Tragic Killing of a Corporal and the Urgent Need to End Female Genital Mutilation

by Grace Ndanu

The Kenya Girls Guide Association hosted a rally against FGM during 16 Days of Activism in 2011.
The Kenya Girls Guide Association hosted a rally against FGM during 16 Days of Activism in 2011. Source: Yahoo Images

The killing of Corporal Mushote Boma on December 15, 2023, in Elgeyo Marakwet County, Kenya, has brought to light the deeply entrenched issue of female genital mutilation (FGM) and the urgent need for increased awareness and action to eliminate this harmful practice. The tragic incident, where Corporal Boma was stoned to death by a mob of young men after rescuing a group of girls who had been forced to undergo FGM, signifies a significant setback in the fight against this violation of human rights in Kenya.

Female genital mutilation, also known as female genital cutting or female circumcision, is a practice that involves altering or injuring the female genitalia for non-medical reasons. FGM is a harmful practice and a violation of the rights of girls and women. It can lead to severe physical, emotional, and psychological consequences, including but not limited to severe bleeding, infections, complications during childbirth, and long-term psychological trauma. The World Health Organization (WHO) has classified FGM into four types, with type 3 being the most severe, involving the removal of all external genitalia and the stitching of the vaginal opening.

According to reports, the incident involving the Corporal occurred when the police were taking the rescued girls to the hospital after the illegal FGM procedure. It is a grim reminder of the challenges faced by law enforcement officers and activists in combating such deeply rooted harmful practices. Despite the ban on FGM in Kenya, the practice still persists in certain areas, often conducted during school holidays, using crude methods and tools by individuals who continue to defy the law.

It is essential to understand that the practice of FGM is not limited to Kenya but is prevalent in many African countries, as well as in some parts of Asia and the Middle East. The complexity of cultural, social, and traditional beliefs and practices surrounding FGM makes the fight against it particularly challenging.

An infographic on FGM, including information about how many girls and women are impacted by it, practiced in over 30 different countries around the world. Source: Yahoo Images
An infographic on FGM, including information about how many girls and women are impacted by it, is practiced in over 30 different countries around the world. Source: Yahoo Images

In the wake of Corporal Boma’s tragic killing, there is an urgent need for heightened awareness and education about the dangers of FGM. The involvement of communities, religious leaders, and other stakeholders is crucial in effectively addressing and eliminating this harmful practice. There is a pressing need for community-based interventions focused on education, awareness, and empowering women and girls.

Furthermore, it is imperative for the Kenyan government and other relevant authorities to take decisive action and strengthen the enforcement of laws against FGM. Perpetrators of FGM must be brought to justice to send a clear message that this harmful practice will not be tolerated in any form. The government should collaborate closely with local organizations and international partners to develop and implement comprehensive strategies to combat FGM effectively.

The media can play a pivotal role in raising awareness about FGM and shaping public opinion on the issue. Media campaigns and educational programs can provide crucial information on the physical and psychological consequences of FGM, dispel myths and misconceptions, and promote positive social norms around the issue. Additionally, the media can highlight success stories of communities that have abandoned the practice of FGM, inspiring others to follow suit.

At the global level, the international community plays a vital role in supporting efforts to combat FGM. International organizations, including the United Nations and its specialized agencies, as well as non-governmental organizations, have been advocating for the elimination of FGM through various programs and initiatives. These efforts range from providing direct assistance to affected communities, conducting research and data collection, advocating for policy changes, and supporting grassroots organizations working at the local level.

Some resources laid out for community members to learn about the dangers of FGM. It includes pamphlets, brochures, and a 3D model used to teach about different types of FGM.
Some resources are laid out for community members to learn about the dangers of FGM. It includes pamphlets, brochures, and a 3D model used to teach about different types of FGM. Source: Yahoo Images

The killing of Corporal Mushote Boma serves as a stark reminder of the urgent action needed to eliminate the harmful practice of female genital mutilation. It is crucial to work collectively to raise awareness, educate communities, and enforce laws to protect the rights of girls and women. This tragic incident must galvanize individuals, communities, and governments to address FGM comprehensively and put an end to this barbaric practice.

The world must unite to protect the rights and well-being of girls and women globally and ensure that no one else suffers the same fate as Corporal Mushote Boma. By fostering a culture of respect for human rights and gender equality and by promoting positive social norms and behaviors, we can strive to create a world where every girl and woman has the right to live free from the fear and trauma of female genital mutilation. Together, we can work towards a future where every girl and woman can fulfill her potential without being subjected to the physical and emotional pain of FGM.

The tragic killing of Corporal Boma is a solemn call to action, and it must be responded to with determination, compassion, and unwavering commitment to bringing an end to the harmful practice of female genital mutilation once and for all.

Inequalities in America’s Foster Care System

by Caitlin Cerillo

This picture shows a child pulling a suitcase and standing on top of a cliff-like figure, which depicts the harsh reality of children being relocated in the foster care system.
This picture shows a child pulling a suitcase and standing on top of a cliff-like figure, which depicts the harsh reality of children being relocated in the foster care system. Source: Yahoo Images

Common Misconceptions

Foster care is typically seen as a temporary living arrangement for children who are vulnerable due to circumstances like conflict in the family or home or until they are permanently adopted into a family. However, this is not the case for the hundreds of thousands currently living in the system in the United States. The average amount of time a child stays in the foster care system is just over a year and a half, with about 30% remaining in the system past two years. Many are awaiting being reunited safely with their biological parents or a relative, as their reasoning for being put in the system could have been due to anything from a parent being hospitalized to a death in the family.

On the other hand, many do not have parents or family members that they can be reunited with. Many children in foster care are subject to harsh living conditions, being moved and relocated multiple times during their time in the system, aging out, and the heightened risks of experiencing abuse and malnutrition, just to name a few. Each of these conditions can be extremely harmful to one’s mental and physical well-being. An estimated 50% of young people in the system possess a higher likelihood, 2.5%, of developing mental health disorders compared to their non-involved counterparts. Intersections of race, gender, sexuality, age, ability, and more play a significant role in the experiences someone in the system may face, which will be discussed in this article.

Overrepresentation in Foster Care

One glaring issue regarding the United States foster care system includes the overrepresentation of children of color. Specifically, Black children are among one of the most overrepresented racial groups in the American foster care system. This poses a problem because Black children represent 23% of the foster care population yet only makeup 14% of the general population in regard to children, according to KIDS Count.

This can be attributed to the social and economic disparities that Black families face. Intersections between race and socioeconomic status contribute to the hardships many Black Americans face, such as barriers created by systemic racism and economic inequality that put them on unequal footing. Systemic racism—also referred to as institutionalized racism—means that practices and behaviors that uphold white supremacy are instilled in all aspects of society. Just to name a few, systemic racism can appear in healthcare, educational, criminal justice, and economic systems. Systemic racism has caused Black Americans to face inequalities when it comes to accessing quality education, equal job opportunities, and housing, which all play a role in overrepresentation in the foster care system. Due to these circumstances, Black children may be more likely to be placed into foster care.

Social workers are professionals whose role is to promote social welfare, advocate for disadvantaged populations, and aid people in overcoming the challenges they are going through. Foster care social workers deal with ensuring the well-being of individuals in foster care by conducting home visits, monitoring the health, security, and academic performance of the child, and consulting with other professionals the child may interact with, such as counselors, teachers, and medical professionals.

Implicit biases are preconceived notions that one can have towards a specific group, which affects the ways in which they interact and view that group. Unfortunately, implicit biases that can be held by social workers have also been attributed to the overrepresentation of Black children. These biases can have an influence on how the social worker may handle cases and lead to disproportionate numbers of Black families being investigated and, as a result, becoming involved in the foster care system.

So, what can be done to correct the implicit biases that may exist among foster care social workers? Implementing diversity within the hiring process can ensure an inclusive environment, which can challenge potential implicit biases. Similarly, policies that ensure inclusivity can foster a proactive decision-making process when dealing with biases. Implicit bias training could also be helpful and open the conversation to important topics like the importance of cultural competence, the impact of stereotypes and microaggressions, intersectionality, and ways to recognize and address implicit biases.

Overcrowding in the System

This picture shows a young girl holding a sign with the words "I've been in foster care for 1015 days..."
This picture shows a young girl holding a sign with the words “I’ve been in foster care for 1015 days…” Many children will stay in the system for over two years while awaiting permanent adoption. Source: Yahoo Images

While the number of children in the system has decreased within the last two decades, there are still hundreds of thousands of children who will likely age out. As a foster care child gets older, their likelihood of being adopted into a family decreases. Younger children are more desired among prospective families, with children who are nine or older being much less likely to be adopted, according to the North American Council on Adoptable Children.

An effect of overcrowding is aging out, which occurs when a foster care child turns 18 when they are “emancipated” or no longer granted the protections and resources given to them by the system. Over 23,000 young people age out annually in the United States, which can cause them to be homeless, less likely to have access to educational resources, and often have problems with the transition to adulthood. Additionally, they may become more predisposed to a higher risk of substance abuse and teen pregnancy

This infographic shows various statistics pertaining the circumstances of young people who age out of the foster care system.
Statistics on young people who age out in the foster care system, provided by National Foster Youth Institute. Source: Yahoo Images

Addressing the problem of overcrowding requires several actions: policy changes and reform, improvements in the system as a whole, and public awareness and advocacy. Allocating appropriate funds to the child welfare and foster care system can ensure equal access to mental health services, supply improved technological systems to keep accurate and efficient data, and offer support services for foster parents. Each of these can benefit all entities involved. Public awareness of the system’s overcrowding issue can help recruit more prospective foster families and individuals seeking to permanently adopt a child.

The Connection Between Abortion Bans and the Foster Care System

In June 2022, Americans saw an overturning of Roe v. Wade by the Supreme Court. Roe v. Wade was a landmark decision passed in 1973, which essentially granted the right to abortion across the country. The 2022 decision to strike down Roe v. Wade has had damaging effects on the already overcrowded foster care system. People who are pro-life and against the right to abortion will commonly use foster care as a proposed alternative to the abortion procedure. However, abortion restrictions have been found to cause a significant increase in the number of children who are put into the system, according to an analysis conducted by Harvard Medical School researchers. This results in more children having less of a chance of being adopted into permanent families and increases the number of people who will most likely age out in the system.

 

Disproportionate Deaths: Black Mothers

by Abigail Shumate

*The use of gender-affirming language is incredibly important, and it is vital to remember that women are not the only people capable of giving birth or the only people subjected to maternal risks. Unfortunately, research on transgender, intersex, and nonbinary births is incredibly limited, so for the sake of concision, this post will refer to the maternal mortality crisis largely in the context of women. *

Maternal Mortality

Maternal mortality is perceived as a thing of the past. In the 21st century few feel as apprehensive about the idea of them or a loved one giving birth as they would have in centuries prior. One group that does not share this same luxury is black mothers. In America, black women are three times more likely to die from pregnancy-related causes than white women. Causing these issues are years’ worth of issues, including differences in the quality of healthcare, implicit bias, and structural racism.

