deserve as a human. Therefore, you must say up to date on current events surrounding legislation around the globe especially when that legislation infringes on human rights.

While I was only able to spend a week working on the projects, my trip will be able to impact how I see myself in the world for years to come. I know now what my job is as a global citizen and how I can do that job to the best of my ability. I hope soon more people will see their role as a global citizen so we can move towards furthering knowledge for the different cultures around the globe, access to human rights for all, the exchange between communities, and international friendships.

A Value Shift Toward Fashion

I have thought a lot about the phrase “speaking truth to power” over the last few days. Perhaps my musings have a lot to do with the free space I have in my mind now that my thesis is complete. Or it could be the anger I feel knowing that children of Hollywood actresses and the like scammed their ways into colleges and universities while I sacrificed, saved, budgeted and continually sought/seek to maintain my integrity on my significantly less flexible income. What did it mean for me to know that some people have no idea or care about the struggle of other people? What did mean to have someone blatantly disrespect the work ethic of millions of people? Nearly one year ago, my colleague Lindsey wrote a blog about The True Cost of fashion as highlighted in a Netflix documentary. For me, it was an eye-opening read as I found myself confronted by my disrespect for the work ethic of millions of people. After reading her blog, I was committed to shopping differently, but I honestly did not know how or where to begin. You see, I like clothes. I use the word like instead of love because love affirms a commitment whereas like can be fleeting and fickle; therefore, I like clothes and love colors, patterns, and fabrics. I agree with Orsola de Castro’s declaration that “clothes are the skin we choose.”

I cannot say that I have gone this year without purchasing new clothing, but I have not bought as much as I have in years past. I have also become mindful of my giving to charity stores because as the film points out, unsold clothing goes to other countries and overwhelms their local industry; thereby limiting the jobs and transferrable skills like sewing and tailoring. Watching the film, I realized that the core of this change was the shift in my paradigm which subsequently caused a shift in my values. De Castro asserts that our choice of clothing is the manifestation of our communication – fundamentally a part of what we seek to communicate about ourselves. So, I began to ask myself, “What did I want to communicate about myself? Did it matter to me that some of my clothes are years old if they still fit and have been well maintained?” No, but the change in my values was not merely about not caring about the durability of my clothing from years ago. It was about the lives of those on the other end of the stitches and sewing machines.

A downside of globalization is the increase of fast-fashion at the expense of the lives of garment factory workers. Globalization has allowed for the outsourcing of fashion to low-cost economies where the wages are low and kept low; therefore, those at the top of the value chain get to choose where the products are made based upon where they can compete and manipulate the cost of manufacturing. The only interest companies have in countries like Bangladesh is for the exploitation of the people, most of whom are women. The result of the Bangladeshi factory worker is that the “budget conscious shopper” can now purchase clothing that is “cheap enough to throw away without thinking about it” as proclaimed by Stephen Colbert. Last year I began questioning how my consumption of fast-fashion had continued to perpetuate the injustices of the gouging of low-wage countries experiencing the exploitation of their citizens while I claim to advocate for liberty and justice for all. Was I true to myself by ignoring the plight of millions of people making the $20 pair of jeans I brought with my e-coupon? I began to think about it.

a photo of clothes hanging in a closet — Photo by Ajanet Rountree

According to the film, Bangladesh is the second largest fashion producing market in the world after China. In 2013 the Rana Plaza took over 1,000 lives and had been noted as the worst garment disaster in history. In the year following the tragedy, the fashion industry had its most profitable year. Despite the trillions of dollars made globally by the industry, the lives of the workers are disposable. There is no standard wage or guarantee of work conditions. In Cambodia, garment workers protested and demanded a living wage of $160 US a month. The protesters met with aggressive government force that resulted in the deaths of five workers and several others injured. Companies in low-wage countries do not own the factories or hire the workers. Therefore, they are not officially responsible for the treatment of workers and the human rights violations they endure as a byproduct of their need to work. The research of Kevin Bales reveals the depths of the impact of the global economy on human lives in his books on disposable people.

