UNITY: A BEAUTIFUL GUMBO

by GABRIEL WRIGHT

a photo of a jacket that reads "we're all in this together"
togetherness. Source: Jonny Hughes, Creative Commons

** I read and utilized Dr. Martin Luther King, Jr. book, Why We Can’t Wait, as the basis of this blog. The page numbers (xx) refer to the specific edition in the hyperlink.

One of my grandfathers was an old Cajun from south Louisiana who cooked gumbo when I was a kid.  His gumbo was always different because it was always full of whatever meat he had available at the time. Once, it consisted of duck with sausage and crab, while another time, it contained shrimp, chicken, and sausage. No matter what the ingredients, the gumbo was always good.

Growing up my parents were pastors and missionaries. We moved…a lot! I learned at a young age that to have friends I would have to accept people with all their differences. I attended eight different schools, in two states and three countries from kindergarten through graduation.  I was the outsider often.  Rejection became my norm. In 7th grade, we lived in Auburn, Alabama. I was not cool enough to sit with the white kids at the lunch table so I became the palest face in at the end of the other table. In high school, my friends and I called ourselves, “The Losers”,  a ragtag bunch of racially diverse rejected kids that included guys from the Philippines and Nepal.

Accepting differences is an essential step to developing unity. Every person, regardless of skin color or background, can wage war against injustice without having a national stage. The fight to right injustice is overwhelming; the enormity of the task can produce fear that paralyzes, causing many to do nothing. Therefore, I prefer to think that there are small battles to be won every day which come through the removal of fear and the creation of change. Unity exists on the other side of the willingness to change. Here are some strategies and keys to remember that can help us bring about change to achieve unity.

First, discrimination, including racism has a spiritual element. I used to think that racism was a preference or color issue. Now I realize racism is a heart condition. If I were to offer any solution to our current state of unrest and violence, it would begin with prayer. I realize it does not sound like a solution because there is no visible action; however, not everything is visible. The Apostle Paul, in his letter to the Ephesians, says that we do not fight against flesh and blood enemies, but against spiritual unseen forces. Dr. King understood this principle well.

The nonviolent direct action of the Birmingham Civil Rights movement was brilliant. King understood that combating people like Bull Connor with physical violence would result in colossal failure. To be a part of the movement, each participant had to commit–not only to the cause of freedom and the values of non-violent direct action–but to prayer (68). People say, “we need to pray for our nation” to no longer remain divided by racism. Often, prayer for the nation looks like an outward one, directed at the heart of someone else, rather than an inward one, directed at your own heart. King David, prayed in Psalm 139, “Search me…know me…test me, and see if there is anything in me that offends you…”  The first step in overcoming division in the nation is identifying division in the heart. Ask God to reveal if there is division in your heart. The Bible calls for repentance. It sounds like a fancy church term but it simply means to turn away from what is wrong and move toward what is right.

Second, stereotypes distort and divide. Stereotypes are widely held but fixed and oversimplified ideas or perceptions of people. Dr. King asserted that the March on Washington dealt a heavy blow to the perpetuated stereotype about blacks. “The stereotype of the Negro suffered a heavy blow. This was evident in some of the comment, which reflected surprise at the dignity, the organization and even the wearing apparel and friendly spirit of the participants.  If the press and expected something akin to a minstrel show, or a brawl, or a comic display of odd clothes and bad manners, they were disappointed” (153). The decision to shatter stereotypes is not about being or becoming a false version of yourself; it is more a decision to recognize that we are not bound to act like the stereotypes placed upon us.  As a pastor, one of the stereotypes I battle against is that all I want is your money. My plan was to be generous toward our people and to never ask for money from our visitors so when I planted my church, I decided that I would not give anyone a reason to believe that stereotype. Stereotyping is the byproduct of a spirit of division. Abraham Lincoln famously quoted Jesus Christ in saying, “A house divided against itself cannot stand”. The best way to bring down a nation, organization, or family is through division.

a picture of Dr. King at the March on Washington 1963
Martin Luther King Jr National Historic Site, Creative Commons.

I can see that spirit operating against Dr. King and the movement in 1963. The bombings began after the movement achieved great victories and won many converts to the side of justice. “Whoever planted the bombs had wanted the Negroes to riot. They wanted the pact upset” (128). The stereotype of blacks had been unsubstantiated rhetoric, used to undervalue and suppress. It was with this in mind–the spirit of division–that pushed men to plant bombs, knowing it would give rise to violence and division, not only between black and white, but within the African American community itself. Thankfully, Dr. King and Rev. Shuttlesworth had taught the African American community about the spiritual as well as the physical. “I shall never forget the phone call my brother placed to me in Atlanta that violent Saturday night.  His home had just been destroyed.  Several people had been injured at the motel.  I listened as he described the erupting tumult and catastrophe in the streets of the city. Then, in the background as he talked, I heard a swelling burst of beautiful song.  Feet planted in the rubble of debris, threatened by criminal violence and hatred, followers of the movement were singing ‘We Shall Overcome’” (128). The movement realized that they were not fighting flesh and blood, which would be a losing battle; but in the spiritual, with prayer and song.

Never let a stereotype define you. Look for opportunities to deal stereotypes a “heavy blow”.

Third, understand that meekness means strength under control. Many people were against Dr. King’s stance on non-violent direct action. For them, action without retaliation was weakness, not strength, specifically when Connor turned water hoses on protesters. Jesus once said, “The meek will inherit the earth”. When we are meek, it doesn’t mean that we are lowering ourselves, but we are controlling ourselves and taking the ammunition away from our enemies.

Next, we cannot expect to overcome injustice and racism without setting up the next generation. I’ll never forget my friend Cedric. He lived in a very violent, crime ridden government housing project. I lost track of him (this was before Facebook and cell phones) because he moved away. His mother decided that she wanted better for her son; therefore, she worked hard, saved money and looked to provide her son a better situation. Dr. W. E. B. Du Bois developed an ideology called the “talented tenth”, in which some African Americans to rise, pulling the mass up with them. King disagreed with this philosophy in the 1960’s because, at the time, African Americans had no real way of creating a better life as individuals, let alone as a group (28). Today that is not necessarily the case.

a picture of a puzzle piece fitting into another one
Putting The Puzzle Together. Source: www.SeniorLiving.Org, Creative Commons.

I understand that things can always be better, but in today’s world, there is a path for success. There have been many African Americans that have navigated the ladders of success in politics, sports, entertainment, medicine and business. You may say, “it is easy for a white person to rise up”, and while that is true, it does not mean that a person of color cannot.  We will only accomplish what we think we can accomplish. I love to hear about millionaire athletes, who, through hard work and good choices make it out of bad situations, turned their lives around, and give back to their community.  There is a need for more people to show the way; to educate and mentor the next generation in the ways of life, including finances and relationships. Over my years of ministry, I have found that people need more than a handout. The old saying, “give a man a fish and you’ll feed him for a day, but teach a man to fish and you’ll feed him for a lifetime” is true.  As the “talented tenth” begin to use their influence to not just help, I feel we can and will see a shift in the balance of justice and equity. When people understand that their platform and influence is not for their glory, but to serve others, then we will be on the path toward victory.

Finally, as a friend and I were talking one day, he told me of a church that wants to become more multiracial but just can’t seem to “crack the code”. Curious, I asked him, “Why do African Americans attend our church?” We don’t sing gospel. I don’t preach like T.D. Jakes or Tony Evans, and we don’t do anything to appeal to any one race over another. I believe his responses are simple and effective ways to begin the healing process between the races and start moving toward justice in our nation:

  1. You don’t try to appease.  People know when you are being fake.  When we try to be something we are not, we usually come across as offensive.
  2. You have African American friends.  We need to make friends with people of different races, not to put a notch on our belt, but to really expand our circle of relationships.
  3. You love people.  When you set your heart to love and accept people, it become contagious.
  4. You promote African American people.  At our church, we don’t have token African American leaders.  We have leaders, and some of them happen to be African American.

I pastor a wonderful little church in Birmingham, Alabama. Our church is a beautiful “gumbo” of colors, classes, and countries. In this current climate of racial tension, it is my heart to have place where people can catch a glimpse of heaven…a glimpse of Dr. King’s dream for America; a place where black and white don’t just attend together, but do life together. We aren’t perfect but we fight for unity, peace and most importantly, love. I believe our nation should be like that gumbo…different flavors and backgrounds coming together to create something wonderful.

 

Gabriel Wright, along with his wife Perry, started and pastor Gateway Family Church in Birmingham, AL. They have three children.

Changing Climates, Divided Landscapes and Why We Can’t Wait

by PAULETTE PATTERSON DILWORTH, Ph.D.

a photo of a line from the Letter from a Birmingham Jail which reads "this wait has almost always meant never"
“Letter from a Birmingham Jail” from the National Civil Rights museum in Memphis, TN. Source: J.G.Park, Creative Commons

As I reflect on my experiences coming of age in the segregated south, I am reminded of my family and others in my community who dared to ‘live out loud’ during an era when Jim Crow was a defining feature that framed social and political interactions between Black and White people. For me, the time span is not a distant memory that happened long ago. It is a historical period that inspired the need for social change. A “watershed moment” is a point in time that provides significant space for clarity, and is often related to historical change. Since August 11th, I have engaged with colleagues and friends in thoughtful conversations about our own experiences after witnessing Charlottesville and placing the events in historical perspective. I was born in Selma, Alabama and raised in the very close knit “Summerfield” community. I came of age in Selma at the height of the 1960s Civil Rights Movement. I was most privileged to have a front row seat to many of the events, as they unfolded and eventually culminated in “Bloody Sunday” and the historic Selma to Montgomery March. Like many of the children, teenagers, and young adults who lived in my community at that time, I attended segregated public schools. As students, we were eager to get involved in the mass meetings and marches because we could sense the winds of change blowing in Selma. The opportunity to exercise the right to vote was a lifelong dream held by many adults in my family and the community. During the 1960s, the Civil Rights Movement was the most exciting expression of political activism in which my generation could engage. As historian Joyce Ladner said when she coined the term, the ‘Emmett Till generation,’ “there was no more exciting time to have been born than at the time, and the place, and to the parents that movement, a young movement of people were born to.” Today, the nonviolent activism and protest of the 1960s are a stark contrast to the protests that occurred in Charlottesville that is rooted in a movement predicated on hatred, racism, and white supremacy. Today, Charlottesville awakens a new clarion call that insists we revisit the propositions offered by Dr. King in 1964 when he responded to pressing social justice concerns in Why We Can’t Wait.