With 80% of pregnancy-related deaths being preventable, it empowers no one to learn that Alabama is one of the greatest perpetrators of maternal mortality with the third highest rate in the country. A piece of anecdotal evidence that I stumbled upon while researching this topic is local to not only Birmingham, but to UAB as well. A former faculty member of UAB, Angelica Lyons, was subjected to pregnancy-related trauma that was, simply put, unnecessary and preventable. Lyons, after emphatically describing her symptoms to her doctors, was brushed off and the severity of her symptoms was not realized. Because of this neglect, she was forced to live with an undiagnosed case of sepsis that resulted in an emergency C-section months before her due date. Fortunately, both she and her baby survived although it was a close call for the Lyons mother. This is not an atypical experience for women of color, and black women specifically. Historical bias against black women results in many doctors dismissing their pain as typical or as something they can handle.

To understand the racism incorporated in the gynecological field, it is important to briefly address the history of gynecology. Gynecological science began in the 1840s, when J. Marion Sims, the so-called “father of gynecology,” performed experimental C-sections on black slaves without any anesthetics. This inhumane treatment continued after the abolition of slavery, with unnecessary hysterectomies being performed on black women. Dr. Deirdre Cooper Owens said it best when she stated, “the advancement of obstetrics and gynecology had such an intimate relationship with slavery, and was literally built on the wounds of Black women,” Following this, black families were kept from white hospitals with substantial funding until the Civil Rights Act of 1964. The Civil Rights Act did not completely eliminate the disparity, and healthcare discrimination still follows us to this day.

Alternate Text: Photo of a University of Alabama at Birmingham building, displaying the words “University Hospital.” Source: Flickr
Photo of a University of Alabama at Birmingham building, displaying the words “University Hospital.” Source: Flickr

 

Maternity Deserts

One cause of inadequate care for all mothers is maternity deserts. Maternity deserts are counties that have no hospitals offering obstetric care, no birthing centers, and no obstetric providers. Over two million women between the ages of 15 and 44 live in these maternity deserts, and between 2020 and 2022, the number of counties determined to be maternity deserts increased. Maternity deserts disproportionately affect Black and Hispanic neighborhoods (although, this post focuses on black mothers, as the difference between black and white mothers tends to be starker). Maternity deserts often have lower access to transportation as well, and these transportation barriers can hinder the utilization of prenatal care.

 

Alternate Text: Photo of an industrial city, featuring train tracks, cranes, and various types of buildings. Source: Flickr
Photo of an industrial city, featuring train tracks, cranes, and various types of buildings. Source: Flickr

 

A Broader Scale

Health disparities amongst black people are not isolated to maternal issues.  Black people must struggle with medical practitioners throughout their entire lives. Doctors habitually brush away the concerns of black people of all ages, causing them to be misdiagnosed, and resulting in worse treatment than their white counterparts, or no treatment at all. As written about in this post, this begins when black people are in utero and can lead to lifelong health conditions that are misunderstood and under-addressed.

For example, black children are more likely to have asthma and less likely to have treatment. There are many reasons for this; however, I am choosing to focus on the long-term effects of Jim Crow laws. Unfortunately, many areas with below-average housing (or areas located near toxic sites) are the same areas that were the result of previous redlining. Comparatively, 4 in 10 black children live in areas plagued by poor environmental factors, as opposed to just 1 in 10 white children. People are quick to discount the social factors that play into conditions such as asthma; however, many scientists agree that structural conditions can worsen asthma and cause certain groups to be unable to obtain treatment.

Later in life, black people are more likely not only to have Alzheimer’s, but they are also less likely to be properly diagnosed, which delays or prevents their ability to get treatment (not dissimilar to the conditions referenced above). Statistically, black people who are over 65 are 4% more likely to have Alzheimer’s than white people (14% versus 10%), but it is likely that this disparity is even larger due to said misdiagnosis.

Alternate Text: Photo of a blue inhaler. Source: Flickr
Photo of a blue inhaler. Source: Flickr

Progress

While black maternal mortality is still an incredibly pertinent issue, progress has been made in recent years. In 2019, two members of the House of Representatives, Lauren Underwood and Alma Adams, created the Black Maternal Health Caucus. This caucus is one of the largest bipartisan groups in Congress, and its goal is to “work with…partners in industry, nonprofits, and the Administration to find solutions to ending disparities and achieving optimal birth outcomes for all families”. One creation by the caucus is the Black Maternal Health Momnibus Act, or more casually, the Momnibus. The Momnibus aims to address the maternal mortality crisis through investments in every aspect that may exacerbate mortality rates. It includes 13 bills that aim to enlarge the perinatal workforce so that it addresses diversity needs, extend the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC) eligibility so that mothers can have support for longer periods of time after giving birth, increase support for mothers who are incarcerated, invest in federal programs that benefit mothers and infants during public health crises, promote vaccination among mothers, and more.

Another move towards progress is with President Biden’s proposed 2024 budget. This budget incorporates $471 million in funding. One of the tangible things that it will include is Medicaid for twelve months postpartum. These efforts are admirable beginning steps; however, the work is far from complete.

 

International Day of Science and Peace

by Wajiha Mekki 

November 10 is the International Day of Science and Peace (IDSP), also known as the World Science Day for Peace and Development. The United Nations host this international event.

History of IDSP

Established in 1986, this historical day was initially developed to commemorate the birth of Marie Curie, a notable physicist and humanitarian. Curie was known for her innovative work within radioactivity, contributing to the discovery of radium and polonium. By 1999, its purpose changed to reflect the global needs of the scientific and humanitarian community, utilizing the day to affirm the global commitment to attaining the goals of the Declaration on Science and the Use of Scientific Knowledge. The day and annual summit unite governmental, intervention mental, and non-governmental organizations meaningfully to promote international solidarity for shared sciences between countries and renew the global commitment to use science to benefit communities that need it most. 

The overall goal of IDSP is to help achieve the UN 2030 Agenda and the 17 Sustainable Development Goals, creating a plan for prosperity for people and the planet. 

 

ISDP 2023

The 2023 theme for IDSP will be “Bridging the Gap: Science, Peace, and Human Rights.” This emphasizes the interconnectedness between science and peace, having a role in advancing human rights. Science is a valuable tool for making technological advancements, but it is also helpful in helping address social issues, reducing conflicts, and sustainably promoting human rights.

 

Photo of space shuttle near body of water.
Photo of space shuttle near body of water.
Source: Flickr

Science and Human Rights

Science is frequently associated with helping improve medical interventions, solving coding bugs, and completing mathematical equations. However, contrary to popular belief, science is essential to human rights. Firstly, science has a valuable role in promoting sustainable development. Utilizing scientific methods, data can be collected to quantify the progress toward fulfilling the 17 UN Sustainable Development Goals. Ranging from climate change to poverty to infant mortality, scientific data collection and analysis methods are needed to efficiently and effectively respond to global issues. Research and innovation also contribute to the mobilization of resources to historically underserved communities, allowing them to gain access to necessities. 

Within innovation, shared desires and interests help unite countries with singular goals. Scientific diplomacy is valuable in bringing countries to the table of collaboration. This deepens connections between countries as it relates to trade and commercial interests and helps foster peaceful relationships, prioritizing human rights.

With the appropriate distribution of resources, scientific advancements help improve the quality of life for communities internationally. Applying what is traditionally “scientific” to communities gives them a chance to live a better quality of life in a cleaner environment.

It is available to educate the public about the vital role of science and encourage innovation to solve global challenges.

How Countries Can Get Involved

Beyond participating in IDSP, countries can have a role in unifying science and human rights through many different avenues. One route is to protect and invest in scientific diplomacy. By allocating funding to scientific innovation and multilateral collaborations, governments can ensure that they can focus on shared goals with their international counterparts, working collaboratively to promote peace and cooperation. Another route is developing policies that protect innovation while developing guardrails for its usage, ensuring it is mobilized to those who need it most. States have a responsibility to be an advocate and protectors of their citizens, and by working to ensure that scientific diplomacy is used for the betterment of people abroad, they can elicit change in a meaningful way.

 

INTL and MAST Students Visit US Department of State Source: GU Blog
INTL and MAST Students Visit US Department of State Source: GU Blog

How Citizens Can Get Involved

Citizens have a responsibility to promote peace with science, as well. The role of a community member is to primarily use one’s voice to advocate for innovation and peace; by doing so and mobilizing one’s own story, organizations are held accountable for their actions. From governmental entities, non-profit organizations, and grassroots movements, stakeholders are supported by the citizenry. It is also important to have open conversations  to explore further the nuanced introspection of science, peace, and human rights, continuing to promote awareness and understanding.

 

A History of Institutions for People with Disabilities: Neglect, Abuse, and Death

by James DeLano

What Are Institutions for People with Disabilities?

In this post, I focus on the institutions that were, and remain, facilities operating for the purpose of housing people with disabilities. The National Council for Disability (NCD) defines these institutions as “a facility of four or more people who did not choose to live together.” They summarize a report made by a consortium of self-advocacy organizations based on their experiences with institutionalization. The NCD list of criteria to define an institution, as synthesized from various self-advocacy groups, is that they:

  • Include only people with disabilities,
  • Include more than three people who have not chosen to live together,
  • Do not permit residents to lock the door to their bedroom or bathroom,
  • Enforce regimented meal and sleep times,
  • Limit visitors, including who may visit and when they may do so,
  • Restrict when a resident may enter or exit the home,
  • Restrict an individual’s religious practices or beliefs,
  • Limit the ability of a resident to select or remove support staff,
  • Restrict residents’ sexual preferences or activities,
  • Require residents to change housing if they wish to make changes in the personnel who provide their support or the nature of the support,
  • Restrict access to the telephone or Internet,
  • Restrict access to broader community life and activities.

Historically, these kinds of institutions have primarily included people struggling with mental health and people with intellectual or developmental disabilities.

What Were America’s First Institutions for People with Disabilities?

Mental institutions in America predate the reality of an American nation. The earliest hospital for the mentally ill, the Publick Hospital for Persons of Insane and Disordered Minds, was founded in Virginia in 1773. It was closer to a prison than what we would now call a hospital; patients were kept chained and shackled, physically abused, intentionally fed rotten food, and bathed in ice water. Inmates were rarely released. Many were placed or kept in prisons prior to or after their evaluation as being “insane.” This began to change in the 1840s; a new medical director attempted to use more humane approaches to treatment. Those included treatment that was consented to and largely removing chains and shackles.

The first modern institution for disabled people was founded by Samuel Gridley Howe in 1848 in Boston, Massachusetts. It was considered experimental, despite others’ previous endeavors taken elsewhere, but Howe had experience in a similar environment, having founded the Perkins Institution for the Blind twenty years earlier. A contemporary article sings praises of the institution. Despite that, the electronic catalog of annual reports by the institution, renamed the Walter E. Fernald State School, ends abruptly in 1973 with a report on identifying child abuse and neglect.