As consumers in a capitalistic society, we distance ourselves from the devastation of poverty and inequality by comforting ourselves with the notion of ‘at least it’s a job’ and ‘sweatshops have the potential to bring about a better life for workers eventually.’ In a Fox News interview highlighted in the documentary, Benjamin Powell of the Free Market Institute defined sweatshops as “places with very poor working conditions as us, normal Americans would experience. Very low wages by our standard. Maybe children working; places that might not obey local labor laws. But there is a key characteristic of the ones I want to talk to you about tonight, Kennedy [the host of the show], and that’s they’re places where people choose to work. Admittedly from a bad set of other options.” There are several things worth noting about Powell’s statement. First, he acknowledges that the conditions are deplorable. Second, he knows that ordinary Americans have not experienced any situations like this. Third, he knows that there is a possibility that children are employed in these factories because there is no enforcement of local labor laws. Lastly, he soothes his conscious and those of the viewer by suggesting people choose to work there. In an article, Powell and Zwolinski argue that the anti-sweatshop movement fails in at least one of two ways: internally by failing to maintain their allegiance or externally but uncontroversial by yielding to objections that should be viewed as legitimate concerns. They insist that sweatshop workers voluntarily accept the conditions because it is a better alternative for them. Is it American pride that allows us to assume that a citizen of another country would willingly choose to work in a job to feed and clothe their children/family that Americans would not do? Have we become so full of ourselves that we willfully accept the sweatshop conditions for others but not ourselves for a $5 t-shirt or $15 dress?

The documentary states that fashion is the most labor dependent industry with nearly 1 in 6 working globally in some part of it. Most of the work is done by those with no voice in the supply chain. Many factory working parents must leave their children to be reared by other family members who live outside of the city or factory area due to the long hours and low-wages; eventually seeing them only once or twice a year. Shima, an Indian garment worker, tearfully states, “There is no limit to the struggle of Bangladeshi workers. People have no idea how difficult it is for us to make the clothing. They only buy it and wear it. I believe these clothes are produced by our blood. A lot of garment workers die in different accidents. [Regarding Rana Plaza] A lot of workers died there. It’s very painful for us. I don’t want anyone wearing anything, which is produced by our blood. We want better working conditions so that everyone becomes aware.” Livia Firth, creative director of Eco-Age, chides that we are profiting off their need to work. They are not different from us, but we treat them with disrespect and like slaves. Economist Richard Wolff concludes that American desire for profit at all cost is in direct competition to the values we claim to possess as Americans. In other words, as consumers of fast-fashion, we are perpetrators of injustice because we assist in the exploitation of workers through the violation of their human rights. Our capitalist economy thrives on our insatiable greed, our irrational fear, and our thirst for power all at the expense of someone else’s survival in poverty and inequality.

Am I anti-capitalism? Perhaps. I am anti-inequality and the continuation of needless injustice at the expense of those most vulnerable so if the divide between the haves and the have-nots continues to widen because of capitalism, then yes, wholeheartedly I am against it. Beyond whether I am anti-capitalist lies the question of whether I can remain unchanged when faced with the narrative of someone surviving in an unjust situation? Put another way: can someone with less social and economic power speak into my life and cause me to change? Yes.

If our economic system thrives on our individual and collective materialism, then any change in our behavior and values will change the system. Changes in our individual and collective action and values mean changes in the individual and collective lives of those on the other end of the thread and sewing needle. This year I have learned that challenging myself to live in a way that keeps the narratives of those who cannot speak up for themselves t the forefront of my mind is—I joined with them—our collective way of speaking truth to power.

You can join us!

Climate Change and Refugees

Climate Change Refugees. Source: Flickr, Creative Commons

Climate Refugees

The ongoing debate about climate change never seems to become resolved because there are certain people who believe in it and others who refuse to believe it. However, both sides often forget about climate refugees, a fairly new term that has no formal definition or protection under international law. As of 2008, millions of people lose their homes to weather disasters. Other aspects such as desert expansion and sea levels rising also affect people in terms of where and how they live. Scientists say the three most endangered regions are sub-Saharan Africa, South Asia, and Latin Americ a while a World Bank report estimates that by 2050, those three endangered regions will consist of 143 million people who are displaced.

Climate Change and its effects

According to scientists, climate refugees consist of “people who must leave their homes and communities because of the effects of climate change and global warming.” Climate change pertains to the change of a climate in a region, while global warming is how the average temperature of the Earth is rising. As a result, global warming is leading to climate change. Rising temperatures due to global warming can cause glaciers to melt which can lead to flooding and the rising of sea levels. Furthermore, it can lead to droughts and desertification. These results of global warming can make the land people live on uninhabitable and make it difficult for people to survive.