On August 11, 2017, white supremacists showed up in Charlottesville, Virginia for a “Unite the Right” call to action or a coming-out party for the white nationalist movement. The march was organized to protest the removal of a statue of Confederate general Robert E. Lee from a park in Charlottesville. At some point, the gathering of protestors and counter-protestors turned violent, and in the aftermath, three people died. Following one of the most contested elections in recent memory, it is safe to say that many of us are quite alarmed by the abundance of racial bias and hate on display in Charlottesville and elsewhere in the United States seen on our college campuses and in our communities across the country. Many of the hard-won gains for social justice, equity, and inclusion are under threat. Observers of the events that unfolded in Charlottesville continue to express shock and dismay to have witnessed such public display of hate and violence in a 21st century United States. The changing social climates and divided political landscapes reveal the character of a nation that continues to grapple with profound division and conflicts between groups that exist in our history and our present. Scholars who study social change and social movements agree that such events usually evolve from strained “relationships between those who have power and those who do not.” To some extent, these movements arise when groups in society feel discontented about some element or perceived injustice in their lives. What happened in Charlottesville is a 21st-century reminder that old wounds can reopen to allow the pervasive nature of racism and injustice to ooze to the surface.

a photo from the Unite the Right rally in Charlottesville
Charlottesville “Unite the Right” Rally. Source: Anthony Crider, Creative Commons.

In the summer of 1963, after the conclusion of the Birmingham campaign for civil rights and the March on Washington for jobs and freedom, Dr. Martin Luther King, Jr. further developed the ideas introduced in his iconic “Letter from a Birmingham Jail” in a book entitled Why We Can’t Wait. Dr. King tells the story of African American activism in the spring and summer of 1963. During this time, Birmingham, Alabama, was perhaps the most racially segregated city in the United States, but the campaign launched by Dr. King, Reverend Fred Shuttlesworth, and others demonstrated to the world the power of nonviolent direct action. The time span is not a distant memory that happened long ago. This year marks the 54th anniversary of the 1963 March on Washington.

It is a curious parallel that in 1964, Dr. King published Why We Can’t Wait as a call to action and an excellent political commentary on the fight for racial justice and equality in Birmingham and throughout the American South. Why We Can’t Wait begins with Dr. King’s “Letter from a Birmingham Jail” that he wrote while being held there. Dr. King wrote the letter in response to a public statement of caution offered by eight white religious leaders in the Birmingham community. Several quotes from Dr. King’s letter are now popular iconic sound bites that are used to frame social justice messages of hope and aspiration. For example, “Injustice anywhere is a threat to justice everywhere. We are caught in an inescapable network of mutuality, tied in a single garment of destiny” is a reminder of the relevance of Why We Can’t Wait. Although African Americans continue to bear the burdens of racism, King makes it clear that all Americans regardless of their race are affected and suffer when injustice is allowed to prevail.

The central proposition of the book is concerned with nonviolent resistance as a protest strategy that was used successfully to push the civil rights movement into the hearts and spirits of white allies. Dr. King was unapologetic in his demands for racial and economic justice, and he understood well the political implications of his role in the 1963 Birmingham Campaign. He explains what he calls the “Negro Revolution” and how it spawned quietly before bursting onto the national scene in 1963, and was “destined to grow in strength and numbers because three hundred years of mistreatment cannot be expected to find a voice in a whisper.” Why We Can’t Wait is useful for activists, educators, discussions, teachers, and researchers that grapple with the issues of social justice and injustice. It is also a useful text that encourages the reader to think intensely about what it means to pursue nonviolence in words and action. Although the book was published in 1964, it is quite easy to identify relevant narratives that align with today’s social justice movements. Further, Why We Can’t Wait introduces the reader to ideas that offer a compelling rationale for thinking through how to effect utilitarian social change. For example, in the section titled “Why 1963?” Dr. King invites the reader to explore the explanation he offered as to why 1963 was the year the southern freedom struggle gained momentum and eventually emerged on the national stage. In his analysis, Dr. King offered several plausible examples as to why 1963 was a “tipping point” that elevated the movement. Primarily, he outlined seven areas of influence:

  • the southern resistance to school integration after Brown vs. Board of Education,
    • a crisis of confidence in government after the failure of President Kennedy’s administration to deliver on the civil rights bill,
    • the southern apathy and lack of support for African American voting rights,
    • the growing anti-colonization movement in Africa and the psychological implications on racially oppressed African Americans,
    • the 100th anniversary of the Emancipation Proclamation that clarified for African Americans just how far they still had to travel,
    • the ongoing and persistent poverty in the African American community,
    • and the rise of nonviolent direct action both in the United States and abroad as a viable means for social change.
a picture of the Selma March 2015
Edmund Pettus Bridge, 2015. Photo by Paulette Patterson Dilworth, Ph.D.

In later sections of Why We Can’t Wait, Dr. King explains how direct action creates tension and exposes crisis in a community, thus, forcing the community to confront and negotiate the issue. As a political protest strategy, nonviolent direct action aims to create such a crisis and foster such a tension that community has to engage and respond. As noted in his “Letter from A Birmingham Jail,” Dr. King and his supporters had received much criticism for their efforts, with some critics claiming that the civil rights activists expected too much, too soon. In contrast, more militant activists argued that they asked for too little. At the same time, the civil rights legislation stalled in Congress. Although Why We Can’t Wait, should be viewed in historical context, Dr. King’s use of the past and ethical arguments to justify the Civil Rights Movement is timeless. Moreover, readers will gain richer insights into Dr. King’s development of the concept of nonviolent resistance and its necessity in combatting social injustice.

In the conclusion of Why We Can’t Wait, Dr. King ends the text by explaining that African Americans cannot afford to continue the slow movement toward freedom and justice. He states that they must demand and insist on it. Further, Dr. King advances the idea that poor whites and organized labor should consider joining the civil rights movement. He also calls for unity among all oppressed people in America, calling for a stronger relationship with Native Americans and clarifying that he believes the summer of 1963 made most white Americans receptive to his ideas. Dr. King expressed hope that if the civil rights movement was successful, it had the potential to expand non-violence worldwide and end the nuclear arms race. In the decades following Dr. King’s untimely death, his words have been used by future leaders across the globe, including President Barack Obama, to make the case that we can’t wait to take action. Before his assassination in 1968, Dr. King authored six books focusing on his nonviolent philosophy and call to political action for social justice. Why We Can’t Wait remains one of the most relevant political commentaries of the 21st century to elevate African-American voices in U.S. history.

As previously mentioned, this year, August 28th marks the 54th anniversary of the March on Washington.  The March ended the Birmingham summer of 1963 that was filled with protests and organizations that lead to the Civil Rights Act of 1964. Now more than ever, we need to pause and gather as a community to connect, share histories and strategies, and prepare for the difficult social, political and economic challenges that lay ahead. The “fierce urgency of now” is upon us like a rising tide and Why We Can’t Wait is as relevant today as it was in 1964. After a careful reading  of Dr. King’s work, a new and more thoughtful generation of human rights and social justice advocates will likely come away with a new and more critical perspective on a period in U.S. history that has often been reduced to iconic trivia. The summer of 1963 is not a sad portion of our history; it is very hopeful. However, the fact that Charlottesville happened in the summer of 2017 is a sad commentary on where we are at this particular time in U.S. history. Yes, it would be an extraordinary thing if all people of goodwill realized they do not have to wait to be invited to get involved and work for positive social change. The changing political climates and divided social landscapes insist that we work together to address the crisis of our democratic enterprise. That perspective has been helpful to me. I find a lot of comfort in that, as well as a lot of challenges and opportunities to make a difference.

 

Paulette Patterson Dilworth, Ph.D. is Vice President for Diversity, Equity and Inclusion and Chief Diversity Officer at the University of Alabama at Birmingham. Besides a strong affinity for art and music, Dr. Dilworth has accumulated more than 30 years of experience in higher education, diversity education consulting and training, recruitment, retention, research, teaching and outreach. Dr. Dilworth has devoted her professional career and much of her personal life to social justice and advocacy exploring issues of access, civic engagement, equity and community building.

The Spiritual Power of Nonviolence: A Modern Meditation on King’s Conviction

Choices. Source: Derek Bruff, Creative Commons

*** In honor of Dr. Martin Luther King, Jr.’s birthday, we will repost the blogs from August in which writers looked at his legacy and words to see if the words he spoke and life he lived find application in society today. 

Spiritual power is real.  When confronted with the imminent threat of violence during his (and many others’) campaign for equal civil rights for black Americans, Dr. Martin Luther King, Jr. unequivocally stated, “We shall match your capacity to inflict suffering by our capacity to endure suffering.  We will meet your physical force with soul-force.  Do to us what you will, and we will still love you.” (Ansbro, 1982).  How does an indomitable ethic of nonviolence like King’s develop?  How did his tactics inspire his followers in the pursuit of equal rights?  In addition, how does nonviolence fit in a modern strategy for social change?  This post explores these questions.