 

Small Victorian-era prison cell. Source: Yahoo Images
Small Victorian-era prison cell. Source: Yahoo Images

John F. Kennedy

John F. Kennedy (JFK) played an important role in the early reform of institutions for people with disabilities. Many people know that Kennedy’s sister, Rosemary, was lobotomized, leaving her permanently disabled and confined to a psychiatric institution. Lesser known is that Kennedy established the President’s Panel on Mental Retardation in 1961, the first government committee on the topic. The committee’s recommendations led to numerous regulations being changed and legislation being passed. One Panel member, Eunice Shriver, who was also Kennedy’s sister, went on to found the Special Olympics.

Institutions for People with Disabilities in Alabama

The first mental hospital in Alabama was the Alabama Insane Hospital, founded in 1859 and renamed to Bryce Hospital in 1900. Ricky Wyatt, at the time 15 years old, was committed by a court to Bryce in 1969. He was not mentally ill.

Wyatt’s institutionalization led to a widespread deinstitutionalization movement. His guardian, a former employee of the hospital, sued Bryce Hospital on his behalf. During the discovery process, Wyatt’s lawyers discovered numerous preventable deaths in the facility, as well as a complete lack of plans in case of a fire; there was no way to contact the Tuscaloosa fire department after 5:00 PM, and the fire hydrants on the property were decades old and incompatible with modern firefighting equipment.

That lawsuit, Wyatt v. Stickney (1972), was part of the beginning of a legal deinstitutionalization movement. It created a minimum standard for care at Alabama institutions for the mentally ill.

Willowbrook State School

Willowbrook was a state-funded institution in Staten Island from the 1940s until the late 1980s. The school was over its capacity in only a few years; in 1965, Robert Kennedy described Willowbrook as a “snake pit” with “rooms less comfortable and cheerful than the cages we put animals in a zoo.” The few changes that resulted from Kennedy’s visit were insubstantial and short-lived.

Another infamous incident in Willowbrook’s history was the hepatitis experiment conducted on the children in residence. The exact rate of hepatitis infection in children at Willowbrook is unknown; I have seen estimates ranging from 30% to 90% of children becoming infected during their time at Willowbrook. At the time, many specific details of hepatitis were unknown. Willowbrook had a local strain of hepatitis that was reputed to be less lethal than strains common elsewhere. Saul Krugman, funded in part by the U.S. Surgeon General’s Office, began conducting a study on hepatitis in Willowbrook – initially starting with an epidemiological focus, then shifting to a more involved study. Krugman intentionally infected 60 children at Willowbrook with the hepatitis virus by feeding them live samples of the hepatitis virus. Krugman “watched as their skin and eyes turned yellow and their livers grew bigger.”

Willowbrook left the public consciousness almost entirely until 1972, when Geraldo Rivera created a bombshell documentary that exposed the conditions at Willowbrook State School and institutions like it. In March 1972, residents’ parents filed a class-action lawsuit alleging violations of the constitutional rights of Willowbrook residents. Just three years later, as a result of the lawsuit, the Willowbrook Consent Decree created standards the institution would be Willowbrook open, however; Willowbrook State School formally closed “officially and forever” on September 17th, 1987.

 

Postcard of Willowbrook with a yellow label stating "Willowbrook State School". Source: New York Public Library Digital Collection
Postcard of Willowbrook with a yellow label stating “Willowbrook State School”. Source: New York Public Library Digital Collection

 

Despite the promise made in the wake of the Willowbrook scandal, alumni are still mistreated today. In 2020, The New York Times published the results of an investigation conducted into recent abuses in a group home in New York where some Willowbrook alumni resided. They describe physical abuse and neglect, including injuries caused by scalding water, deaths caused by neglect, and ant infestations. The investigation made allegations against 13 employees, nine of whom still worked for the agency, and seven of those still worked in group homes at the time of the article’s publishing.

Institutions for People with Disabilities Today

In 2018, the Office of the Inspector General (OIG), along with other federal agencies, published a report on group homes, which have largely succeeded large institutions like Willowbrook or Bryce. They found that, in 49 states, health and safety procedures were not being followed.

“OIG found serious lapses in basic health and safety practices in group homes. OIG made multiple referrals to local law enforcement to address specific incidents of harm.”

Between 2004 and 2010, 1,361 people with disabilities died in Connecticut. 82 of those deaths were caused by neglect or abuse. The causes were found to be due to “abuse, neglect, and medical errors.” The OIG found that “State agencies did not comply with Federal waiver and State requirements for reporting and monitoring critical incidents.” These “critical incidents” include deaths, assaults, suicide attempts, and missing persons.

 

Older man in wheelchair being escorted by caregiver. Source: Yahoo Images
An older man in a wheelchair being escorted by a caregiver. Source: Yahoo Images

 

While we, as Americans, often like to think our country has advanced for people with disabilities, the reality is disappointing. Willowbrook alumni are still being abused forty years later. Group homes have been found to have widespread abusive and neglectful practices.

State Protection & Advocacy agencies exist as a legal protection for people with disabilities. In Alabama, the Alabama Disability Advocacy Program provides legal assistance to people with disabilities in cases involving civil rights violations and has the ability to investigate said cases in hospitals, group homes, schools, and any other facilities where abuse or neglect of people with disabilities occurs.

World Teacher’s Day: A Glimpse into the Persistent Opportunity Gap in America & How a Birmingham Startup is Trying to Close It

“I was always told that America is the land of the free, a land of opportunity. What no one told me was how difficult it was to achieve the American Dream itself. Perhaps that is why they call it a dream—realistic but out of reach. Every time you inch forward, you think you are getting closer to your goal when, in reality, you are getting closer to seeing your greatest hurdles with clarity.”

–Navin Mawani, my mother, an immigrant from Pakistan

Today, October 5th is World Teacher’s Day. Teachers are equivalent to front-line workers who continuously connect young people to opportunity in the forms of learning, employment, and emotional and physical health. So why are there policies in place that create opportunity gaps for teachers and students alike?  

I am a first-generation student in the United States, and I am fortunate that my family could afford to live in a zip code that did not discriminate against me. This article will expose you all to some information about opportunity gaps that prevent children from attaining a sufficient education and will speak about STRIVE Birmingham, an organization that is trying to mitigate the effects of social and economic policies that affect all people.  

A book and pen with leaves around it saying "World Teacher's Day"
A book and pen with leaves around it saying “World Teacher’s Day”; Source: Yahoo Images

 

The Problem 

In Birmingham and several other cities, the opportunity gap—the way social and economic factors result in lower rates of success in a variety of life aspirations—affects all people within society. I consider this limitation on opportunity to be a violation of the human right to attain an education and to sustain a livelihood. The Close the Gap Foundation defines this gap as “the way that uncontrollable life factors like race, language, economic, and family situations can contribute to lower rates of success in educational achievement, career prospects, and other life aspirations.” One example of an opportunity gap is the low reading proficiency among children in kindergarten to third grade within Birmingham City Schools. To combat this opportunity gap, the City of Birmingham established the Page Pals Reading Initiative, a volunteer opportunity for all to read and converse with third-graders at elementary schools.  

If the problem is starting as early as elementary school, there is a drastic need to close this gap. And if that is not convincing enough, these statistics do not lie: 

  • The Annie E. Casey Foundation’s 2012 study found that “while 6% of children who’ve never lived in poverty will drop out of high school, that number climbs to 22% for children who’ve lived in poverty, even temporarily during the time of the survey.” 
  • According to the U.S. Department of Education, high-poverty districts spend 15.6% less on each student than those in more affluent districts. This can result in less student retention, lower earning potential after graduation, and high poverty rates in adulthood. 
  • A 2020 survey by Global Strategy Group of college undergraduates revealed that 77% of students said they fear they will not be able to stay on track to graduate due to hardships caused by COVID-19. That is 3 in 4 college students fearing failure. 
A group of children smiling and hugging one another.
A group of children smiling and hugging one another; Source: Yahoo Images

 

What Creates These Opportunity Gaps?

Unfortunately, there are several factors that contribute to creating and encouraging opportunity gaps. As per the Learning Policy Institute, “these inequities result from growing income inequality over the past three decades and the failure of many states to invest equitably in schools that serve a diverse student population.” Providing equitable access to deeper learning opportunities is perhaps the major challenge of 21st-century education in the United States.

You might be asking yourself what does income inequality have to do with public education and opportunity gaps? According to extensive research conducted by the Economic Policy Institute, a child’s social class is “one of the most significant predictors—if not the single most significant predictor—of their educational success.” Socioeconomic gaps that originated in the 1980s still affect children today. Income inequality has not been reduced, which has kept the educational growth of multiple children stagnant and has widened the opportunity gap.

A person standing in front of a wall of a arrow
A person standing in front of a wall of a arrow; Source: Yahoo Images

 

Income inequality is also dictated by where you live. In a New York Times article in the “America We Need” series, multiple teachers from varying cities in the United States attest to how the opportunity gap is promoted by place of residence, starting with “pollution and the stresses of poverty and [extending] to economic segregation and inadequate school funding.” Not only do teachers have to work within these structural inequities that impede many students from achieving their potential, but they also have to accommodate their way of teaching and communicating knowledge in a way that gives the students the extra boost they need.

And the teachers are right: zip codes have too much influence on the success of students, who are the future leaders, innovators, and entrepreneurs of our world. So why is it okay for nonwhite school districts to get $23 billion less than white districts, despite saving the same number of students? Let me help you out here. It is not. It is unfortunate that even after landmark cases like Brown v. Board of Education (1954), racial and economic segregation created by gerrymandered school district boundaries continues to divide our communities and robs children of their right to a satisfactory education that helps them advance in life.

 

How is STRIVE Birmingham Helping Close this Opportunity Gap?

STRIVE Birmingham is a startup established in June 2023 that aims to bridge the opportunity gap by building a workforce and lifelong relationships. It helps those facing the toughest societal barriers to employment be able to access the training and support they need to build a career and escape social stratification.

STRIVE serves 92% of BIPOC (Black, Indigenous, People of Color), 41% of parents of minors, 44% of people who have been impacted by justice, 78% of people receiving public services, and 84% of formerly unemployed individuals. Since 1984, STRIVE has had more than 85,000 graduates and serves about 2,000 people annually at its locations in New York, Atlanta, and now Birmingham.

STRIVE Birmingham has partnerships within the Birmingham medical community and is able to get its students of all ages national certifications, has a 70% to 80% successful placement rate, and pledges a lifetime commitment to students. Once you are a part of STRIVE, you are able to receive professional development and essential employee skills, while having access to a network of professionals who are all rooting for your success.

A blue and white logo for STRIVE Birmingham
A blue and white logo for STRIVE Birmingham; Source: Yahoo Images

 

As a first-generation student, there is nothing more encouraging than knowing there are organizations like STRIVE Birmingham that exist to help bridge the opportunity gap that is so prevalent in communities like Birmingham’s through education. I am also comforted in knowing that there is no age limit on education; anyone can be an educator, and anyone can be a student.