In Bangladesh, thousands of people are affected by flooding each year, especially in Dhaka. In West Africa, Lake Chad is almost completely gone due to desertification. These problems are not just limited to the developing world. In the United States, approximately 2,300 Puerto Rican families who were displaced due to Hurricane Maria are looking for permanent housing. Additionally, small coastal communities in areas like Alaska and Louisiana are fading into oblivion due to rising sea levels.

In regard to droughts and desertification, individuals are not able to grow crops where they live. Thus, with no food, they are forced to move elsewhere. In China, the Gobi Desert is expanding more than 1,390 square miles every year. Farmers and merchants who live near the Gobi Desert migrate to more urban areas because the grasslands are turning into deserts. Droughts and desertification are a global problem. Also, in Morocco, Tunisia, and Libya more than 386 square miles of productive land are lost to desertification.

Desertification. Source: Wikimedia, Creative Commons

Climate Change and its ambiguity

In Europe, a journal estimated that if global temperature trends continue, applications for asylum to the European Union would increase by 28% by the year 2100. Additionally, many climate refugees live in rural or coastal communities and are forced to migrate to urban areas. Their skills, such as farming, are not beneficial in urban areas. Thus, finding a job can be difficult. Climate refugees who leave their country can face struggles when adjusting to new laws, languages, or cultures.

According to the development expert at the Center for Strategic and International Studies, Yayboke, the biggest problem that arises is there are millions of people who are considered a climate refugee, but there is no consensus as to what we can do about them. There are currently no international laws that protect climate refugees and they can be sent back to their homelands or forced into refugee camps. The reason that the term climate change is ambiguous is due to “the effectiveness of rights and legal certainty”. Since it is not covered by the law, there are no guaranteed international protections. Another source of ambiguity arises when you need to determine why those individuals were displaced. Was it actually due to climate change or was it because of another reason? For example, say there is a drought and a farmer moves to another area in order to find other work. Did the farmer move due to climate change or because the economy has no alternatives for employment? The term “climate refugee” tends to be associated with a variety of factors and not simply just climate change. Thus, an absolute definition is hard to define.

In 2016, the UN General assembly introduced the New York Declaration for Refugees and Migrants. In this declaration, it discussed the development of two global compacts: In 2018, climate refugees became recognized in the Global Compact on Safe, Orderly, and Regular Migration. The purpose of this compact is to protect the rights of those who displaced and to determine the economic, environmental, and social factors that individuals who are forced to leave their homes face. Unfortunately, the compact does not focus on trying to control the man-made forces behind global mass migration.

Another major problem is how climate refugees are not covered by the 1951 Convention in regard to the Global Compact of Refugees. Their definition of refugees has nothing to do with individuals who are displaced due to environmental factors. Thus, the term ‘climate refugee’ does not fall under the score of the 1951 Refugee Convention and their protocol. Therefore, individuals who are displaced cannot be classified as refugees and cannot appeal for resettlement and are “trapped in worsening environmental conditions”. However, a counterargument is that those who are displaced due to the environment could rely on the protection of their national government, whereas the traditional refugee cannot rely on the national government because they tend to be the source of persecution.

Hope for the future

In 2009, the EU decided to place a greater focus on climate change as a cause of migratory flows, in terms of security. From 2011-2013, a strategy paper was created for a European Commission project whose goal included working with developing countries in regard to migration and asylum. Additionally, the paper states focusing on climate change and migration. In 2013, the Commission published a paper on internal displacement. In 2015, Jean-Claude Juncker, the European Commission President stated “Climate change is one of the root causes of a new migration phenomenon. Climate refugees will become a new challenge – if we do not act swiftly”. However, EU Member States still have not created a category for climate refugees.

Climate refugees is a vague term that is hard to define. However, the economic, social, and political consequences are apparent and need to be addressed. Based on the global compact on migration and the international climate, one of the most salient ways to address this burgeoning human rights issue is for there to be numerous regional agreements that influence the creation of international law for climate refugees.

Women in Saudi Arabia

Saudi Arabia

Saudi Arabia is in the Middle East and occupies about “four-fifths of the Arabian Peninsula”. It is home to Islam’s two holiest cities, Mecca and Medina. When thinking of Saudi Arabia, most people associate it with religion, petroleum wealth, and tribalism. Although, throughout the years, Saudi Arabia has become more urban while experiencing vast technological, educational, social, and economic changes. However, in terms of women’s rights, Saudi Arabia has received much backlash.