The Existentialism of King: An Agent’s Choice to Fight for Freedom

King’s personal existential philosophy, interpretation of agape, and radical devotion to the teachings of Christ all paint a clear picture of a personal belief system impelled to fight for freedom and equality.  Underlying these three central tenets to King’s moral code, the teachings of existentialist thought is particularly fascinating and underappreciated to laypersons with a vested interest in the teachings of King.  While research for King’s devotion to the Christian church is extensive, his critique and praise of existentialist philosophers as far back as his doctoral dissertation at Boston University’s School of Theology has not received nearly as much attention.  When considering his theory of nonviolence, the moral and philosophical building blocks upon which he constructed his tactics and theory of civil resistance find their intellectual seeds in the writings of Nietzsche, Kierkegaard, Heidegger, and other existential philosophers.  This intellectual genealogy is especially apparent in his definition of freedom, his emphasis on an agent’s choice to actively pursue freedom, and the inter- and intrapersonal benefits to be gained from the pursuit of freedom in an agent’s lifetime.  Instead of ‘person’, ‘individual’, etc., the term ‘agent’ is used in this section to denote the verbiage used in existential philosophy, though King often used the term ‘man’, ‘mankind’, and the like.  ‘Agent’ specifically relates to the role of freewill / agency, a cornerstone of existentialist philosophy.

King understood the intrinsic link between individualism (the concept of self-differentiation from a social group, order, and / or hierarchy) and the pursuit of freedom.  This a fundamental part of King’s theory of nonviolence: the mere act of speaking out and / or behaviorally resisting structures of power meant to suppress an agent’s rights and liberties is a declaration of an agent’s individuality against a collective’s power.  Although the existentialists proposed oftentimes contradictory viewpoints on the role of religion and God in this endeavor (e.g. Nietzsche and his rejection of any form of higher power, Kierkegaard’s emphasis on an agent’s commitment to God, etc.), King obviously drew philosophical inspiration from his theological studies and unwavering commitment to the Christian doctrine of faith.  Throughout the Christian Bible, true followers of Christ are described as making a deeply personal and individual choice to commit their lives (both spiritual and physical lives- this dualism is characteristic of Christian theology as well) to the teachings of Christ.  King believed (as the existentialists before him) an agent must individually choose to pursue freedom without interference from an external influence.  In this sense, freedom is not ‘given’; it is earned.  This bold separation from and then condemnation of unfair power structures (such as institutional racism) is a testament to the power of an agent’s choice- rebuking social influence (this rebuke Nietzsche proclaims is the ‘highest form of individualism’).

King reiterated the stakes of the pursuit, specifically once an agent makes the choice to pursue freedom actively, famously stating:

“I can’t promise you that it won’t get you beaten.  I can’t promise you that it won’t get your home bombed. I can’t promise you won’t get scarred up a bit- but we must stand up for what is right. If you haven’t discovered something that is worth dying for, you haven’t found anything worth living for.”

This awareness of and commitment to the ultimate price for the pursuit of freedom, death, is reminiscent of Heidegger’s proposed relationship between a moral agent and death in The Courage To Be.  According to Heidegger, death arising from conflict between an agent and the world around him or her is an achievement of authentic existence.  Authenticity is another cornerstone of existential philosophy.  King, alongside Heidegger, believed death arising from the pursuit of freedom is one of the greatest forms of meaning an agent can achieve.  This orientation towards death frees an agent to pursue the cause of freedom from repression without fear of losing his or her life in the process.  The unshackling of fear (the fear of death and suffering) arising from this dedication to the cause of nonviolent resistance is, in many ways, a direct metaphor for the very shackles eschewed by King’s followers during the civil rights movement.

Non-Violence. Source: ϟ†Σ , Creative Commons.

The Futility of Violence for the World & for the Self

The quote “[h]e who fights with monsters should look to it that he himself does not become a monster.  And if you gaze long into an abyss, the abyss also gazes into you”, (in)famously uttered by Nietzsche, conveniently links King’s existential philosophy with his ardent rejection of violent resistance throughout the struggle for equal rights.  To ensure sustainable, ethical, and transformative social change, he proclaimed, his followers and the agents of other prosocial movements must understand the utter impracticality of violent resistance.  The real meat of his theory and practice of nonviolent protest, again built on his existential philosophy and Christian beliefs, lies in his interpretation of the amorality of violence and is dressed in the observation of violence as, albeit shocking and ionizing, a tactically inferior method to institutionalize long-lasting, meaningful equality in any given culture.

Before exploring King’s refutations of violent protest, an operational definition of his nonviolent civil resistance is necessary.  When King constructed his theory of nonviolent civil resistance, he first drew inspiration from the Greek form of love, agape.  This is a general goodwill towards all men (similar to Kant’s categorical imperative), and in the words of King himself: “…affirms the other unconditionally.  It is agape that suffers and forgives.  It seeks the personal fulfillment of the other.” (Ansbro, 1982).  Using this love-force as a fundamental building block, King espoused civil resistance and protest must seek to benefit society as a whole, not merely one faction or group.  He believed racism perverted the soul of a racist person just as it led to violence against a victim; in this way, the eradication of racism (and racist policies) would benefit society as a whole, not just the subjugated race.  Nonviolent protest grew from a form of love (agape), and required the user to respect the fundamental personhood of their ‘enemies’ (in the case of civil rights, the enemy is a racist people).  This absolute respect of personhood forbade the protester from willfully engaging in violent behavior.  Violence committed against a counter-protester is violence committed to all of humanity.

Taking his cue from Gandhi’s “Satyagraha” concept, King believed a revolutionary movement, such as the pursuit of ethnic / racial equality in the United States and beyond, could not base itself on the permission of its fighters to act violently.  Concerning the larger world outside his resistance, King writes violence has no place in the movement for four reasons:

  1. Violent resistance would inspire an annihilating response from the “well-armed white majority”;
  2. Violent riots have historically not warranted an increase in funding for anti-poverty efforts (which he claimed is central to the eradication of racial injustice);
  3. Like Nietzsche’s foreboding warning, protesters become the very monster they aim to undermine and destroy should they commit acts of physical violence against structural violence;
  4. Violence cannot appeal to the conscious of the majority holding power over the repressed minority.

The use of violence is inherently contradictory to the message of equal rights, as messages of equality presume a social / legal system capable of handling internal conflict without need for force or domination.  From a macro perspective, the use of violent force in the civil rights movement lead by King (and a clear differentiation from others’ movements, such as Malcolm X and Garvey) is a self-defeating paradox that would threaten to destroy the fight for equality both from within and without.  Any attempt to solicit sympathy (an emotional response) or deconstruct the unjust power structures repressing black Americans (a practical or behavior-based response) would immediately disintegrate upon the awareness of the use of violence by Kingian civil rights activists.  Again, violence is a self-defeating gambit.

On the individual level, King warned of the moral cost of violent behavior.  Violence, which King believed was an aberration of God’s intended natural design, would easily desensitize the user to other acts of violence (this is the ‘best case’ scenario) or utterly corrupt the user and impel future acts of violence (this is the ‘worst case’ scenario).  The destructive power of violence assaults the very spiritual self of the user, driving him or her further from the Creator (the Christian God), and twists his or her capacities of moral judgement.  To King, violence was not only physical but also psychological.

twitter. Source: Hamza Butt, Creative Commons

A Modern Struggle for Social Equality

Taking the lessons from King’s theory,–notably the moral and tactical arguments in favor of nonviolent social change–how can peacemakers in 2017 and beyond utilize nonviolence for prosocial ends? The answer may lie in an invention of modernity, namely the evolution of information and communication technologies (ICTs).  Prior to the universal dissemination and usage of ICTs, the theaters for nonviolent protests were limited to select spaces in the public sphere.  The public sphere, defined as a space where persons can freely engage in the share of information and critique of social issues, has expanded far beyond its scope in the 1960s.  Nonviolent protests are no longer limited to physical locales such as restaurant counters, bus stops, or streets; now, there is access to online forums.  The transfer of information through technology has empowered proponents of nonviolent prosocial movements to communicate through social platforms with audiences from thousands, to millions, and even billions.  Today, the directionality and power of a message anchored in nonviolent resistance and protest receives magnification whereas thorny issues continue to plague the relationship between ICTs, social movements, and the ICT users themselves.

Information overload likely threatens the point of impact of a particular movement.  The inundation of internet and its users with blips and soundbites, e-signing petitions, event invitations, podcasts, and the like, the original power of prosocial movements may dilute beyond the original critical mass, that is, the potency of a message to inspire behavioral change in the receiver of the message.  There is no doubt King’s nonviolent movement hit the critical mass for change; King’s role in the normalization of equal rights for black Americans is without real dispute.  However, a new threat arises and threatens to subvert the power of prosocial change.  The threat today is apathy. This apathy arises from too many texts, DM’s, and tweets for a reader to devote moral and cognitive energy towards every message he or she receives.  Extreme diffusion of a person’s identity, characteristic of a society far too ‘plugged in’ than it knows how to handle, is an insidious problem.  A user may feel morally vindicated after retweeting a ‘social justice’ message, share a Facebook post, or caption an Instagram photo, and this vindication is misplaced.  What behavioral change occurs after making a post? Do tweets inspire policy change at the highest level of government? Can a Facebook status provide justice and catharsis in the same capacity King’s Freedom March did?  Perhaps with enough users speaking in solidarity, utilizing true spiritual power for the betterment of their fellow man and woman. Without a physical commitment to mitigate injustice, such as the sit-ins, marches, and boycotts reminiscent of King’s movement, social justice messages may just be that: messages floating in the ether.

 

References: Ansbro, J. J. (1982).  Martin Luther King, Jr.: Nonviolent Strategies and Tactics for Social Change.  Lanham, MD: Madison

We, too, are America

a picture of a microscope
microscope. Source: milosz1, Creative Commons.

We see you. More specifically, I see you. I see you and I understand your fear. Your fear, though, is not of our ascent and overthrow of your supremacy. Your fear is that we–those for whom you believe yourself superior in gender, race, ability, intelligence and religion, but equal to under the law—will treat you as you have treated us. This is your actual fear.

For so long, you have hidden behind your power to give and take at will and random, without accountability. You believed might and standing would continually protect you as you abused, assaulted, and harassed us behind closed doors, in elevators, at parties, or in cars. You assumed your strength would guard against numbers because silence remained your closest companion until it revealed you. Now, silence is your betrayer and light is shining into the darkness. With light comes freedom.