As I reflect on who has influenced my educational journey on World Teachers’ Day, I am more aware of barriers to those who could not escape opportunity gaps. I am eternally grateful to my teachers and mentors for helping me excel, and I salute every teacher who has ever had to battle restrictions to their educational style because of policy-dictated opportunity gaps. Thank you, teachers, instructors, and mentors, for not giving up, even when the situations were not ideal. Thank you for not discriminating against your students, even if their ZIP code does.

 

Additional Information on the Opportunity Gap in Public Education

This TED Talk by Anindya Kundu summarizes the implications and other factors of the opportunity gap within U.S. public Schools, and I highly recommend it.

Native American Lands and Their Children: A History

An image of two Native American children in their cultural garbs.
Image 1 – Source: Yahoo Images

I would like to start this piece off with a land acknowledgment, where I acknowledge the truth of who the lands of America truly belong to. The land in which I sit to write this article, as well as the ones occupied by those who reside in America once belonged to the many diverse communities that existed long before America got its name. Once prosperous, thriving lands belonging to these various indigenous communities, (to the Creeks and Choctaw, in my case), the lands of America were respected and honored by the relationship that these various tribal communities held sacred between themselves and their environment. It is in honor of their stewardship and resilience that I hope to shed light on some of the more gruesome, nefarious betrayals they have experienced at the hands of colonizers from the time their tribal ancestors witnessed the colonizers’ arrival to their lands in 1492.

Before the European colonizers arrived on this land, there existed a diverse group of tribal communities, over a thousand different ones just in the mainland we call America today. Now, these tribes have been reduced to no more than 574 federally recognized ones, with dwindling tribal membership numbers, a fact that can only be blamed on the federally sanctioned behaviors of the colonists. So much has been stolen from the diverse groups of indigenous people since the colonization of the North American lands first began. The original indigenous peoples had offered the newly-arriving colonists hospitality and taught them how to cultivate the lands of America and brave the New Frontiers. Yet, what they received in gratitude was bloodshed, tears, death, and betrayals. So many treaties and promises were broken. According to Howard Zinn, the famous author of the book, “A People’s History of the United States,” the various indigenous communities that existed in the Americas by the time the famous explorers landed in the Americas were anywhere between 25-75 million individuals. They had moved into these fertile lands 25,000 years ago, long before the explorers “founded” the Americas. For those interested in learning a truthful history of America, please check out his book. The book begins in 1492 and continues to examine historical events until contemporary times and phenomena such as the “War on Terrorism”.

There is so much information to be covered on this topic, and the more I researched, the more I found. I want to do this topic justice, and I cannot do so until the historical context has been put in place. Hence, this will be a two-part deep dive into the Native American lands, their cultural lifestyles, their relationship with the environment, and what this means for their existence in a capitalist, contemporary society. Part one will focus on the history of Native American lands, the process of treaties and loss, and the cruel, scheming ways of the federal government that attempted to indirectly, yet forcibly, steal lands away from Native Americans by targeting the youngest members of their tribes. Part two will focus on the Indian Child Welfare Act, the fight (and entities involved) in support and against it, how the environment plays a role, and the vast consequences of the recent Supreme Court ruling on the matter, both in terms of the welfare of these indigenous children, as well as the issue of tribal sovereignty. There is a lot to unpack here, so without further ado, let’s begin with a deeper understanding of the relationship that indigenous communities share with their lands.

It’s All About the Land; It Always Has Been

An image depicting all the various different indigenous tribes that existed in America before the European Settlers landed
Image 2 – Source: Yahoo Images; An image depicting the various indigenous tribes that were present in America before the European Settlers landed.

The European settlers had a problem with the Native Americans from the moment they landed in America. For one, they thought the indigenous way of life to be “savagery” and believed that the Native Americans needed to be “civilized”, something they believed only Europeans could teach them about. They found the gods and spirituality of the various indigenous cultures to be blasphemous and nonsensical, and many Europeans attempted to convert the Natives to Christianity, a more “proper” religious belief. Most of all, though, the Europeans and the indigenous communities had vastly different concepts of property and land ownership. To the settlers, who came from the feudal systems of Europe, land was a commodity, purchased and sold by individuals, and prosperity (and social status) was determined by who owned the most properties, and the most prosperous lands. They became lords and could employ the less fortunate to work under them, paying them a fraction of their profits, while keeping the rest for themselves. This was how things worked in Europe back home, and this is the system they brought with them when settling in the New World.

Native Americans, however, had a different lifestyle and concept of ownership. To them, the thought of owning a piece of land was bizarre, as they viewed the land to belong to the various energies and life forms that existed in the said land. The tribal lands of an indigenous community not only fed and nurtured the tribal members but also protected the tribe’s history and held the ancestral burials of their people. The indigenous communities had a spiritual and emotional connection with their tribal lands, one that cannot be sold to another, similar to how you cannot sell to someone else the relationship you hold with your family. Many (if not most), Native tribes even practiced animism, a belief system that accepts all living and non-living things (and natural phenomena) as being capable of having a life force (or soul). For Native Americans, land ownership was a foreign concept, and everyone that existed in their community held rights to the land their tribes lived on. In fact, when European settlers began purchasing lands from the Native Americans, the indigenous people believed they were only “leasing” the lands to the settlers, not giving up their rights to them. For the indigenous communities, the land was just as much a right of every human as sunlight, water, or air.

The Native Americans’ relationship with their lands was also threatening to the European lifestyle of land ownership and individualism. This struggle, between an individualistic view of community, versus the collective view of community, is, as they say, a “tale as old as time.” For Europeans, who believed individual merit and hard work to be the true characteristics of a successful individual, their success could only be displayed by the vastness of their empires, figuratively and physically. Hence, land ownership was a symbol of status and in a way, a testament of a person’s character. For Native Americans who focused on collective success rather than individually standing out, the strength of their tribe was a result of the part each individual tribal member played to ensure their success. This meant that everyone had a role, and if they played them right, everyone in the tribe benefited from the success. This was how tribes survived even as they warred against each other.

Treaties and Deals

An image depicting colonial men engaging in treaty making with a Native American tribe
Image 3 – Source: Yahoo Images; Many treaties such as this were brokered between various Indigenous tribes and colonists, yet they were seldom upheld and often violated or broken.

Due to these differences between the indigenous communities and the European settlers, many struggles broke out between the two groups between 1492 and 1700. In an attempt to keep the peace between the settlers and the indigenous communities, the British Crown established the Proclamation of 1763, which awarded the colonists all the lands East of the Appalachian Mountains, and everything West was promised to the various different Native American populations that lived in those regions. This did not make the colonists happy, as they believed the King was preventing them from expanding their population, and it was one of the points they listed in the Declaration of Independence as a wrong that was done by the King. Many scholars claim that the Proclamation of 1793 led colonists to pursue a revolution against the crown. The diverse indigenous populations attempted to stay out of the Revolutionary War, as they believed it to be a family feud between the British King, and his colonial subjects. Yet, when they did take part in the War, their participation was diverse. Some joined the rebelling Americans, while others joined the forces of the monarchy. Still, others chose to remain neutral, not wanting to support either side of the struggle. Upon the loss of the Revolutionary War, as part of the treaty signed between Britain and the newly established United States, Britain had to give up all the lands they lay claim to in America, including many of the lands that were promised to the Native American tribes living West of the Appalachian Mountains. This happened without consent or discussion with the Native Americans who took residence in those parts. When the colonists came to take over much of the lands that were promised to the Native Americans through the Proclamation of 1763, they justified their brutality against the Native Americans by blaming them for supporting the British in the Revolutionary War, and when the Native Americans tried to fight back for their lands, the British were nowhere to be seen. This was yet another episode of betrayal experienced by the indigenous populations at the hands of the settlers and the British Crown. Yet, this was just the beginning; the atrocities and betrayals were far from over.

Following the Revolutionary War and the as a result of the resilience shown by the many indigenous communities protecting their lands, the United States decided to engage in creating treaties between the various indigenous tribes in an attempt to set boundaries to their lands, and “compensate” them for the lands taken from them. I have “compensate” in quotations because first of all, no amount of money or goods can compensate for lost lives, which is what many tribes experienced. Some tribes became extinct as a result. Second, these treaties were signed by members who did not have signatory authority to give permission to the lands on the side of many indigenous nations, and Congress seldom ratified the treaties that were signed on the part of the United States. This meant that this was more of a theatrical expression than anything else, and the United States continued to steal the lands of indigenous people. Thirdly, as discussed above, many indigenous people who did engage in treaty-making assumed they were simply “leasing” their lands to be used by the colonists, not selling their rights to it outright. So, there was miscommunication and misunderstandings as to what the treaties actually established. Finally, the United States Congress and Supreme Court established that the indigenous tribes were not capable of engaging in treaty-making, and as such, ended the whole process altogether in 1871, claiming that Congress had full control over “Native American Affairs.”

An image depicting the infamous Trail of Tears, where thousands of indigenous people were forcefully driven out of their ancestral homes and marched into Oklahoma.
Image 4 – Source: Yahoo Images; An image depicting the infamous Trail of Tears, where thousands of indigenous people were forcefully driven out of their ancestral homes and marched into Oklahoma.

In an attempt to fasten the process of transferring lands from Native American tribes to the hands of the government, the United States passed the Dawes Act of 1887. Many of the treaties that were made between the US and the various nations included provisions in which tribes were expected to distribute their lands among their members so that lands were held by individuals rather than the tribal entities as a whole. For reasons explained earlier, the settlers were threatened by the communal lifestyles of the Native American tribes and believed that having individual members have rights over smaller portions of lands would make it easier for them to accept the European lifestyles and give up their “backward” ways. The Dawes Act forced these indigenous members to choose a parcel of land for themselves and their families (the size of the parcel of land was determined by the government), and any excess amount of land after this process would be sold to the government to be used by non-native residents and corporations alike. Millions of acres of land were stolen from various indigenous tribes as a result. This essentially acted as a way to separate the individual Native American member from their larger tribe and weaken their sense of community and tribal sovereignty as a whole.

Since the end of the Revolutionary War, the United States government has made about 374 treaties with various indigenous nations across the country. The United States has either violated or fully broken nearly all of these treaties they created as a promise of peacekeeping. Many of these treaties that the United States obtained in the first place were either coerced or done so by forcible means such as threatening starvation on the communities that refused to sign the treaties. Of the various treaties that were violated and broken, one that comes to mind clearly for anyone even slightly familiar with American History is the actions of then president Andrew Jackson and his Indian Removal Act of 1830. Although he negotiated treaties with various tribes in the Southeast in an attempt to get them to move West of the Mississippi River voluntarily, when he became president of the United States, he passed the Indian Removal Act of 1830, forcibly removing almost 50,000 people from their homes. This forcible removal today would be recognized as a forceable deportation of a population, specifically as a crime against humanity. Under the United Nations Rome Statute of the International Criminal Court, this is one of the most heinous systematic crimes that has been committed throughout history. Jackson did this in an attempt to clear lands to cultivate cotton, which would lead to another atrocious event, the revamping of plantation slavery in the South.