Women’s Rights Timeline in Saudi Arabia

In 1955, Saudi Arabia’s first school for girls was created and, in 1970, the first university for women opened its doors. In 2001, women were allowed to get personal identification cards as long as they had permission from their guardian. Furthermore, it was issued to the guardian, not the women. Until 2005, it was cultural practice for women to be forced into marriages even though it was considered illegal. Four years later, in 2009, the first female government minister, Noura al-Fayez, was appointed. In 2012, women were allowed to compete in the Olympics on the national team for the first time. Before the 2012 Olympic Games, there was a possibility that Saudi Arabia could be banned due to gender discrimination. A year later, women could ride bicycles and motorcycles in recreational areas but only if they wear the full Islamic body covering and have a male relative present. That same year, 30 women were sworn into the consultative council, the Shura. In 2015, women could run for office for the first time, which resulted in 20 women being elected to municipal roles in the absolute monarchy. Beginning just last year, women can now go to the sports stadiums and drive. Furthermore, in order for women to get their driver license, they do not need permission from a male guardian and can drive by themselves. Finally, in 2019, there a new law established where women would receive a text message if they got divorced, whereas in the past, their marriage could end without their knowledge. Additionally, they can check their marital status online or in court, but only if she has her husband’s approval or if he has harmed her. Many of these policy reforms still include male supervision. While persecution is a high risk, women are willing to fight for their freedom.

Their Stories

Rahaf Mohammad al-Qunun fled from Saudi Arabia to Canada; she was seeking a place where she can be free. Even though she left her family behind, now she can make her own decisions. She said, “I don’t have any contact with my family, but I think that’s good for me and for them. I feel like this is my home now. It’s better here.” Two girls, Reem and Rawan, escaped from Saudi Arabia to Hong Kong. Reem claims, “Our rooms were the prison cell and our fathers and brothers were the prison keepers. Saudi Arabia is one big prison.” However, they cannot stay in Hong Kong for long because they are at risk of being possibly removed or prosecuted. If they are forced to return to Saudi Arabia, the outcome could result in imprisonment or death. Cases similar to Reem and Rawn’s tend to often be covered up.

Why Women Run

One of the most common reasons women flee Saudi Arabia is due to the restrictions placed on where women can travel. Women are not given the right to leave the country without their male guardian’s permission. Furthermore, a woman’s ability to choose her marriage partner is solely dependent on the permission of their male guardian. In January 2019, the country set the minimum age of marriage at 18, but girls aged 15-18 can still become married without the court’s approval. Other reasons include but are not limited to domestic violence, discrimination in employment and healthcare, and inequality in divorce, child custody, and inheritance.

Technology and its Effect on Women’s Rights

With every technological advances comes benefits and drawbacks. The benefits can include a platform where people are given a voice to share their thoughts and an accessible platform from anywhere in the world. However, the drawbacks comprise of undesired scrutiny which can make one an easy target. As a result, one of the biggest questions now is “whether it is the responsibility of technology companies to make sure their platforms are not used by governments to repress their citizens.”

In Saudi Arabia, there is an app called Absher, which the government can access. The purpose of the app is for men to approve or deny women to go abroad. As mentioned earlier, some women have tried fleeing the country and must do this secretly due to not having permission from their male guardian. In this case, technology is detrimental for women’s rights because it places a limitation on their freedom. Technological advancement makes it easier for men to have power over women by “policing” the women’s movement. Whenever a woman wants to go to the airport, she cannot leave without the government and her guardian knowing because they receive a text alert; people have gotten around this system. For example, Salwa left Saudi Arabia by getting her father’s phone and replacing his information with her information. Thus, she was able to make consent for her sister and herself, although risking legal consequences. People believe that these apps are causing discrimination to become more normalized. Unfortunately, even though the companies are aware of the circumstances, removing the app would not solve women’s issues in Saudi Arabia. The government in Saudi Arabia has a website that comprises of the same functionality as the app does.

Free. Source: Max Pixel, Creative Commons.

The Future

During a session of the United Nations General Assembly in New York, leaders of Saudi Arabia discussed their goal of developing the country by increasing participation from women. In fact, the number of female diplomats has expanded steadily over the years. While the future for Saudi Arabia’s women is unknown, there is “cautious optimism” in regards to women having a bigger role in society and politics.