However, not for you.

Finally, thanks to the unfaithfulness of silence, the light that comes with freedom will change you, as the nullifications of uneasy interactions, creepy glances, and videotaped confessions that “boys being boys” and “locker room talk” conclude what we have known all along: you are an insecure predator.

You always have been.

For centuries, you employed power to mask your insecurity while building empires and corporations upon the backs of those “under your feet and purview”. You made rules and assured yourself they did not apply to you. The rules are changing, and you are afraid. You shudder at the possibility of the enforcement of an unjust law you created, applying to you. You are fearful that you will rot in jail for a crime you may or may not have committed, based upon the verdict of 12 who are not truly your peers because they do not look like, live like, or know what it like to be someone like you. You will know what it is like to tell your side of the story and find yourself defending your participation in and motives about the situation that caused you to end up here. Identified as you truly as a perpetuator of trepidation .

You always have been.

Your taxonomy and modus operandi, whether on the forced labor field of terror, in a Las Vegas hotel room or Charleston church, or behind a “news” desk or podium, remains hiding in plain sight because the condition of many is blind submission. The conditioning served us well too, for a while. However, now we are woke. Eyes wide open and aware of the insidiousness of your nature. This scares you, so you label us a threat because we discarded the previously employed labels you doled out. Threat, in your mind, encompasses all manner of challenges you have not experienced during your time in authority. We are a threat to your domination, to your supremacy and privilege. This is what frightens you. The poisonous fruit you provided opened our eyes to the facts about who you are and what we have known all along: you are an idol worshipper.

You have believed the lies told to you and by you for so long, that in many ways, the facts cannot penetrate the walls around your heart and mind. You contrive revisionist history as a method to mask the brutal reality of your ancestors, unwilling to yield to handwritten letters, photographic and videotaped evidence that counter your claims, and absurdly ask us to disbelieve what we see what our eyes, hear with our ears, and experience over time. The words you employ are not for freedom of expression but an expression of your hate, leaving us to wonder if you know how to express yourself in a manner to prove your point without resorting to vileness. You are not out to institute unification, rather everything about you proceeds from an inner core of division. You are in an identity crisis.

You always have been.

Conflicted on one hand about the creation of humanity as made in the image of an unseen God, while on the other, using some as cattle and unpaid laborers, burdened by cherry-picked scriptures applied to build a theology of exclusion. You claim to seek the facts through the reading of words written in years past but systematically avoid anything that may shatter the illusion of grandeur created in the ivory towers which redlining amassed. You proclaim belief in gender equality, except when it comes to leadership, reproduction, sexual experience, and wages. You defend colonization and imperialism due to a misapplied belief that those demonized and dehumanized are ignorant and incapable of civilization; however, pyramids, irrigation systems, and social order existed before the feet of your ancestors stepped on this, and that land. You balk at peaceful solutions and challenges to your authority by responding with insults and name-calling as though life and death are games played in a schoolyard. Even when you are wrong, you are uncompromised in your steadfastness to show your superiority, while marketing yourself as a humble follower of God. You want to be a mirror without looking in one.

I see you.

We see you.

We know the facts.

The fact is, change has arrived. For we, too, are America.

 

Additional readings:

Langston Hughes

The Color of Law

America’s Original Sin

Nations and Nationalism

Jessica Valenti

How We’ve Failed Puerto Rico

In the aftermath of a horrifying hurricane season, Puerto Rico remains in a state of devastation. The contrast between the situation in Puerto Rico and that of post-Irma Florida or post-Harvey Texas is shocking. If those affected in Puerto Rico are American citizens, why have they been treated as second-class outsiders? Many may treat them as such because public knowledge on the citizenship of Puerto Ricans is severely lacking. A study conducted by USA Today and Suffolk University reported that less than half of respondents believed that Puerto Ricans are American citizens by birth. Though people born in Puerto Rico are just as American as those in the states, U.S. has continually deprived Puerto Rico and its citizens of economic and political livelihood. The depth of the current devastation is just one symptom of a long history of abusing Puerto Rican human rights and economic wellbeing.  In this blog, we will investigate how these abuses came to be, why they still occur, and how we can change them.

The American flag, Puerto Rican flag, and Spanish flag are shown flying in front of a blue sky.
Spanish flag, PR flag, USA flag. Source: Oscar Rohena. Creative Commons.

“Is Puerto Rico Part Of Us?”

The title of this section is the first Google auto-completed search that pops up after typing, “is Puerto Rico?” When one considers the level of pride and patriotism that typically comes with being an American citizen, it seems shocking that so many are unaware of what comprises American citizenship. The answer to the question is yes, but it’s a bit more complicated than that. Puerto Rico is not a state, it is a Commonwealth of the United States. Commonwealth status means that the island has local autonomy, though the ultimate source of governance is U.S. Congress. Puerto Rico has its own set of locally elected officials, including a bicameral legislature and a governor (the highest office available in Puerto Rico). The island also has its own constitution. Puerto Rico was not always American territory; the Spanish colonized the island for nearly four hundred years. The United States acquired Puerto Rico from Spain in 1898 after the Spanish-American War. The territory was acquired with the intention of using Puerto Rico as a market for excess goods and as a naval base; to this end, military rule was instituted once the U.S. gained control but shortly abandoned in 1900.  In 1917, Puerto Rican rights began to expand as federal law gave U.S. citizenship to anyone born in Puerto Rico. Per the Jones Act of 1917, Puerto Ricans serve in the military, are free to travel the United States, and use U.S. postal service. However, they are not allowed to vote in U.S. elections. The U.S. Congress has the power to veto or amend legislation passed by the local government, even though Puerto Ricans have no input in congressional elections. This disenfranchisement is both political and economic; nearly half of all residents of Puerto Rico live in poverty. The unemployment rate is nearly double the United States’. In addition to the level of economic crisis for individuals, Puerto Rico has accumulated seventy billion dollars of debt. To pay for this, the local government has chosen to close schools, cut health care and transportation budgets, and increase sales taxes. These policy decisions make it even more difficult for Puerto Ricans to obtain proper education and healthcare — both of which are human rights. Spanish colonization is partially responsible for allowing islanders to suffer from mass poverty while continually using the island to extract goods for the benefit of Spain. However, America did not act in its full capacity to bring prosperity to Puerto Rico, and has continued to exploit the island and its people.

 

Puerto Rican protesters hold a sign protesting government corruption.
El Pueblo Reclama. Source: Oscar Rohena. Creative Commons.

How is America Responsible?

Decades of political and economic marginalization has taken its toll. Over the years, the United States has treated Puerto Rico as “little more than a military base and an economic enclave.” Over 70% of net domestic income generated in Puerto Rico ends up leaving the island due to the economic structure instituted by the U.S. to extract surplus (Committee for Human Rights in Puerto Rico). This makes it impossible for families to generate and accumulate wealth. Puerto Rico as a whole is forced to spend huge amounts of money on incredibly high transportation costs due to maritime law. The law states that all commercial transport must be executed using United States transport—the most expensive transport system in the world. These costs ensure that the cost of Puerto Rican exported goods are substantially higher than they would otherwise be, making their products much less competitive in the international market. Additionally, the United States government is responsible for health crises through years of bombing and/or military testing. Viques, one of the islands within the Puerto Rican territory, reports residents having “increased rates of cancers, asthma, diabetes, heart abnormalities, hypertension, skin conditions, and birth defects” (Collado). To make this issue even worse, the island suffers from widespread inaccessibility to healthcare. Even if residents had the money to afford medical care, there is an incredible shortage of medical professionals; doctors leave the island for a more prosperous future at a rate of one per day. Not only do these circumstances violate Puerto Rican citizens’ human right to an adequate standard of living (UDHR Article 25), but this also makes it much more difficult for affected citizens to participate economically, socially, and politically. All of these compounding factors – economic marginalization, environmental destruction, political disenfranchisement – have created a perfect storm that makes Puerto Rico more vulnerable than ever. Hurricane Maria was able to decimate the island because of the actions of the United States – the economic structure and historical exploitation made Puerto Rico unable to maintain basic infrastructure that would protect them from hurricane damage or allow them to rebuild. This is why the historical legacy of American actions towards Puerto Rico matter, and why our current administration’s dismissal of Puerto Rican suffering is such a critical issue. The aftermath of Hurricane Maria is not a one-time occurrence.  Puerto Rico has been repeatedly struck by natural and manmade disasters that have impeded its progress, and many of these are caused or exacerbated by the U.S. The United States has failed miserably in protecting the rights of American citizens of Puerto Rico. We, as fellow Americans, should be held responsible in upholding those rights.

 

Three people hold signs at a protest supporting Puerto Rico.
4N3A5376. Source: Working Families Party, Creative Commons.

What Can We Do?

As always, we first must investigate our own perceptions of Puerto Rico as well as our peers’. If nearly half of Americans do not know that Puerto Ricans are U.S. citizens by birth, it is entirely possible that many people you know may believe similarly. Though human rights should be protected regardless of citizenship, America often influences the global standard of action. We, as Americans, have a duty to protect our fellow citizens from human rights abuses before we can take a wider lens in our international scope. To address current issues of disaster relief, the Unidos por Puerto Rico fund allows individuals to send money directly to relief efforts. In the long term, it is essential to start raising expectations for Puerto Rico as well as expectations of how America interacts with the island. Our current administration claims that Puerto Rico’s financial crisis and poor infrastructure are issues “largely of their own making.” This is flatly untrue. While from the outside it may seem that Puerto Rico has created its own dire situation, the most damaging factors would have never been in play without the role of the United States. To ensure proper education and healthcare are provided to the 3.4 million American citizens on the island, Puerto Rico no longer needs to be viewed as an outside entity responsible for solving its own problems. There are multiple ways to solve this. One may be addressing the issue of Puerto Rican statehood. The most recent referendum on Puerto Rican statehood found that 97% of voters wanted to obtain statehood. However, this has no significant impact on the decisions of Congress, because legislators have no direct accountability to Puerto Rico. Therefore, American citizens who have power over their legislators through their constituency must make their voices heard in order to protect our voiceless counterparts in Puerto Rico.