History of the Forced Assimilation of Native American Children

An image of indigenous children dressed in military garb posing with an adult at one of the boarding schools set up across the country in efforts to assimilate the children.
Image 5 – Source: Yahoo Images; An image of indigenous children dressed in military garb posing with an adult at one of the boarding schools set up across the country in efforts to assimilate the children.

Another tactic used by the government to acquire lands from the indigenous populations was through further treacherous means. Native American children were forcefully assimilated into American culture in an attempt to beat/torture their culture out of them. The existence of the Federal Indian Boarding School System was proof of this very thing. Recently, an internal investigation was conducted of the United States government’s treatment of Indigenous children following the incident in Canada, where they found over 215 unmarked graves at a school in 2021. This report, led by Deb Halland, the Secretary of Interior, highlighted many nefarious ways in which tribal lands were stolen from different indigenous nations and the atrocities that were forced upon the children from these nations.

To explore some of the details outlined in this report, (specifically from pages 20-40), the plans of forcible assimilation have been put in place since the days of George Washington. This plan to forcefully erase indigenous culture and assimilate the children into Western culture was seen as the “cheapest and safest way” to steal the tribal lands, ensure a less violent relationship between the colonists and the Native Americans, and transform the tribal economy so they would be prepared to live off of lesser and lesser parcels of land. They found a way to weaponize education in order to accomplish this task.

Elaborating on George Washington’s proposal, Thomas Jefferson, the third president of the United States, put forth a 2-step solution to acquire more lands for the colonists. First, he argued that Native Americans could be forcefully assimilated into European culture, where they could be discouraged to live out a nomadic lifestyle (which requires the use of vast areas of land) and to adopt an agricultural lifestyle similar to the colonists (which can be done with a few acres of land that are cultivated). Second, he proposed that the United States place indigenous populations in debt by encouraging their use of credits to purchase their goods. This, he presumed, would make them default on their debts, and when they were unable to pay back their loans, they would be forced to give up their lands as a result. This land acquired by the government would be sold to non-native settlers, and the profits from these land sales would be put back into the education programs for forceful assimilation of native children.

Sanctioned by the United States government, indigenous children were kidnapped from their homes, whether they wanted to go to boarding school or not (with or without parental permission), and placed in these schools that were located far away from their tribal lands. The plan was to erase the relationship these children had with their cultures, communities, and lands, and instead instill individualism in the children who they were attempting to assimilate in the hopes that they could break up the communal lands into individual parcels, making it easier to be ceased by the government and private entities alike. They called it the “Indian Problem”, which was the different lifestyle and relationship tribal members held with their land and their community. Thomas Jefferson’s two-part proposal was seen as a “key solution” to this “Indian problem.” If the Native American children were forced to become dependent on agricultural lifestyles, they assumed, they could be “civilized.” The government believed that if you separate the children from their families and their tribal connections at a very young age, what they were introduced to would be all they knew, and they would become strangers to the indigenous lifestyles. In turn, the government assumed, the children would not want to go back home and live on the reservations, but instead, would be much more likely to assimilate and live amongst the colonists.

As a result, indigenous families were broken apart, and indigenous children were placed with white families as part of the “outing system.” This meant that the children were forbidden to speak in their native languages and were required to speak English to communicate their needs. What’s worse, they were placed with children from other tribes, meaning that their common language of communication was English, and any children they would have would grow up learning English as their first language instead of the tribal languages of their ancestors.

To support the government in this endeavor, many churches were given legal power over reservations by the government. The military was called in to reinforce the orders of these religious institutions. Many times, the government paid these institutions if they operated a boarding school, paying them a sum for each child. The churches went along with it because they believed that the indigenous way of “paganism” kept them from becoming “civilized” and to fully do so, the indigenous children needed to accept Christianity. The government worked with churches from many denominations by funding them to build the Federal Indian Boarding School System.

Treatment of Indigenous children in these boarding school systems

An Image depicting three children before and after the assimilation process at the boarding school. On the left, the three children sit with their cultural garments, proud of their cultural identity. One the right, the same three children have had hair cuts, and been groomed (both physically and psychologically) to appear more Western.
Image 6 – Source: Yahoo Images; An Image depicting three children before and after the assimilation process at the boarding school. On the left, the three children sit in their cultural garments, proud of their cultural identity. On the right, the same three children have had hair cuts, and been groomed (both physically and psychologically) to appear more Western.

 The Federal Indian Boarding School System was problematic in so many ways. Not only did it forcefully assimilate indigenous children, but the system also took a militaristic approach to education, abusing and mistreating these children in the process. The living conditions at these Boarding schools were terrible. There was no access to basic health care needs, and diseases ran rampant across the schools. The children were malnourished, as they were provided with food and water of poor quality. There was an overcrowding issue, with many facilities forcing multiple children to share one bed as a result. There were not enough toilets to serve the number of children at each facility, and the toilets were not properly maintained.

The infrastructure in these facilities was so poor because they were not built specifically to house these children as facilities for education. Rather, these children were placed in abandoned government buildings or military forts to carry out their education. There was also the issue of child labor, where the children were expected to provide all the services required to run the facilities. This included looking after the livestock, chopping wood, making bricks, sewing garments to clothe the other children, working on the railway, cooking, and cleaning for the others in the facility, and so much more.

The children were expected to take care of themselves and the other children at the facilities. They were also tasked with work from various fields like carpentry, plumbing, blacksmithing, fertilizing, helping with the irrigation system, helping make furniture for use in the facilities (such as tables, chairs, and beds), and anything else that involved physical labor. These jobs the children were trained in would forever keep them at a lower socioeconomic level than their White counterparts. Here too they tried to instill the patriarchal norms of Western society, making sure to teach and employ young girls to work as assistants and cooks, while the young boys were expected to be farmers and industrial workers.

The Indigenous children were forcefully assimilated into American culture. They were told to stop practicing their faiths and were stopped from performing any spiritual and/or religious rituals. The children were expected to go by the English names they were given at the boarding school instead of their Native names given to them at birth. They were forced to cut their hair (which was sacred to many indigenous people as it represented their cultural identity), and were forbidden to wear their cultural clothes and instead were put in military garb.

Those who resisted the assimilation or tried to run away were caught and severely abused and punished. They were put in solitary, whipped, slapped, starved, and abused for fighting to retain their culture. Many of the older children at the facilities were forced to punish the younger children, further dividing the children, and destroying any opportunity the children may have had to band together to resist the assimilation forces. As a result of what the Federal Indian Boarding School System put these children through, there were over 50 marked and unmarked burial sites found. These burial sites had found over 500 indigenous children dead and counting, and these numbers are expected to rise to thousands more. Many indigenous children that survived these boarding schools are reported to have long-lasting impacts on their health and their lives. These children that grew up to be adults reported having higher risks for cancer, diabetes, and Tuberculosis. They experienced heightened mental health issues, and many remain in a lower socioeconomic class as a result.

Cultural Genocide

This image depicts the number of indigenous people that exist today in comparison to what we saw before.
Images 7 & 8 – Source: Yahoo Images; This is a map that depicts how many indigenous members exist today, and what is left of their lands.

Many believe this forcible assimilation program conducted by the federal government to be a cultural genocide, in which a state-sanctioned attempt at the erasure of an entire culture took place. The official definition of genocide as established by the Genocide Convention in the Rome Statute of the International Criminal Court reads as follows: “…any of the following acts committed with intent to destroy, in whole or in part, a national, ethnical, racial, or religious group, as such: killing members of the group; causing serious bodily or mental harm to members of the group; deliberately inflicting on the group conditions of life calculated to bring about its physical destruction in whole or in part; imposing measures intended to prevent births within the group; forcibly transferring children of the group to another group.” As per this definition, the acts carried out by the United States government against the children of various Native American tribes fulfill most, if not all these categories that define these acts to be considered genocidal. It is not a surprise that Native Americans have been killed by the federal government’s sanctions throughout history. There has been serious bodily harm and mental harm caused to members of these various indigenous groups throughout American history. The government deliberately placed young children in conditions of life that ensured their destruction as a member of the Native American tribe they each belonged to. The children within these facilities were not allowed to mingle with others from their own tribes, making it harder for them to retain and pass down their cultural identities, as well as procreate with members of their own tribe. Finally, they were forcibly taken away from their parents and placed in these facilities and other non-native homes in an attempt to erase their cultural backgrounds. All these actions, as was discovered by the recent report we explored at length in this blog, were done so with the intent to destroy the rich cultures of the various Native American tribes. So, the forcible assimilation of Native American children can, without a doubt, be characterized as cultural genocide.

The main goal of this blog was to establish the historical context of what the various Native American tribes endured, as well as the intentions of the federal government in terms of their dealings with the different native nations present in America. Part two of this conversation will focus on a specific piece of legislation that has gained a lot of attention in recent years, the Indian Child Welfare Act. At face value, this legislation is simply an act that addresses the long, detailed history of Native American children and sets guidelines to ensure that proper regulations are put in place to prevent a repetition of history. Yet, it’s now been challenged, partly with the help of very shady moneyed interest, and its fate (and the overarching consequences as a result) were placed in the hands of the nine Supreme Court justices of the United States. We will explore more about this legislation and the case in the next blog.

Some Resources for individuals with disabilities in the Central Alabama region

A word cloud around the word "disability" that includes the various positions that people with disabilities hold in their lives. Some are brothers and sisters, others are homeowners, still some are politicians and lawyers, while others are business owners and firefighters. Disability is only one part of the identity.
Source: Yahoo Images

These past few weeks, we have focused on the broader struggles that people with disabilities face in America. We also looked into the American Education system and explored the many obstacles children with disabilities face within it. This was a much-needed topic to explore, yet I recognize the heaviness and feelings of despair that can follow after reading such a blog series. So, in order to provide some hope, as well as meaningful resources to those struggling with these issues, I have compiled a list of local non-profit organizations that focus on providing services to children (and adults) with disabilities and their families. These organizations provide various services, including places to destress and socialize, and range from serving individuals with both physical disabilities and invisible disabilities. Please take a few minutes to look through this blog and find the resources that you or someone you know might benefit from.

Intellectual Disabilities and Neurodivergence

Oftentimes, people with invisible disabilities can be overlooked by their teachers, peers, and community members because their disability is not “obvious”. Many people with intellectual or learning disabilities struggle to have their needs met because people are either dismissive of them or completely refuse their lived experiences altogether. Navigating through life with an invisible disability can be difficult, especially for younger children, but there are resources in the local Birmingham area that can help children with invisible disabilities as well as their caregivers better prepare for their future. Some of the resources below address developmental needs, and workplace readiness, and offer a sense of community for both children and adults with intellectual and learning disabilities, while others focus on people with a range of disabilities of all ages.