At the Intersection of Disability and Everything Else

Kiribati 2009. A blind man sitting at a Braille machine — Kiribati 2009. Photo: Jodie Gatfield, AusAID. Source: Department of Foreign Affairs and Trade, Creative Commons.

When someone says the word intersectionality, do human rights come to mind? Maybe but probably not. For some people, intersectionality is a just buzzword used by protest movements or the liberal media, while for others is a means of social identification. It is okay if you have never heard of it or do not understand it or know how to define it, you are not alone. Although it is an identifier and has mainstream vernacular usage, scholars like sociologist Patricia Hill Collins acknowledge that intersectionality is challenging to define, and only slightly easier to identify when recognized. Hill Collins asserts that “scholars and practitioners think they know intersectionality when they see it. More importantly, they conceptualize intersectionality in dramatically different ways when they use it.” Thus, an essential aspect of societal understanding and identification of intersectionality is our knowledge of its dependent relationship to power and inequity. Intersectionality must have a subject (a person or group of people) that experiences inequality (subjugation/oppression) because of its/their relation to power (the dominant with the hierarchical structure).

Intersectionality relies heavily on social constructions like race or gender, but not as a singular point of inequality. The term “intersection” demands another point—an interlocking point–of inequality. For example, intersectionality must critically examine the subjugation experienced by a person with blindness who is a Hispanic trans woman as well as a teenage girl who is Arab and a wheelchair user, respectively. Both are members of marginalized populations: ethnicity – Hispanic and Arab, gender/sexuality – a trans woman and teenage girl, and disability – blindness and wheelchair user; therefore, the intersectional analysis must include at least two points of oppression. The and makes the difference. For this to occur effectively, individuals must determine how they will employ intersectionality as a definition, in addition to a research tool.

In her essay, Hill Collins sheds light on three possible frameworks for intersectionality: a field of study that examines both content and themes that might be characteristic, an analytical strategy reliant upon intersectional frameworks to explain the social world, and a form of critical praxis connected to social justice practice via scholarship. Intersectionality has increased in popularity as society becomes more aware of the work of critical race theorist, Dr. Kimberlé Crenshaw, and with the rise of protest movements. Many people identify Crenshaw as the creator of the term intersectionality, but Black feminist scholars point to Anna Julia Cooper, Audre Lorde, and the Combahee River Collective, among others as describing the concept in their works years and centuries before Crenshaw.

First, as a field of study, intersectionality has positives and negatives. The positives lay in its complementary adaptability with other disciplines and areas of study, yet, it is here that many of the negatives exist as well. Citing Edward Said, Hill Collins notes that “theories can lose their originality and critical stance as they travel from one domain to another” (6). This travel can result in the misrepresentation of the original intent and the exclusion of some scholarship as has happened over time in fields of study like Black feminism.

Second, as an analytical framework, intersectionality must “rethink” constructs, not only as concepts of work and family but violence and identity, and in direct relation to “underutilized” categories of analysis like class and age. It is at this juncture that disability rights activists and scholars demand an increased inclusion. Using Stuart Hall’s theory of articulation, Hill Collins questions how it is possible for two sets of ideas, the expressed and unexpressed, to create the necessary knowledge needed for an intersectional canon (15). Hill Collins questioning aligns with Ellen Samuels’ assertion that disability remains underrecognized as a “legitimate or relevant position from which to address broad subjects” and Michael Berube’s pronouncement that disability must continually battle against gender, race, and sexuality in various areas. Historically, there has been an imbalanced pattern of research due to the heavy focus on the intersections of race and gender; yet, when considering that one in five human beings live with a disability, multiple constraints apply and extend beyond gender and race.

Lastly, as a praxis, intersectionality can contribute perspective by elucidating areas of social inequality as activists and scholars increase their political engagement. Sociologists Hae Yeon Choo and Myra Marx Ferree observe three ways that intersectionality is/can become practiced: group-centered, process-centered, and system-centered. They caution that even in practice, neglect occurs in facets of the intersectional analysis despite best efforts to adequately include, analyze, and identify because as Crenshaw notes, sometimes conflicting political agendas detract from the areas of oppression.

The Intersection of Disability and Everything Else

In many societies today, disability, like most categories of marginalization, boxes members as differing from the norm or as the needy and helpless Other. In many ways, disability has become a fetishized difference and a source of ‘inspiration porn’ when foregrounded in the mainstream via social media, television, and movies. What if activists and scholars began to utilize the constellation of knowledge as outlined by Hill Collins and Choo and Ferree through the employment of an analysis of the intersection of disability and everything else? Persons with disabilities are the global majority when accounting for the entire spectrum of disability; thus, we as individuals who make up the collective, have a chance to bring those surviving on the margins into the center of analysis and discussion.