 

A Culture of Sexual Assault

a sign that reads don't rape
Don’t rape. Source: Richard Potts, Creative Commons.

**As support for and sign of solidarity with the survivors of sexual assault, we repost this blog as a reminder that we hear, see, and fight with you #metoo. 

April has been designated sexual assault awareness month. This blog is to inform about the culture of sexual assault, particularly rape. The term and language of “victim” in our culture, is utilized to reinforce victimization, rather than survivorship. 

The Federal Bureau of Investigation (FBI) categorizes violent crime as murder and non-negligent manslaughter, rape, aggravated assault, and robbery. A Gallup poll collected in 2016 showed that Americans are now more worried about crime than they have been in years. Some crimes are faced head-on. These crimes are more easily categorized and motivations for committing such crimes are often more clearly defined; punishments for these crimes are more cut-and-dry and are much more strictly enforced. Other crimes, however, do not exhibit these same traits. Some crimes are very difficult to understand and motivations for committing such crimes are often skewed and unclearly defined; punishments for the crimes are wayward and loosely enforced. We find rape in this latter classification of violent crime.

It should be noted that it was not until 2013 that the word “forcible” was removed from the category of rape. This modification came in response to the also recent 2012 update to the United States Department of Justice (USDJ) definition of rape. From 1927 to 2012, The USDJ defined rape as “the carnal knowledge of a female, forcibly and against her will 1.” In 2012, the department updated this definition to “the penetration, no matter how slight, of the vagina or anus with any body part or object, or oral penetration by a sex organ of another person, without the consent of the victim 2.” These recent trends have solicited an encouraging response from various state legislatures. Just last week, Senate Bill 0217 was passed in Maryland, updating the state’s dated legal definition of rape. The new definition clarifies that victims are not required to fight their attacker in order to establish that a crime has been committed 3. These legislative changes are extremely important as we move to fully understand and effectively address the issue of sexual assault. These not only reflect that it is not the presence of physical resistance that defines a rape, but rather the lack of consent. Also addressed is the reality that survivors of rape increase their chances of being maimed or killed if trying to physically resist the rape. These updates additionally highlight the reality that women are not the only ones who are vulnerable to being  victims of sexual assault. While these small victories should be celebrated, the necessity for continued breakthrough action is still very apparent.

As we moved through the end of 2016 and into the beginning of 2017, headlines involving sexual assault have been consistently present, and public responses has been as troubling as the crimes themselves. In early September 2016, the controversial sentence of former Stanford University swimmer, Brock Turner, was cut short at just three months after he was convicted for sexually assaulting a woman. Turner, at his trial stated, “My intentions were not to rape a girl without her consent … I was just trying to hook up with a girl 4.” During his trial, the victim also read a letter to Turner regarding her assault in which she wrote, “You have been convicted of violating me, intentionally, forcibly, sexually, with malicious intent, and all you can admit to is consuming alcohol,” she wrote. “Do not talk about the sad way your life was upturned because alcohol made you do bad things. Figure out how to take responsibility for your own conduct 5.” Unfortunately for many who empathized with this young woman, the Santa Clara County Superior Court Judge, Aaron Persky, sided with letters from family members and supporters that Turner’s future would suffer if given the harshest penalties. Turner was sentenced to a mere six months in jail and was released after only serving three 6.  In October of 2016, remarks made by President Trump were released during last year’s election in which he states “when you’re a star, they let you do it. You can do anything 7.” This comment was in reference to sexual advances made towards women by our now president. He goes on to make an iconic claim that was upsetting to many female, as well as male voters. While many were sure these highly un-presidential and unsettlingly sexually violent comments would bring an end to President Trump’s campaign success, they ultimately had very little impact and fell by the wayside as Trump proceeded to victory in the 2016 Election. Most recently, a Utah Judge has faced criticism as he tearfully sentenced former Mormon bishop, Keith Robert Vallejo, to up to life in prison for sexual assault this April 8.  Judge Thomas Lowe  stated that “The court has no doubt that Mr. Vallejo is an extraordinary, good man…But great men sometimes do bad things,” and in that same breath, sentenced Vallejo to five years to life in prison for object rape, and to consecutive sentences of one to five years in prison for 10 counts of forcible sexual abuse9. It is in these examples that we can see how little focus is placed on victims as we evaluate cases of sexual assault.

a picture of a sign that reads "clothes don't cause rape"
Clothes don’t cause rape. Source: Richard Potts, Creative Commons

This void in focus on protecting victims and survivors become even more apparent when we look at the incredible volume of rapes that occur in the United States. In 2015 alone, the FBI reported that an estimated 90,185 rapes (rapes defined by the USDJ’s 1927 definition) reported to law enforcement10. In the United States one in five women and one in seventy-one men will be raped at some point in their lives 11. It should be noted that these numbers are only a rough representation of the actual number of sexual assaults that occur as rape is one of the most underreported crime in the United States with around 63% of cases going unreported yearly 12.  Victims are blamed for placing themselves in high-risk situation or for engaging in high-risk behaviors. Claims by victims are often dismissed with the lack of physical force present in their accounts. Victims are additionally afforded little justice in the sentencing of their attackers as sentences are often short compared to other violent crimes and are rarely served in full.

In our negligence to consider victims we offer them very little room to become survivors. We deny victims the right we afford so many perpetrators of sexual assault – the right to move on with their lives. In refusing to acknowledge what so many have been through, we force them to face their experiences alone.

We make excuses to insulate sexual assailants from their crimes by citing their future and their cost to taxpayers in their incarceration. We often slough off sexually violent behavior as the norm without also evaluating the very real consequences of permitting such behavior. In reality, rape costs the United States more than any other crime, including homicide, at about $127 billion annually 13. Additionally, 81% of women and 35% of men report significant short-term or long-term impacts such as Post-Traumatic Stress Disorder (PTSD) following their attack 14. These are very quantifiable effects that result from sexual assault and yet we still tend to sympathize with perpetrators. We speculate over rape accusations as we cite the almost negligible percentage of false rape reports. Why is this the case?

Multiple sources cite that many individuals fail to allow themselves to accept their very real vulnerability to such crimes. We often find it comforting to think that victims can control whether or not they were raped, meaning that we can also control whether or not we are raped. We tell ourselves, “I would never wear a skirt that revealing, so I would never get raped,” or “I would never walk alone on that side of town, so I’m not at risk of being sexually assaulted.” Statements such as these are completely false, but when people say or think them, they create a distinction between those who get raped and those who don’t, when in fact there are no significant qualifying features of those who are raped. It’s somewhat of a  mass-scale coping mechanism that allows us to inhibit empathy for victims as their reality is too brutal for us to identify with. What this coping-mechanism leaves us with is unnecessarily perpetuated, oversimplified, unfair, and ineffective methods for addressing sexual violence. Once again, it is the victims of sexual assault who suffer. Individuals weigh the costs of coming forward with reports of rape, leaving many cases unreported. Others face scrutiny and often harassment for claims made regarding sexual assault. In too many cases, those seeking justice and relief are backhandedly served with speculation and hopelessness as they fight a justice system that favors their attacker’s past and future rather than evaluating a crime that has been committed and the damage that has been done.

As improvements are made to various legislatures, we must continue to urge lawmakers and enforcers to rely on facts rather than traditional perceptions and feelings towards the issue. There is room for so much growth in our methods for understanding and addressing sexual assault and this growth can only be achieved as awareness increases and education is made more available. While there are plenty of cases that may leave us discouraged, we must not give up hope for progress in fighting not just against perpetrators of sexual violence, but for survivors of sexual violence. Offering support to victims has an incredible impact on their ability to become the inspiring survivors they have every right to be. If you find yourself sympathizing with a sexual assailant’s ability to move on with his or her life after a conviction and be rehabilitated, I urge you to consider also the ability of their victim to move on with his or her life and be rehabilitated. I understand that good people sometimes do bad things, but should this cliché cloud our judgment to the point that we do not hold individuals accountable for doing these bad things? Should we yield to traditional views surrounding this social issue? Or should we consider the facts and yield to our own uncertain vulnerabilities to such crimes? We could all be victims, and we should all actively work to foster a culture that takes this into consideration and has compassion for victims as we address each individual case.

 

 

Works Cited

1“An Updated Definition of Rape.” An Updated Definition of Rape. US Department of       Justice, 2012. Web.

2 “An Updated Definition of Rape.” Web.

3 Jeltsen, Melissa. “Victims In Maryland No Longer Have To Prove They ‘Fought Back’   For Their Rapes To Be Crimes.” The Huffington Post. N.p., 19 Apr. 2017. Web.

4 Schwartz, Gadi. “Brock Turner, Convicted Sexual Assault Offender, Released From      Jail After 3 Months.” NBC News. N.p., 2 Sept. 2016. Web.

5 Schwartz, Web.

6 Schwartz, Web.

7 The New York Times. “Transcript: Donald Trump’s Taped Comments About Women.” The New York Times. N.p., 8 Oct. 2016. Web.

Weiss, Debra Cassens. “Judge Is Criticized for Calling Ex-clergyman a ‘good Man’       before Sentencing Him for Sexual Assault.” ABA Journal. N.p., 17 Apr. 2017.        Web.

9  Weiss, Web.

10 “Rape.” FBI. FBI, 16 Aug. 2016. Web.