An image that reads, "Invisible Disabilities: They don't all look the same"
Source: Yahoo Images

Mitchell’s Place

Located in two locations, (Southside, and Birmingham), Mitchell’s Place is a non-profit organization that works with children who may be on the autism spectrum. They provide research-based resources for children with disabilities and their family members. For parents and caregivers of children with disabilities, Mitchell’s Place provides education and resources on how to provide the best care for those under their care. They also provide many resources for children, such as helping them develop social skills, helping with feeding, speech, and occupational therapy, providing both psychological and psychiatric resources, and also early learning opportunities for preschool-aged children. Established in 2005 by parents who were unable to find resources for their child with autism, Mitchell’s Place has served over 2500 families and prides itself on being a supporter of diversity, equity, and inclusion. For those interested, their Southside location can be found at 2305 Arlington Rd. Birmingham AL, 35204, and the other one is located at 4778 Overton Rd. Birmingham, AL 35210.

The Arc of Central Alabama

The Arc of Central Alabama (ACA) is another great resource for people of all ages with intellectual and learning disabilities (IDD). Supporting individuals throughout Jefferson County and Blount County, the ACA is Alabama’s largest provider of disability services and prides itself on being the only non-reject program in the state. This means that as long as referrals follow the proper channel, no individual is rejected from being part of the program. A local chapter of The Arc of Alabama and the larger Arc of the United States, the ACA also serves as a crisis center for individuals with IDD, providing a safe space for individuals and their families in times of need. The ACA caters to individuals of all ages, and its various programs focus on these different age groups. Their early intervention programs provide support for infants and toddlers with IDD, along with education and resources for their caretakers and families. Their employment support program trains high school-age students with IDD to help them find better employment opportunities when they are ready to enter the job market. The residential programs focus on providing a safe space for adults of all ages, and a newer adolescent unit has also been created to address the growing needs within the Central Alabama region. Finally, their Community Day programs cater to adults of all ages, providing them with opportunities to socialize and engage with others within their community and develop daily living skills, from balancing their finances to helping with hygienic needs. These programs are tailored to each individual based on their needs, necessities, abilities, and interests. In addition to all these programs, the ACA also empowers its members by providing them with training in advocacy work, focusing on educating the public, following state and federal policies (and funding), and providing them avenues to advocate for their needs and rights. With four locations across Central Alabama – Birmingham, Blountsville, Cleveland, and Irondale – and lifelong opportunities for care and support, the ACA is an accessible and reliable resource for many across this region.

An image of two individuals with disabilities smiling at the camera in front of a microphone.
Source: Yahoo Images

The HANDS program/ the Alabama Autism Assistance Program (AAAP)

            Another resource for children with neurodivergent disabilities is the HANDS program, or the Alabama Autism Assistance Program (AAAP). This non-profit organization provides many services, including therapy (both clinical and home sessions), school services, summer programs for early childhood development, and also seasonal services. Their therapy services are individually catered based on assessments of the child’s needs, in which they provide two-hour, one on one sessions by licensed therapists that track the child’s progress to provide the best resources. Their school services provide additional support during the school year in both academics and behavioral areas. Their summer programs provide a structured environment for children to socialize, learn and play with peers and their seasonal services offer support for children interested in sports. For children with disabilities, socializing with peers can be stressful, so having a safe environment to be able to socialize and make friends can help them become more confident individuals in the future.

Alabama Easterseals Society

With over 50 facilities nationwide and 12 facilities throughout Alabama, the Easterseals Society was founded in 1934 to raise funds to provide services to people with disabilities and advocate for their “right to live a normal life.”  The organization challenges the narrative around disability as a burden and instead focuses on empowering individuals with disabilities with skills and resources. They have services for pediatric rehabilitation, which include speech therapy, feeding therapy, occupational therapy, and physical therapy. They provide services for workforce development, such as career classes which provide training for specific careers, and summer internships to prepare high schoolers for the job market. They also have recreational opportunities, with an emphasis on camping, which can be very therapeutic and great for your mental health. As with the ACA, the Easterseals also have an advocacy element, which spreads awareness about disability rights, supports the passage of legislation centered around disability rights, and provides the space to conduct solution-based workshops within their local communities. They provide additional assistance for elderly people with disabilities, veterans, and caregivers, with both resources and recreational opportunities. Some locations (such as the one in Tuscaloosa) even provide transportation services for those who are unable to drive themselves to work and other places.

Transportation Help

An image of an individual in a wheelchair being hoisted onto the bus, with the assistance of the driver.
Source: Yahoo Images

Of the many challenges that people with disabilities face, transportation is a key issue. Many people with disabilities who can drive require specially tailored vehicles to fit their needs, while others who are unable to drive have to depend on family members, friends, or community volunteers to help them get from one place to another. Due to the fact that many people with disabilities have to visit their healthcare professionals regularly, this can be especially challenging. ClasTrans, (which stands for Central Alabama’s Specialized Transit) serves people with disabilities within Jefferson and Shelby counties who require transportation to various places, including medical appointments, grocery stores, entertainment venues, and so much more. This service is available for those living in urban and rural areas, and they can plan their trips ahead of time to know exactly what they can expect for the day. ClasTrans drivers also provide riders with assistance during the ride, including boarding the vehicle and transferring into their seats. ClasTrans is available for elderly members and those who are able to verify their disability status. While the services are not for free, their rates are affordable, with one-way trips starting at $4. Regular riders can also purchase fare credits, which they can pay ahead of time to avoid carrying exact change on their person each time they use the service.

Therapeutic and Recreational Opportunities

An image of a person in a wheelchair taking care of their horse.
Source: Yahoo Images

Red Barn

An organization focused on incorporating Equine Assisted Services for low-income children with disabilities, Red Barn was founded in 2012 to serve the children in their local community. Equine Assisted Services (EAS) is a professional field of collaborative services that incorporate interaction with horses into therapy, learning, and development for children with disabilities. EAS has three areas of focus: Horsemanship, Therapy, and Learning. Horsemanship deals with activities such as learning how to ride a horse, taking care of the horses, and participating in other equine-related sports and activities. These services are conducted by specially trained individuals who are licensed to provide this training. The second focus of EAS, therapy, deals with counseling services, occupational therapy, physical therapy, psychotherapy, and speech-language pathology. All these therapy options are equine-based, incorporating interaction with horses and equine discipline within these sessions, which are led by licensed therapists. Finally, their third focus, learning, centers on equine-assisted learning in education (such as learning life skills, academic skills, and character development), organization (such as learning team-building skills, leadership skills, and participating in group activities), and development (such as learning skills pertaining to problem-solving, decision making, critical thinking, and communication). For children with disabilities, learning and developing while caring for horses can be a powerful, healthy way to become strong, independent members of their community. It can help encourage them to explore new avenues of interest and expand their opportunities for employment and life fulfillment.  

Exceptional Foundation

Founded in 1999, the Exceptional Foundation provides children (and adults) with disabilities with social and recreational opportunities that allow individuals in the Greater Birmingham region to engage with others on a socio-emotional level. At first, the Exceptional Foundation began meeting at the Homewood Park and Recreation Center but later grew to include a gym, office space, youth center, and other spaces to provide recreational opportunities for their members. Today, the Exceptional Foundation has branched out to include much of Alabama and even parts of Georgia, following the same foundations laid out by the Birmingham facility. They offer many afterschool and summer programs for their youth, including sports events (to both participate in and attend), clubs, and other activities to provide enrichment such as art and music lessons. For adults, there are a variety of daily activities that are offered, including cooking classes, dancing lessons, music classes, gym time, art classes, field trips, and many more. While many of the resources listed above focus on advocacy, education, and support, this organization provides the space for entertainment and enjoyment, encouraging a fulfilling lifestyle for its members. For many people with disabilities, recreational activities can be stressful, and opportunities can be rare. Having the space to engage with others and learn together can help improve social skills and life skills, and can foster a sense of community.

Resources for people with multiple disabilities and or sensory disabilities

An image of a visually-impaired child reading in Braille
Source: Yahoo Images

United Ability

Established in 1948 by concerned citizens, United Ability began as a place to offer help and resources for people with cerebral palsy. As it grew and expanded, United Ability became a place that offers a full spectrum of services for all people with various disabilities and prides itself as being the place that connects people with disabilities to their larger community.

They provide early learning and early intervention programs for children, that focus on encouraging children to learn, grow, and develop alongside other children, while also providing their families with the help and resources they may need. Additionally, United Ability provides a clinic that focuses on meeting the medical needs of individuals with disabilities, which includes various forms of therapy, evaluations, assessments, and any technical assistance they may need. Furthermore, they also provide adult programs for recreation and enrichment and even offer employment services to adults with disabilities. This includes their United Ability Enterprise, a large umbrella under which many people with physical, developmental, and intellectual disabilities are employed. The businesses under this umbrella include Gone for Good, an off-site paper shredding company, as well as Outsource Solutions, a company that offers a variety of projects, including sorting items, housekeeping needs, mailroom needs, and more. It is located in Birmingham for those who are interested in the organization.

Alabama Institute for Deaf and Blind

One of the most respected institutions in the world for its all-inclusive approach, the Alabama Institute for Deaf and Blind (AIDB) spans all over Alabama, with campuses in Talladega, Birmingham, Mobile, Huntsville, Decatur, Montgomery, Opelika, and more. It was founded in 1858, by Dr. Joseph Henry Johnson, and his brother was among the first 21 hearing-impaired students he served that year. In 1932, AIDB was responsible for a project that employed 10 visually impaired seamstresses, a project that laid the foundations for the Alabama Industries for the Blind, Alabama’s largest employer of visually impaired individuals. Similarly, in 1968, a trade school for visually impaired individuals and audio-impaired individuals was created to provide adults who did not want to (or could not) attend college with the necessary skills to enter the job market. The AIDB provides services for visually impaired individuals, audio-impaired individuals, and those with multiple disabilities. AIDB serves children, as young as infants and toddlers, to adults of all ages, including seniors with sensory disabilities. Among the many services they offer is aiding children with sensory disabilities in schools. They focus on education and rehabilitation and provide a variety of services, including early intervention for children, and counseling, interpretation, and transportation for individuals of all ages.

Finally, students with disabilities that attend the University of Alabama at Birmingham (UAB) are provided with support through the Disability Support Services (DSS) program. Some of the services provided are note-takers, sign-language interpreters, transportation around campus for mobility-impaired individuals, and specifically catered support such as time extensions on tests and assignments. UAB also provides ramps and sidewalk cuts for easy access to those using a wheelchair or walkers, and many accessible parking spots at the Hill Center for visitors. UAB empowers its students to advocate for themselves and provides the necessary support they need to have a pleasant educational experience.

Part Three: The Different Approaches to Disabilities and the Future of Disability Rights

An image of a woman with disability in a sunflower field with a banner that reads, "nothing about us without us!"

This blog is part three of the conversation around disability rights, especially as it applies to children within the American school system. If you have not read the first two blogs in this series, I suggest you do so. The first blog focused on the historical view of disability and the American school system’s approach to children with disabilities. The second part mainly focused on the struggles that children with disabilities face within the school system, and how these struggles have been exacerbated due to the recent pandemic. This final part will focus on some of the approaches that have been taken in the past to address people with disabilities, and how they differ from a human rights approach. We will also examine how we can help on various levels, whether we want to focus on our personal abilities or advocate for a larger movement.