Humanity must begin to see the inclusion of disability as a prerequisite for the dismantling of structural violence and social injustice. Black feminist and lesbian Lorde, in her comments to a New York conference audience, protested that “survival is not an academic skill. It is learning how to stand alone, unpopular and sometimes reviled, and how to make common cause with those others identified as outside the structures in order to define and seek a world in which we can all flourish. It is learning how to take our differences and make them strengths. For the master’s tools will never dismantle the master’s house. Racism and homophobia are real conditions of all of our lives in this place and time. I urge each one of us here to reach down into that deep place of knowledge inside herself and touch that terror and loathing of any difference that lives there. See whose face it wears. Then the personal as the political can begin to illuminate all our choices” (112-3). If disability replaced either racism or homophobia in Lorde’s quote, how does the level of analysis and research begin to change the conversation surrounding our social understanding of these areas of oppression and subjugation? Intersectionality forces humanity to come to terms with the lack of knowledge about difference while confronting the terror and loathing of difference which lurks inside us as barriers and outside of us as social institutions and societal norms. In whatever form intersectionality finds usage, it is imperative that it remains a tool that dismantles injustice at the personal and political level.

**Keep up with the latest announcements related to the upcoming Symposium on Disability Rights by following the IHR on Facebook, Twitter, and Instagram.

ADA: Civil Rights Legislation for All

* This is a repost from summer 2017

by ABBY ROSS

July 26 1990 ADA Signing Ceremony — July 26 1990, Signing of the Americans with Disabilities Act. Source: United Spinal Association

Today marks the 27th anniversary of the signing of the Americans with Disability Act (ADA). This was a truly groundbreaking piece of civil rights legislation that finally took permanent steps towards ensuring equality for all Americans. The ADA requires private and public entities to not discriminate against people with disabilities, and was crafted with the goal of integration in all aspects of society – employment, social settings, government, transportation, and beyond.

James Weisman, President & CEO of United Spinal Association – a nonprofit dedicated to enhancing the lives of people with spinal cord injury/disorder – has been a disability rights attorney for nearly forty years and had significant involvement in drafting portions of the Americans with Disabilities Act. He sued New York City as a young lawyer over inaccessible buses and subway stations. The implementation of mandatory bus lifts and key subway stations with elevators for wheelchair access were direct results of his lawsuit. This became the basis of the transportation sections of the ADA, and created a precedent across the country giving individuals with physical disabilities access to transportation and thus increasing independence.

Unbeknownst to Weisman, it was just the beginning of his advocacy work specifically related to transportation accessibility for wheelchair users. In the 1990s, United Spinal Association again brought litigation against the City of New York this time related to curb ramps – the corner of sidewalks that are altered to allow wheelchair users and parents with strollers to access the sidewalk from the street. The City was ordered to install ramps on all sidewalks and some twenty years later is still working to fully complete the project. He works on wheelchair accessibility in the taxi and transportation realms with companies like Uber and Lyft. With technology transforming transportation services, he remains committed to ensuring that accessibility is a priority from design to implementation across the transportation industry. Transportation is only a slice of the work that he has been involved in throughout the last forty years as disability rights truly extend to every aspect of an individual’s life. I wanted to hear his thoughts on this important anniversary, forty years of activism as well as reflections on today’s disability rights movement.

Senator Tom Harkin, ADA Sponsor & James Weisman at the NYC ADA25 Disability Pride Parade. Source: United Spinal Association

AR: What is the connection between disability rights and human rights?

JW: Disability rights has always been the bastard child of the rights movement. There is no real “ism” attached. Ableism is the closest thing but that is not definitive. Disability is in every group. There is no country, population or demographic that doesn’t include people with disabilities yet they still can face the hallmark issues of human rights discrimination. Poverty, isolation, inadequate healthcare, underemployment and exclusion are all barriers to independence and equality. People with disabilities face these issues day in and day out.

AR: Where do you see disability rights discussions and action moving in the future?