11 Statistics about Sexual Violence. N.p.: National Sexual Violence Resource Center,      2015. PDF.

12 Statistics about Sexual Violence. PDF.

13 Statistics about Sexual Violence. PDF.

14 Statistics about Sexual Violence. PDF.

 

Recap of Using Digital Storytelling to Promote Human Rights: The Experience of Disability Advocates

co-authored Tyler Goodwin and Nicholas Sherwood

a picture of Dr. Trevisan presenting
Photo by Tyler Goodwin

On Wednesday, October 11, 2017, the UAB Institute for Human Rights sponsored an event titled: “Using Digital Story Telling to Promote Disability Rights.” This event featured Dr. Filippo Trevisan, Assistant Professor of Communications at American University in Washington, D.C. Dr. Trevisan is a disability rights advocate whose research features the use of technology to enhance accessibility for persons with disabilities. He is the Deputy Director of the Institute on Disability and Public Policy at American University, and an accomplished author, who released his book, Disability Rights Advocacy Online, last year. Dr. Trevisan’s presentation attempts to answer the question of how advocacy effectively inspires policy change for marginalized populations- most notably, for the disabled community.

Disability Rights

When the United Nations codified the Convention on the Rights of Persons with Disabilities, disability rights were first established at the international level of governance. This Convention is notable for its inclusion of actual persons with disabilities in the creation of this legal document, and for good reason. Persons with disabilities have long had to self-advocate for their rights, and the potency of grassroots efforts for disability rights distinguish this rights movement from other human rights movements. Dr. Trevisan, through the lens of information and communication technology, aimed to understand how formalized rights were impacted by the grassroots efforts of persons with disabilities.

Dr. Trevisan spoke of how Information and Communication Technologies (ICTs) have significantly impacted the world of disability rights. The United Nations Educational, Scientific and Cultural Organization (UNESCO) says that ICTs have allowed persons with disabilities to “enhance their social, cultural, political and economic integration in communities by enlarging the scope of activities available to them.” ICTs have promoted self-advocacy by allowing persons with disabilities to directly participate in any number of activities by directly getting their voice heard- middlemen are no longer required for persons with disabilities to get their issues out into the world. By surpassing several links in the communication process, the voices and narratives of persons with disabilities are more authentically communicated to policy makers and all levels of governance: local, regional, national, and international.

By skipping these ‘middlemen’, the effectiveness of a message (such as advocacy for disability rights) is more prominent, and the intended effect (policy change) is more directly linked to the advocate. According to Trevisan, two main communication styles are used by disability rights advocates to persuade policy-makers.

Emotional Appeal Versus Rational Arguments

Breaking down the rhetoric used by disability rights advocates, Trevisan elucidated on two primary forms of persuasive messages: messages appealing to emotion and messages appealing to reason. Emotional appeals typically feature personal narratives, eliciting feelings of empathy and sympathy by the receiver of the message. By contrast, rational arguments (i.e. appealing to reason) offer evidence-based arguments in support of policy change. A challenge of human rights advocates (in this case, disability rights advocates) is deciding which, or in what combination, of these persuasive tactics is most likely to achieve the desired outcome.

Historically, policy-makers have favored (or been more susceptible to) appeals to reason, as evidence-based arguments offer a more sound and predictable argument for policy change (or lack thereof). However, upon analyzing cases in the United Kingdom and United States, Trevisan documented a noticeable modal shift in successful argument tactics. Instead of favoring rational appeals, policy-makers are starting to respond and succumb to emotional appeals; this change is most clearly documented in policies related to persons with disabilities. This has huge implications for advocacy efforts and policy-makers alike. Bygone are the days where statistics and figures hold greater weight than personal narratives and stories. Perhaps we do indeed live in a “post-fact world” (though hopefully not). The question now becomes: why are emotional appeals more effective than rational arguments? And how can we marry these two approaches to achieve both: 1) successful persuasion of policy-makers to codify human rights and 2) create the emotional appeal from a sound and practical argument?

a picture of social media icons as flowers indicating the growth of social media
Growing Social Media. Source: mkhmarketing, Creative Commons

The Power of Stories

The answer to the first question lies in the power of story; Trevisan argues the impact of personal story-sharing in disability rights advocacy cannot be overstated. The importance of persons with disabilities telling their personal stories has proven to be very effective when it comes to advocating for their rights, and Dr. Trevisan mentioned two critical components to story telling: 1) the voice of the person telling the story, and 2) the storyteller feeling his or her voice is heard. Dr. Trevisan states his research led him to find “individuals [with disabilities] are now able to participate in crowd-sourced campaigns, and they want to.” He goes on to say persons with disabilities generally feel authentic in their narrative-sharing and the significant strides in disability rights implementation (for example, the CRPD) shows their voices are being hear.

Persons with disabilities have been particularly effective in their use of crowdsourcing- the virtual participation in efforts such as rights-advocacy. While crowd-sourcing has been a great way to get stories out into the world, the particular mixture of rational vs. emotional components is up for debate. How narrow should the stories be? If someone has to edit these stories, who should it be and what gives them the right to do so? Should there be no editing of the stories? If not, what if the stories do not pertain to the cause? Is it right to cut out someone’s story that they want to tell? How can we (consumers of information) be sure we are receiving an authentic and genuine message from a credible source (especially in a “post-fact world”)?

Dr. Trevisan’s cunning research of story-telling in disability-rights advocacy suggests the paradigm of successful policy change is shifting: from rational appeal to emotional connection, from the presentation of hard facts to the telling of personal stories. Moving forward with this new knowledge, human rights researchers and advocates must find a way to marry objective reality with the subjective story of humanity.

 

For a list of our upcoming events, please visit our events page.

Reframing Intimate Partner Violence: Human Rights in the Home

co-authored by Lindsey Reid, Ajanet Rountree, Nicholas Sherwood, and Nora Hood

a beautiful house on a hill
house. Source: oatsy40, Creative Commons

Domestic violence, domestic abuse, domestic terrorism, intimate partner violence (IPV)—all refer to abusive patterns of behavior within the context of relationship. While a universal definition has not been agreed upon, this blog operationally defines IPV as “causing or attempting to cause physical or mental harm to a household member or engaging in activity toward a family or household member that would cause a reasonable person to feel terrorized, frightened, intimidated, threatened, harassed, or molested.” In other words, IPV transpires when an individual exerts abusive control over another, resulting in a pattern of physical and/or psychological pain. Due to the extensiveness of IPV, we concur with the CDC assessment that IPV is a public health and a human rights issue, as stated in Article 3 of the Universal Declaration of Human Rights, “Everyone has the right to life, liberty and security of person”. While we tend to think repressive governments or other sinister forces violate human rights, survivors of IPV experience and endure human rights violations within their home. With this blog, we aim to raise awareness of your rights in a relationship.

What is Intimate Partner Violence?

The vagueness of the term “IPV” makes recognizing and combatting this human rights violation difficult; as is the case with any vague definition in the human rights literature. One thorny issue in particular is the oftentimes (over)emphasis of the physical elements of IPV. To be completely clear: IPV, or any form of relational abuse or neglect, refers to physical and psychological maltreatment of an individual. Just because there are no physical scars does not mean it is not abuse. Psychological IPV includes behaviors such as: creating psychological isolation, sexual abuse (unwanted sexual contact, inhibiting access to birth control, unwanted sexual comments, and pressuring or threatening someone into sex), economic abuse (taking actions in order to maintain total control of the household’s finances), and digital abuse (using technology to control, stalk, or manipulate the survivor). This list is neither complete nor comprehensive; IPV as a human rights violation can take many, many forms.

Who are the victims and survivors of IPV? The classical answer is a wife or husband with a marriage; this is why the original term to describe IPV was ‘domestic abuse’ (implying this crime occurs within a domestic setting). The new term of IPV expands that outlook to include unmarried partners, as well as any form of relationship with emotional closeness and proximity. IPV can happen between married partners, and IPV can happen on a first date.

The Changing Demographics of IPV

As ‘battered wife syndrome’ has fallen out of favor, the IPV has been shaped and expanded to include male, female, and child survivors and perpetrators alike. While majority of IPV perpetrators are male, human rights advocates and laypersons alike must recognize perpetrators come in all genders and ages. In previous decades, cultural stigma against male victims may have pressured men from speaking out against their abusers; therefore, the actual gender breakdown of this crime remains unknown.

Male and female perpetrators themselves utilize markedly different forms of violence, which may compound efforts to qualify and deconstruct the gender breakdown of IPV. Machado et al. studied Portuguese men and discovered a pattern among their female perpetrators: “self-partner aggression”. They characterize self-partner aggression as the occurrence where the female injures herself in some way and then claims to be a victim of domestic violence to the police. She (the perp) takes advantage of confirmation bias, recognizing society generally believes that the male partner is abusing his female partner as it confirms gender stereotypes and social norms. Female abusers may also be more likely to use weapons or other objects to cause harm. One study involved a sample of 2,760 victims using the National Crime Victimization Survey from 1987 to 2003 found that 6% of the male victims had been stabbed with a knife, while 1% of the female victims had. Additionally, they found 10% of the male victims had been hit by an object that was thrown by their abuser, while 3% of the female victims had. However, male victims were less frequently found to have experienced violence through direct contact such as grabbing or pulling, with 20% of them having experienced it, while 53% of the females had.

Finally, IPV is not limited to adult perpetrators. Children can exhibit abusive behavior towards anyone in the household, whether another child or an adult. The normative assumption is parents possess the power in the home when compared to children, so it is difficult to imagine children as abusive. Control is the motivation for domestic violence and abuse; therefore, it is necessary that we pay attention when children perform violent actions, avoid brushing them off as merely “bad kids” because the behavior and consequences may have a serious impact on the present and future. Children exhibiting abusive behavior, if unchecked and untreated, may later show further signs of psychological deviance or disorder.

a picture of a boy with 'stupid' written across his forehead
Stupid IV. Source: Laura Lewis, Creative Commons

Controlling to Death

Social researchers have long sought to understand the motives of IPV perpetrators in order to predict violent behavior patterns. By predicting situations of relational violence, social researchers can empower advocates, policy-makers, and survivors themselves prevent occurrences of IPV. Several conceptual frameworks of IPV exist, including the stress-diathesis model, feminist / gender studies theories, and a pathological need for psychological control.