The Rights of Children with Disabilities

What rights are protected?

An image depicting five children holding signs that read, "the right to be heard", "the right to a childhood," "the right to be educated," "the right to be healthy," and "the right to be treated fairly."
Source: Yahoo Images

Much of what we have established in modern society in terms of children’s rights comes from decades of struggles, from implementing child labor laws to fighting for the right to an education. Similarly, the fight to pass the Americans with Disabilities Act (ADA) was one sure way to protect individuals with disabilities from discrimination. These rights and more are protected under the United Nations, both in terms of people with disabilities, (Convention on the Rights of Persons with Disabilities, CRPD), and with children’s rights (Convention on the Rights of the Child, CRC). Yet, these developments have only occurred in recent years; the ADA and the CRC were passed in America and the UN respectively, in 1990, and the CRPD was not adopted internationally until 2006.

The ADA, passed in the United States, protected the rights of people with disabilities from being discriminated against in all aspects of society. This was the first major legislation that protected people with disabilities from being denied employment, discriminated against in places of business, or even denied housing. In addition to these protections, the ADA required industries to be inclusive of those with disabilities through (among other things) taking measures such as building ramps and elevators for easy access to upper-level floors and building housing units with people with disabilities in mind. While America had passed the Individuals with Disabilities Education Act or IDEA (originally passed in 1975, and renamed in 1990) by this time, the initial form of this legislation allowed schools to place certain students with disabilities in special programs for no more than 45 days at a time. It was not until its improved form was passed in 2004 that provided the necessary financial and social infrastructure for its successful implementation.

The passage of the CRC, which applies to all individuals under the age of 18, focuses on non-discrimination, the right to life, survival and development, the State’s responsibility to ensure that the child’s best interests are being pursued, including ensuring that the child has adequate parental guidance. Additionally, it focuses on the child’s right to free expression, free thought, freedom to preserve their identity, protection from being abused or neglected, adequate healthcare and education, and includes certain protections the State is required to offer the children, including protection from trafficking, child labor, and torture. Article 23 of this Convention specifically focuses on the rights of children with disabilities, adding that these children have the right to the care, education, and training they need to lead a life of fulfillment and dignity. It also stresses the responsibility of the State to ensure that children with disabilities can live a life of independence and protect them from being socially isolated. Even though the UN passed this Convention in 2004, America is the only nation that has yet to ratify this treaty. This is why certain realities continue to exist, such as what is happening in Illinois.

Finally, we have the CRPD, which entered into force in 2008, only 15 years ago. Influenced by the ADA, the Convention on the Rights of Persons with Disabilities was passed to ensure that people with disabilities were fully protected under the law, including from discrimination, with the ability to function as fully pontificating citizens of their societies, with equal opportunities and the right to accessibility in order for them to lead a life with the dignity and respect afforded to their able-bodied counterparts. This convention had massive support and draws from both a human rights focus and an international development focus. What makes this convention unique is the implementation and monitoring abilities embedded within the treaty itself, and it includes non-traditional actors from communities (usually those with disabilities) with specific roles in charge of monitoring the implementation of this treaty. Unfortunately, the United States, while Obama signed the treaty and passed it to the Senate for their approval in 2009, has yet to fully ratify the CRPD treaty as well.

Some Approaches to Disability Rights

Upon understanding the various nuances of this conversation, we can now explore the three different approaches to defining disability in society. These approaches examine the issues that people with disabilities face and provide models influenced by differing fields of expertise. Many within society view disability as a medical issue and their solutions to the struggles faced by people with disabilities are medically focused. Similarly, others believe that disability is an issue of how society is structured, and their proposals for solving these issues lie within the realms of reshaping society to be more accessible to people with disabilities. Still, another approach built upon the foundations of human rights, focuses on the individual first, and the disability as an extension of their individuality. We will explore these three approaches and their pros and cons.

Approach 1: Medical Model of Disability

An infographic depicting what the medical model of disability stands for. At the center is an individual with arrows pointing to them to place the full responsibility of being disabled on the individual itself.
Source: Yahoo Images

            As mentioned above, some people view disability as a medical issue, and this approach can be categorized as the medical model of disability. This means that they believe that the “problem” of disability belongs to the individual experiencing it and that disability comes from the direct impairment of the person. The focus of this approach is to look for medical “cures” for disability, which can only be provided by medical “experts” based on the specific diagnosis. While it may be true that individuals with disabilities require medical help from time to time, their entire existence does not revolve around this notion of viewing disability as an illness. The focus here is to “fix” the person with disabilities, so they can become “normal” again. This approach also makes use of the “special needs” rhetoric, which can result in the isolation and marginalization of people with disabilities.  Media plays a big part in portraying people with disabilities as weak or ashamed of their disability, which can invoke fear or pity for people with disabilities within the larger society.

Approach 2: Social Model of Disability

A cartoon image to represent the social model of disability. In the image, there are many circular characters attempting to enter a square entrance, and cannot fit in. The gatekeeper informs them to change in order to fit into the system, and they reply back that the system could be changed instead to accommodate them.
Source: Yahoo Images

            Another approach that has been proposed is what is known as the Social Model of Disability. In this approach, the “problem” of disability is seen as a result of the physical and social barriers within society that exclude people with disabilities from fully participating in their society. Disability is seen as a political and social issue, and the goal of this model is to be more inclusive and recognize the prevalence of disability within our societies. This means looking closely at the ableist social institutions and infrastructures present within society and attempting to address these manmade challenges posed by people with disabilities. This model recognizes the social stigma around disabilities and recognizes people with disabilities as differently abled rather than viewing them as incapable of living an independent lifestyle. This approach places individuals with disabilities on a spectrum rather than the two categories of disabled and able-bodied. The goal of this approach is to be socially inclusive of all individuals, regardless of their disabilities.

Approach 3: The Human Rights Model of Disability

An image depicting various individuals with the saying, "Nothing about us, without us, is for us" around them.
Source: Yahoo Images

Finally, there is the Human Rights Model of Disability, which builds upon the foundations laid out by the Social Model of Disability and the Universal Declaration of Human Rights (UDHR). In this approach, the focus is on viewing the individual with a disability as a human first, recognizing that disability is a natural part of humanity that has existed as long as humans have been around. While it shares a lot of similarities with the social model, the human rights approach emphasizes not only the right of every individual to be treated equally before the law but also stresses that a person’s impairment should not be used as an excuse for denying them rights. This is essentially what the CRPD centers around, and the main goal of this approach is to ensure that people with disabilities have equal opportunities and protect their right to fully participate in society, politically, civilly, socially, culturally, and economically.

How Can We Help?

A cartoon image with EQUAL on the top, and many characters lined up with shirts that have individual letters on them that spell out "RIGHTS" below it. Below them is the phrase, "human beings are born free and equal - Universal Declaration of Human Rights 1947" on the bottom of the image.
Source: Yahoo Images

On the Internation Level

While the United Nations has a convention that focuses on protecting children’s rights, it is highly debated whether these treaties are being enforced around the world. Child labor is still common in various places around the world, including right here in Alabama. While it can be argued that the US has not ratified the treaty and that is why the UN cannot do anything about this issue, there are other places that have ratified the treaty that still places children in dangerous working conditions and face no real repercussions from these decisions from the UN. In 2019, many tech companies were sued for their use of child labor in other countries to mine the precious minerals they require to produce their devices. Many textile companies within the fashion industry use child labor in nations that have ratified the children’s rights treaty. While the United Nations is trying its best to protect and promote the rights of vulnerable communities, it has not been able to enforce these treaties and regulations, and as a result, atrocities against those vulnerable communities, (including children), continue to occur. How can we as human beings, ensure that all children are protected from harm, not just those able-bodied, living in wealthier nations? This is something that needs to be addressed, and it requires the cooperation of many different nations willing to put their differences aside and work together to find a solution.

On the Domestic Level

As we explored in the human rights model of disability rights, it is the responsibility of society to provide equal access to all its citizens. This includes its citizens who have disabilities, and not doing so would discriminate against those who have disabilities and violate the Americans with Disabilities Act. This means that both on a national and local level, our infrastructure needs to be updated with an inclusive mindset that makes the roads safer and more accessible to all the citizens using them. As a state, Alabama could not only fix the infrastructure, but also pass bills to ensure that people with disabilities receive the care they need, including employment opportunities, medical assistance, food assistance, and any financial help they may require. Furthermore, on a national level, the police (or another department focused on social work) can be better trained to recognize the various disabilities, both visible and invisible, so people with disabilities are not wrongfully imprisoned for “behavioral” issues. This training would help erode the school-to-prison pipeline that has replaced disciplinary standards in American schools and make way for a brighter future for children with disabilities. Finally, the United States can, at the bare minimum, ratify the Convention on the Rights of the Child, signed into existence in 1990 by member states of the United Nation. As we mentioned earlier, the United States is the only nation in the world that has yet to ratify this treaty.

On the Individual Level

We can all be more mindful of our actions and our ableist mindsets. Next time you walk down the street, pay attention to the roads and sidewalks. Are there any sidewalks for people with disabilities to use safely? Are there curb cuts, and are those curb cuts freely accessible or are they blocked? How accessible are public buildings such as restaurants, storefronts, or even the DMV? Are there enough parking spots allotted to people with disabilities, and are those spots easily accessible, or blocked off by other vehicles? Thinking outside of an ableist mind frame is the first step toward being more inclusive of people with disabilities. It might seem like a powerless and pointless step to take, but the more you start to notice the ableist structures within society, the more you will want to speak up about these issues the next time you have the opportunity. You will also be more mindful of your own ableist actions and how they may have unintended consequences. If you are a parent, you have the ability to question your school’s practices concerning children with disabilities and offer support to the children and their parents. As an individual, you can also contact your representatives to pass legislation that would empower people with disabilities to live independently. As a society, we need to get past the stigmatization of this group and normalize disability being an innate part of being human.

 

 

Disabilities and the American Education System: From the Past to the Present

A cartoon image depicting students of various backgrounds and disabilities grouped together around the phrase, "We are all wonderfully made"
Source: Yahoo Images

In the last blog, we covered the contextual history of the American Education System, primarily, who was allowed education, who was not, and even the differences in the quality of education that children in America received. We also explored the historical treatment of people with disabilities, both in the larger society, as well as in children with disabilities within the school system. Understanding the past is crucial to analyzing why certain events occur as they do in the future. That is what we set out to do in this continuation of the conversation about disabilities and the American education system. In this second part, we will focus on the realities children with disabilities witness within the education system, including the challenges they face, the school-to-prison pipeline that exists, and how this impacts their development (both mentally and physically). We will then explore how the recent pandemic exacerbated these conditions, and what sort of rights the children possess in this post-pandemic world.