JW: For a few years, we were making significant progress across the board but with the new administration, we are back to basic rights. Now, the choice to live in the disability community is gravely threatened. Funding for support services that would allow people with disabilities to live independently, work, go to school, shop, go to the movies – live a “normal” life – is being slashed and the impact is tremendous. The proposed changes to healthcare would also have a dramatic effect on quality of life, self-sufficiency and frankly, life expectancy for severely disabled individuals. Simply staying alive is becoming a goal of advocacy again.

Apart from these issues of the day, which will likely always be present in some form, mental health stigma is the next biggest issue and will take the most work to overcome. The complexity of diagnoses and treatments paired with the lack of education and familiarity has created enormous barriers and misunderstanding.

And of course, transportation is always an issue. Innovation must include accessibility. Every new modality should be accessible from inception. – in 2017 it is ridiculous to even consider developing technology that wouldn’t include everyone and consider an aging population in design.

AR: Where have you seen the most progress in disability rights in the last 27 years?

JW: Without a doubt, it is the built environment. Physical accessibility is the easiest to measure, quantify, regulate and learn how to fix. There have been amazing advancements in what is considered normal in terms of building design and features. Automatic entries, lever style door handles, accessible restroom stalls – all things many people don’t even notice but are essential for wheelchair users and others with mobility impairments.

James Weisman and Ian Ruder at United Spinal’s Roll on Capitol Hill Advocacy Event, 2012. Source: United Spinal Association

AR: In your opinion, what is missing from the movement?

JW: Collective identity with the rest of the country. People with disabilities are a tremendous minority group but generally not understood or engaged in the same respect that the able-bodied public is in terms of employment, education, media, advertisers, athletics, etc. Society seems to perpetually need to be re-educated about disability. The image of people with disabilities used to range from heroic to pathetic – that has changed and I believe now ranges from needy to competent but continues to be somewhat one dimensional. For instance, the wheelchair user who is the leading man’s best friend but not the leading man. One in five Americans have a disability. – We all have a friend, uncle, neighbor or colleague with a disability that we consider “our disabled guy” – we know they operate in the world, go to work, school, church, buy groceries and socialize but somehow our personal experiences are not extrapolated out to our experiences with the greater disability community.

To some degree we are missing the next generation of disability rights leaders. Many of my colleagues have been involved in these battles for thirty years or longer when the fights were about the basics – access to buildings, transportation, education. Fortunately, we have progressed since then to more sophisticated issues but there are still barriers on many fronts. The next generation of leaders will need to understand the history of the movement, the landscape of the challenges and the best possible outcomes for the disability community. We have so many bright individuals, disabled and able-bodied, that are doing wonderful work around the country – I am sure that the disability rights movement will be in good hands.

AR: What lessons have you learned in your decades of disability activism?

JW: Good ideas eventually come to fruition. It just takes time. You must keep them on the table, keep talking, keep pushing. Nothing changes if you don’t push. That often means you lose and it is one step forward three steps back but I’ve seen dramatic change in a relatively short time so I know it can happen.

Bias goes away if you expose it. Again, not necessary quickly and not completely, but every little bit helps.

I’ve found that it is extremely rewarding to be a part of this community and social fabric. I have developed extremely meaningful relationships through my work in disability rights. It is a very effect way to mature as a person – to understand the grand scale of the movement and issues as well as the microcosm of individual struggles and concerns.

AR: Finally, why should disability rights matter to every American?

JW: Dependence is expensive. Way more expensive than independence. Dependence is person specific and labor intensive whereas independence often requires only one-time investments. Motorized wheelchairs, building alterations and other assistive technologies certainly aren’t cheap but are essential tools for personal liberty. The goal of the Americans with Disabilities Act and the goal of all the work that we do around rights is simple – to give opportunity. I always say that the greatest opera ever written or the cure for cancer or other remarkable achievements may be locked in the head of an individual with disabilities who without the services, tools and right to independence will never have the opportunities they deserve to share, create and succeed. Do we want to pay to take care of everyone when the alternative – increasing access to education, employment and opportunities is by far the better alternative?

Disability rights are human rights. People with disabilities are individuals of all ages and backgrounds who are striving to be independent and active participants in society. They are moms, colleagues, wounded warriors, uncles, kids with big dreams, best friends and neighbors. They have families, jobs, hobbies, likes and dislikes and problems and joys. While the disability is an integral part of who they are, it alone does not define them.

Abby Ross is the Chief Operating Officer of United Spinal Association headquartered in NYC.

James Weisman was the General Counsel of United Spinal Association for 35 years prior to becoming President & CEO in 2015.