The stress-diathesis model suggests abusive behavior results from high psychosocial stress on the perpetrator. As the stress load increases, the perpetrator takes his or her frustration out on a less-threatening target (the victim). In this model, attempts to mitigate or prevent IPV focus on the perpetrator eliminating or healthily dealing with stressors. This theory has fallen out of favor, as its deterministic view of patterns of abuse at times ‘excuse’ perpetrators for their behavior. However, these theorists take a biopsychological approach to understanding behavior, which indeed aids in painting a holistic portrait of motivations and emotions in general.

By contrast, feminist and gender-studies theories focus on the broad sociocultural factors compelling IPV in perpetrators. Exploring the notion of male dominance in interpersonal relationships, Ornstein and Rickne sampled 714 post-separated and divorced couples in Sweden in 2001. They suggest separation between partners triggers a loss of control (especially for the male partner), weakening his domination of the situation, thus increasing the escalations of violence in the relationship. Violence reported by the respondents showed high variance, including verbal abuse (i.e. name-calling and cursing) psychological abuse resultant from emotional vulnerability of the perpetrator (i.e. feelings of inferiority), and finally physical abuse (including stalking and physical / sexual assault). Overall, feminist and gender-focused theories explore how fundamental issues of identity (such as gender) influences the occurrence of IPV.

Finally, the “control” theory of IPV posits an unhealthy need for psychological control, regardless of gender, is the most significant factor predicting IPV. This theory formulates relational abuse is symptom of a person’s subjective feeling of lack of control in a situation. Violence is therefore the means to an end, with the ‘end’ being feelings of control. Controlling behavior can take many forms, including stalking. The National Council commission in Sweden issued a 2006 report of 4000 surveys that found 362 (3/4 of whom are women) responded to questions of stalking in their lifetime, with 3% in the previous year. In 2011, the establishment of Swedish stalking law brought a four-year prison sentence for those found guilty. It is imperative to note justice systems, regardless of locale, treat the symptoms of violence but not the roots.

a picture of a girl with bruises on her back
Domestic Violence. Source: CMY Kane, Creative Commons.

Regardless of the underlying causes (such as stress, gender roles, or a need for control), each case of IPV is unique and complicated. Recognizing signs of an abusive relationship is the first step and often difficult for the survivor to admit. Leaving the relationship itself is a whole other ordeal. Ornstein and Rickne affirm Kit Gruelle, a victim advocate in North Carolina (NC), who insists battered women are the experts on their relationships- no one knows more about IPV than someone who has gone through it. Gruelle suggests there is a noticeable pattern in abusive relationships—the couple has good days and bad days, just like every other couple. However, the ‘normalcy’ of the good days in no way makes up for the deviance of the bad days. Perpetrators often wear a façade of kindness and normalcy in mixed company, which makes spotting these perpetrators even more difficult.

Deanna remained married to her husband, Robbie, for nine years. She returned to him three times over the course of the years despite police knowledge of threats and violent tendencies. ‘The police knew he was violent but they believed he wasn’t violent enough to kill someone’.

When Robbie kidnapped and beat her across state lines, courts sentenced him to 21 years in prison—majority of the sentence for the kidnapping rather than the abuse. Assault on a female is an A1 misdemeanor in NC, resulting in 150 days in jail, whereas theft is a felony. IPV (or domestic violence) laws in Alabama have a stratified penalty process, ranging from Class A misdemeanor to Class A felony.

Controlling and abusive behavior may persist, even when the abusive relationship terminates. Prison, for many abuse survivors, is the only place they feel safe due to a system that does not protect them.

Latina returned to her abusive boyfriend numerous times because of love and at the time of his death, there was a warrant for his arrest. Courts charged her with first-degree murder when she killed him, after years of threats and abuse left her blind in her right eye.

Gruelle concludes, “our criminal justice system requires that she be beaten enough to satisfy the system, and by the time it get to that point, she’s already been so worn down psychologically and physically and emotionally. That’s when it’s really time for advocates to step up and begin to treat her like she has some value because she’s been told now systematically that she doesn’t. The courts have told her that she doesn’t have value; her partner has told her that she doesn’t have value… and all that strips away from her. Advocates, instead of stripping away, we have to build back up.”

If You See Something, Say Something

It is important to understand the difficulty of reporting cases of IPV. Who wants to get their partner in legal trouble? Who wants to report their wife, husband, girlfriend, boyfriend, and partner is abusive to them? Who is ready to accept they themselves are abused? IPV, like other forms of sex-based violence, often leaves the survivor in a traumatized state. This can manifest psychologically (irritable mood, overeating / undereating, splitting, dependency, fear of being along or fear of being with the abusive partner, and increasing isolation) or physically (exhaustion, severe weight gain or weight loss, and jumpiness). The symptoms of abusive relationships typically run deep, and the longer the relationship lasted, the more difficult these symptoms may be to spot. One critical symptom to look for is increasing isolation. The IPV situations typically result from an over-controlling or obsessive partner. These controllers may begin their abusive pattern of behavior by cutting off the victim from social contact with others outside of the relationship; the less face-time the victim has with others, the less likely to victim will be able to ask for help. In total isolation, the victim is hardpressed to find an ally, and he or she may fall prey to hopelessness and further traumatization. If you believe you know someone is in an abusive situation, reach out.

IPV is a complex human rights violation, and efforts to combat IPV must be flexible, durable, and persistent. Many social scientists work on deconstructing the psychopathology of perpetrators and patterns of survival in IPV victims. Advocates use their voice and social capital to broadcast the plight of IPV survivors and the identity of perpetrators. Ethical policy-makers codify punishments for IPV perpetrators, and enact funding for NGOs and government organizations that help IPV survivors. Finally, you can take action too. If you see something, say something. If you see a friend or loved one is in a relationship that does not seem right, initiate a conversation. Commit to naming and preventing intimate partner violence whenever you see it.

If you or someone you know is or may be in an abusive relationship, here are authorities to contact: in immediate danger, call 911 and The National Domestic Violence Hotline: 1-800-799-7233.

 

Ms. Hood considers domestic violence to be a form of domestic terrorism, and aims to raise awareness about the issue through her efforts including ThreeDaily.org.

Alternative Forms of Protest: From Beyoncé to NASA

“Freedom, cut me loose! / Freedom! Freedom! Where are you? / ‘cause I need freedom too! / I break chains all by myself, / won’t let my freedom rot in hell.” – Beyoncé Knowles-Carter, Freedom

A black woman with a slight smile holds a sign that says, "Unite here!"
“15/365 Black Lives Matter.” Source: Dorret. Creative Commons.

Protest is the struggle for recognition of an injustice (see Protests: Movements Towards Civil Rights). The right to rebel against injustice is ingrained within most of the legal frameworks that our society operates under. It is not only expected, but encouraged. The preamble to the Universal Declaration of Human Rights (UDHR) says, “…it is essential, if man is not to be compelled to have recourse, as a last resort, to rebellion against tyranny and oppression, that human rights should be protected by rule of law.” Put simply, the UDHR states it is essential to protest when human rights are being denied. Marches, rallies, and demonstrations are common forms of protest, but alternative protest methods can be just as effective as mass public action. One may not consider music, art, film, or science to be mediums for political dissent, but these methods are often surprisingly efficient, especially in the context of a tyrannical government.

“This Wall Is Not For Sale.” Source: John Orlando. Creative Commons.

Concept Art

Protesters often face government suppression and violence when they attempt to voice any opinions in opposition to the state. Examples throughout history have given us classic acts of protests such as Martin Luther King’s March on Washington and the Arab Spring uprising. However, more subtle acts of protest are necessary within repressive regimes that quickly and easily censor dissidents. Ai Weiwei, China’s most famous political dissident, voices his opinions in an unorthodox manner – art. He famously painted a Coca-Cola logo on a 2000-year-old Han Dynasty urn and later shattered another one in a photo series.  The urns were valuable in themselves, being thousands of dollars apiece, but the value lay mostly in the cultural heritage of the objects – the Han dynasty represents the golden era of the Chinese history that many yearn to return to. In response to outrage over the broken urns, Ai says, “General Mao used to tell us that we can only build a new world if we destroy the old one.” We, as American citizens, are used to dramatic public acts of protest, and may find his method to be overly passive and without impact. However, Ai Weiwei has been targeted, beaten, and arrested multiple times in the name of “inciting subversion of state power” (Richburg).

Cultural context is key when understanding the most effective method and medium of protest. An American artist gave a more recent and flagrant example when the artist Christo abandoned a $15 million dollar effort to create an enormous public art display in Colorado. The project, titled Over the River, was an effort to “suspend 1,000 silvery fabric panels” over several miles of the Arkansas River. Over the River was to intrigue and generate dialogue about art; the project had jumped through hurdle after legal hurdle with environmentalist groups and was in its final stages of approval. Planned over a twenty-year period and personally funded by the artist, the effort ceased after the election because the work was set on government-owned land. Christo said, “I use my own money and my own work and my own plans because I like to be free. And here now, the federal government is our landlord. They own the land. I can’t do a project that benefits this landlord” (Capps).

White wall with black and white graffiti of a man holding a microphone with fist in the air. Text at the bottom of the graffiti says, "This is a working class protest..."
“Street Art and Graffiti at Dalymont [ this is a working class protest ] -124720.” William Murphy, Creative Commons.
 Street Art

Some of the most deeply moving work to dissent against oppression is done by low-income, underprivileged minority groups. Art is defined within a social context, which is why some forms of art have been glorified as ‘true art’ while others have been demoted. Classical art painted by wealthy artists like Michelangelo are worth millions of dollars and featured in prestigious galleries while art forms that have historically belonged to women like sewing, crafting, and embroidery are demeaned. Up until the Harlem Renaissance, the art world treated black art similarly. Romare Bearden once said, “A concrete example of the accepted attitude towards the Negro artist recently occurred in California where an exhibition coupled the work of Negro artists with that of the blind.” Though Bearden published this essay in 1934, the attitudes towards black art are still not up to par. Society tends to think that the art that makes it into MoMA or the Louvre is end-all-be-all of artistic culture, but work done by professionally trained artists is not any more relevant or significant than work by self-trained artists whose canvas is the streets – the only difference is notoriety. Young black street artists often cannot gain that notoriety because the legacy of oppression has pushed black populations into urban areas and deprived them of resources, rights, and economic mobility. Street art is one way groups choose to protest the political occurrences that have suppressed their ability to thrive.