Children with Disabilities in the Education System Today

An image depicting a child sitting with his head in his hands, next to a pile of books, with various phrases listing different learning disabilities.
Source: Yahoo Images

The many challenges faced by students with disabilities in the classroom

Children with disabilities today face many challenges within the classroom even without taking the pandemic into account. These challenges vary from physical barriers to socio-emotional ones. One thing that needs to be recognized is that not all disabilities are alike, and with various disabilities come various challenges. I don’t want to appear to be generalizing the struggles that children with disabilities face in the school system, because each individual’s experiences vary, even between different places. Some states within the United States may be very inclusive, while others may place the responsibility of accessibility on the people with disabilities themselves. Regardless of which state you live in, my goal here is to spread awareness of the various challenges that children with one or multiple disabilities face as they maneuver through their primary academic journey.

With that being said, one of the most common barriers that children with disabilities face is on the social level. Throughout history, children with disabilities have been separated from the rest of the able-bodied society, and this is also true within the school system. Many schools, when they began to accept children with disabilities into the school system, would educate them separately (in the basement or another room) from the other children. Even today, many children with learning and speech disabilities require additional help from trained professionals, which requires these children to spend extra time on their academics, and less time socializing with their peers. This naturally distances them from able-bodied children their age and can lead children with disabilities to become victims of many instances of bullying and harassment. A crucial element to consider is that while many children their age are dealing with the various emotions that come from development, children with disabilities have to deal with additional fears and insecurities surrounding their disabilities, as they learn to accept and adapt to life with disabilities. This can be challenging in and of itself, without having to deal with the social pressures from peers.

Additionally, while schools receive federal funding to meet the required measures for the children with disabilities within their institutions, this funding is limited, covering less than a quarter of the expenses needed to fulfill the required services for each student. The Individuals with Disabilities Education Act (IDEA) we covered in the previous blog allows Congress to allocate up to 40% of the average funding per student, but unfortunately, this has never been exercised by Congress, and funding for special education programs continues to be miserly. Schools receive  15% of the funding they are allocated, but they are still required to fulfill all the mandated regulations simply for receiving federal funding. This means that they have to come up with the remaining 85% of the expenditures on their own, in place of the 55% they would be responsible for covering if Congress secured the full 40%. This can place additional strains on these schools that are already struggling for funds.

Furthermore, children with learning disabilities require trained professionals to provide them with additional support throughout their academic journey. Someone who is hearing impaired may require additional resources to combat the auditory issues they face, or someone who is visually impaired may require additional lessons on how to read in Braille. Others with learning disabilities such as dyslexia (which is a disorder in which someone has difficulty reading and processing language), may need additional patience and support to process the information they are learning. Public schools, by law, are required to provide assistance to children with disabilities and those who have been through traumatic experiences. Licensed professionals that focus on educational needs for children with learning disabilities can be hard to find, and this has only worsened due to the pandemic. As many as 44 states experienced this shortage even before the pandemic, and this number continues to grow due to the issues of limited funding discussed earlier. Without the necessary help that students with learning disabilities require, they continue to fall behind their peers academically.

Many of these challenges can be addressed with more funding allotted to the education system as a whole, and professions within the field of special education can be incentivized by the government (by for example, making the training programs free and accessible to those who are interested) to address the shortage of licensed professionals. The education being taught in the schools can be more inclusive of children with disabilities, with opportunities for the children to share their experiences with their peers and help remove the stigma associated with disabilities by normalizing helpful conversations around disabilities. While these challenges can have a great impact on the learning abilities of children with disabilities, there are some challenges that can have drastic impacts on their futures as a whole.

The school-to-prison pipeline

A cartoon image showing the relationship between schools and the legal system, showcasing the school-to-prison pipeline that has become so prominent in the American School System.
Source: Yahoo Images;

Unfortunately, along with an increase in school shootings within the educational system, another phenomenon that has become all too common is the use of law enforcement to discipline children. More and more stories have been reported regarding children with disabilities and children of color being subjected to drastic disciplinary measures by school systems. When a child “acts out” or showcases any behavior not supported by the schools, the educators have resorted to involving the law instead of following disciplinary protocols within the schools (such as contacting parents, placing students in detention, or for more serious issues, using suspensions). Police are called on these students, and educators watch as young children are punished for their misdeeds by being harassed by the police. In many instances, these incidents have turned deadly, as police officers have used full force on young children, to force them into complying, at times jeopardizing the children’s well-being. Children as young as 7 years of age have been placed in handcuffs and threatened jail time, for childish behavior such as spitting or throwing tantrums. This can be especially dangerous when children with disabilities are involved because they are accused of “misbehaving” when they are simply reacting differently to situations than their able-bodied peers. The police, with little to no training on the different ways to approach people with disabilities, only escalate the already tense situations.

According to a CBS News analysis of data from the Education Department in 2017-2018, children with disabilities are four times more likely to be arrested than their able-bodied counterparts. Another research conducted by Cornell University reports that 55% of Black men with disabilities have been detained before they reach the age of 28. Young African American children with disabilities, therefore, are the most at-risk demographic to face legal repercussions for “behavioral” issues common among most children their age. This phenomenon, known as the school-to-prison pipeline, which disproportionately targets students of color, (and children with disabilities), involves the use of the criminal and justice systems as a tool to discipline children. Unfortunately, these disciplinary attempts remain on the permanent records of the targeted children and can have lifelong implications that determine their future.

An example of this school-to-prison pipeline is clear when looking into some of the instances where law enforcement is used to discipline children. Jacksonville, Illinois is home to a particular school that makes use of its law enforcement officers for behavioral issues. Garrison School, a public school where children with disabilities in that region attend, has been in the news recently for the staggering number of arrests made within a single school year. Although the population of this school is an average of 60-70 children, the police, who are located less than 5 miles from the school, have been called over 100 times for “behavioral” issues, such as throwing tantrums and spraying water. An investigation into this school found that in the school year 2017-2018 alone, more than half of the entire student body was arrested. As the only public school for children with disabilities in that region of Illinois, caregivers are limited in choices of schools for their children. In addition to having disabilities, the children at this particular school have also experienced immense trauma and violence in their past. Arresting these children for their “behaviors” continues to place these children in traumatic situations, further impacting their development.

Impacts on children with disabilities’ development

An infographic depicting the prevalence of mental health issues among the youth. In this infographic, it states that 13% of youth face mood disorders or depression, 32% deal with anxiety disorders, 9% with ADHD, and 3% with eating/feeding disorders.
Source: Yahoo Images

Using the criminal and justice systems to punish or “discipline” children with disabilities can have lasting impressions on the children’s futures. For one, especially children such as those from Garrison School, who deal with personal trauma and violence from their past, experiences with law enforcement can deteriorate their mental health even further. Even those without previous trauma can have lasting impressions on their academic success, meaning that children who have been disciplined with the use of law enforcement are even more isolated from their peers and can experience breaks in their educational journeys. Studies have shown that children who have their needs met are more likely to outperform those students who do not have their needs met. Linking back to the school-to-prison pipeline, those students who have been arrested and imprisoned as young adults are more likely to continue down this path of criminality. Additionally, students with disabilities that have been imprisoned have to face the added struggles of maneuvering the prison system with disabilities, and these struggles are increased with multiple disabilities, especially with invisible disabilities, in which case, many people may not even believe the existence of these disabilities. Studies have shown how incarceration can worsen issues of mental illness within the prison population, and when translated to the impact imprisonment has on people with disabilities, these conditions are exponentially worse.

How it impacts children with disabilities’ professional futures

In addition to the harm this causes to the development of children with disabilities, the practice of using law enforcement to discipline school children has far-reaching consequences. For one, the children who are constantly “othered,” bullied, or harassed by both students and teachers can internalize their experiences and react to them, increasing their chances of being disciplined again for behavioral issues. In addition to that, being imprisoned, even for a few days, can be a traumatic experience that can shape your worldview, and as a result, your future. For young, developing children, these experiences can be impressionable, and coupled with the isolation that many children with disabilities experience, this can be a devastating combination, resulting in the deterioration of the children’s physical and mental well-being. Furthermore, many of these zero-tolerance policies that end in the arrests of children happen due to the faculty members pressing charges against the children. These charges, though they can be sealed for juvenile offenses, can lead to more charges in these children’s future into their adulthood. A criminal history into your adulthood can result in slim educational and employment options. Research conducted more broadly on this subject has been reported by the Prison Policy, and it showcases how increasingly difficult it is to find decent employment upon exiting the prison system. The report adds that even when formerly incarcerated people do find employment, they are often paid fewer wages than their co-workers.

Applying this research to children with disabilities who are disciplined through the legal system, can be an even bigger challenge for their futures. People with disabilities experience many barriers to obtaining employment even without imprisonment on their records. Studies have shown how incarcerating children does not deter them from engaging in criminal behavior in the future; it might actually have the opposite impact. Finally, children who are incarcerated experience large gaps in their education, and this can impact their ability to successfully enter the job market. This issue is exponentially worse among children with disabilities because they are more likely to be imprisoned for “behavioral issues”, and expands the academic gap felt by so many children with learning disabilities who are already facing many social and learning barriers.

How did COVID make things worse for children with disabilities?

An image of a child sitting in front of a computer trying to learn virtually during COVID-19.
Source: Yahoo Images

The pandemic was a time of uncertainty, and many of us were scrambling around not knowing what to do. Even as more and more information came out about the virus itself and how to safeguard it, there was a lot of anxiety and misinformation being spread around. Children with disabilities had to navigate not only their personal lives with their unique experiences but also the larger society that was falling apart around them in the face of a virus. Many businesses and schools shut down in the beginning, which meant that children had to adjust to different learning styles, something that may have been easier for some, but widened the academic gap for others. Children with disabilities as a whole had to be mindful of the threat that the virus posed on their lives. This virus was especially deadly to those with pre-existing conditions and for those who were immunocompromised, both of which apply to many children and adults with disabilities. So, constantly having to live with the anxiety of whether or not they might contract the virus would have been stressful enough without the masking and vaccine debates that have politicized this medical crisis. What is worse, COVID-19 vaccines for children were not available for over a year after the pandemic first began, leaving this population vulnerable to infections with no way to protect themselves against them.

Additionally, along with their children, parents, and caregivers of children with disabilities faced new challenges as everyone attempted to adapt to the “new normal”. While the mandated quarantine helped with transportation issues for some, it opened up a whole new set of issues for many. Children with learning disabilities who received additional help from professionals either had to go without it or transition to seeking their help through zoom. For some, accessing help through Zoom and Telehealth was extremely helpful in addressing the medical needs of people, and this had a positive impact on people with disabilities as a whole. However, accessing Zoom and Telehealth was a challenge on its own for many who lived in rural areas or marginalized areas where internet services were very minimal or nonexistent, or simply unaffordable. The pandemic was a time when many people also lost jobs, so children faced additional financial repercussions from the pandemic. These instances further widened the academic gap among children with disabilities.

This blog mainly focused on the struggles that children face within the American school system. Part three of this series will focus on some of the approaches that have been taken historically when addressing disabilities, and some ways in which we can take action, on a personal level, on a local or national level, and even on an international level.