Graffiti as an artistic medium provides young urban dwellers the means to protest their situation through action against the state. One may ask, is graffiti art or vandalism? The short answer is yes. It is art; it is vandalism. Art is relative. The end goal of most art is to evoke a sentiment that influences others emotionally or philosophically. If we look at it this way, graffiti is a more powerful artistic statement than traditional artworks such as Monet’s Water Lilies. The perpetuation of vandalism occurs when artists view their world as divided into cheap real estate for gentrification. Other forces such as war, offensive political rhetoric, and police violence increase the drive to create graffiti. Graffiti artists express their cultural frustration in ways that their peers deem appropriate; often, young black men are denied the ability to express their sadness and fear without being subject to disdain (Aubrey). In a chaotic world often terrorized by police brutality, lack of economic or social mobility, and systematic discrimination, graffiti offers a creative outlet for frustration and allows artists with limited resources to make their voices heard.

“El pueblo unido jamás será vencido” (the united people will never be defeated). Source: 16:9clue. Creative Commons.

Poetry and Music

Poetry and spoken word have also become powerful tools used by many communities with shared cultural trauma. Black women, often dehumanized, commodified and oversexualized by society, have found a powerful outlet in poetry.  Poetry gives a path for different communities to express their anger and have it heard in a significant and impactful way. Artistic traditions of expressing hope, fear, and protest are deeply rooted in oppressed communities. This most notably has occurred within the black community, where poetry, song and dance have been tools of cultural unity and generate hope against oppression.

Modern music has adapted to the climate of political tension and has slowly begun incorporating anthems of justice and power. Rap and hip-hop have been particularly strong conductors of this trend. “Rap has developed as a form of resistance to the subjugation of working-class African-Americans in urban centers… rap has the powerful potential to address social, economic, and political issues and act as a unifying voice for its audience” (Blanchard). Beyoncé’s Lemonade centered on themes of justice for the black community after deaths from police brutality. The visuals accompanying Freedom, a track from Lemonade, show the mothers of Trayvon Martin, Michael Brown, and Eric Garner holding photos of their late sons. Hip-hop as a genre has long been a medium for shared feeling within the black community, but artists of all genres have recently been taking stronger and more public stances on political matters.

Celebrities have even taken part in public protests such as when Madonna opened for the Women’s March on Washington in the beginning of the year. Lady Gaga protested after the election by standing outside Trump Tower with “love trumps hate” signs. Green Day protested at the 2016 American Music awards by prefacing their performance with a chant of, “No Trump! No KKK! No fascist USA!” Public figures have adapted to the divisive nature of the times with the incorporation of political statements in their work.

“Don’t Mess with a Chemist.” Source: Scattered1. Creative Commons.

Science

The scientific world may seem limited to hard data, crunching numbers and running tests, but the recent change in administration has caused a shift in how scientists relate to politics. A man who who once called global warming a hoax perpetrated by the Chinese presently leads the United States. Enraged by the blatant dismissal of the scientific consensus that the world is in fact warming, many employees of scientific government agencies have resigned or otherwise protested. The emergence of social media accounts for “rogue” national departments has been a startling revelation. There are currently over a dozen rogue accounts, including @RogueNASA, @AltNatParkSer, and @ActualEPAFacts. These accounts run by actual employees of these agencies who feel that their ability to report accurate information has been censored – a violation of their human rights. Outrage over Trump’s statements on science has even led to a new world record by Autonomous Space Agency Network who achieved the first protest in space in April. They launched a weather balloon with a message attached: a tweet that reads, “Look at that, you son of a *****.” The tweet references a quote by former astronaut Edgar Mitchell, who once said, “You want to grab a politician by the scruff of the neck and drag him a quarter of a million miles out [to space] and say, ‘Look at that, you son of a *****.”

From this, it is easy to see how protest has evolved into a multilateral effort spanning across different segments of society. Music, art and science have all become fertile grounds for innovations in protest. Protest is not always an organized public action. It is often a cultural compilation of attitudes and actions that has formed in rebellion to a societal injustice. Protesting is not always loud, dramatic or direct; cultural and legal differences make some forms of dissent far too dangerous to commit under certain regimes. We cannot always judge others based on their perceived inaction in the face of injustice – protest is a unified effort, executed in a variety of forms, including methods less obvious than others.

Extending or removing support from artists who create political content can be an effective an act of protest for or against their stance.  Engaging in scientific debate and spreading awareness of censored issues can effect meaningful change. Taking a moment to admire the work of a graffiti artist can be an act of rebellion. If protests were limited to marching down the street holding picket signs, the world would be at an impasse for change. We must take pride in the forms of protest that are most accessible and most meaningful for us to rebel against injustice and create a better world.

 

Silence = Death: ACT UP

The basis of this blog is How to Survive a Plague. The story and all direct quotes are from this documentary.

a sign from the 30th anniversary of ACT UP rally
01a.Start.March.ActUp.NYC.30March2017. Source: Elvert Barnes, Creative Commons.

“We’re in a PLAGUE”, shouts Larry Kramer.

A plague to an outsider looks differently to an insider, particularly one who battles symptoms every day. The plague Kramer shouts of is HIV/AIDS and its decimation of the homosexual community. Until I watched this documentary, I had not considered AIDS a plague because its label was an epidemic or pandemic. My perspective on the topic was limited by my understanding of another’s plight. My first recollection of learning about HIV/AIDS happened in the early 1990s when Ryan White, a hemophiliac, died and Magic Johnson, a heterosexual basketball player, made his announcement. I still remember how as a middle-schooler, I rationalized the knowledge someone a few years older than myself died while also anticipating the death of one of my favorite basketball players. At the time, I had no idea the millions who succumbed to AIDS would die after a lack of treatment for the disease; nor did I know of the group of radical activists shaking up the government and scientific community with demands for intervention. The individuals of ACT UP, through the coalescence of anger and non-violent direct action, took the on the burden of the dying community. How to Survive a Plague chronicles the 10-year fight for antiretrovirual medications (ARV) needed to both save the lives of those living with the disease and help end the AIDS crisis in the US.    

Greenwich Village in New York City was the epicenter of HIV/AIDS in the early 1980s. During its initial outbreak, the virus was widely considered a ‘homosexual’ disease. Hospitals offered no treatments and turned the dying away, placing blame and responsibility for the epidemic squarely on the victims’ shoulders. AIDS Coalition To Unleash Power (ACT UP) began “fighting for their lives, patients and their advocates took matters into their own hands.” The activists, labelled fascists rather than concerned citizens, began locally – at NY City Hall in 1987, six years into the pandemic.

Peter Staley, a bond trader on Wall Street at the time, insisted, “I’m going to die from this. This isn’t going to be cured” because without government trials or treatments at that point in time, all hope seemed lost. Hope arrived in a scientist named Iris Long, who offered her time to explain and teach members of ACT UP the ins and outs of the scientific community, arming them with medication and funding information. Survival became dependent upon knowledge of what needed to go into the body; therefore, forming the Treatment and Data Committee (T&D). The goal of T&D remained reading medical journal articles as a means of raising awareness while arming the members with terms and ideas for advocacy. The first medical treatment offered was AZT.

AZT, for many infected including Staley, proved more harmful than helpful. First, it cost $1000 per year. Second, it was not widely available. Third, side effects were unbearable in some cases. Lastly, it did not prevent any opportunistic infections from attacking an already weakened immune system. Robert Rafsky questioned, “What does a decent society do with people who hurt themselves because they are human? A decent society does not put people out to let them die because they have done a human thing.” By 1988, over 800,000 people worldwide died of AIDS-related complications. For members of ACT UP, there was a direct correlation between the loss of American lives to AIDS and the government’s failure to make medications accessibly affordable and safe. Overseas markets had accessible medications, but Americans bought medication on the black market—the “buyers’ club”, a desperate means of saving their lives while protesting government agencies. The buyers’ club stored and sold medications not approved by the US FDA, and provided information about HIV/AIDS related infections, including opportunistic infections.

The US FDA tested and marketed ARVs at a significantly slower rate than Europe—7 to 10 years versus 9 months respectively. While the FDA sat on their power to make, test, and market medications, deceased patients gathered into garbage bags and refused by funeral parlors; disregarded and denied dignity, even in death. In 1989, hope arrived again through a partnership with Bristol Myers and NIH as activists used platforms to bridge the gap between science and themselves by reaffirming the same goal: saving lives. NIH increased research priorities and allowed activists to participate in panels regarding trials and treatments. By 1992, the death toll worldwide was more 3,300,000 and a small sample of ARVs was ready to trial in the US.

The goal of ARVs is to suppress and halt the progression of the virus. In the 1992 trial, researchers found that over the course of a week, suppression of the virus occurred but did not remain in most patients. Fortunately, in one participant dubbed “Patient 143”, viral load suppression stabilized over time. Despite this small victory, 1993-95 became the most difficult for the activists. Internal splintering of ACT UP created a division of priorities which resulted in the founding of the Treatment Action Group (TAG). George H.W. Bush argued a change in lifestyle and behavior could stop the threat/spread of AIDS, yet he failed to conclude that it is irrational to believe that others should change their behavior, specifically LGBTQ community, without him changing his response to their requests, demands, and deaths. Additionally, Europe confirmed the ineffectiveness of the ARVs that were accessible at the time. This setback meant a reframing, restructuring, and reanalysis of the AIDS research scientific process.

TAG activists, together with the scientific community, focused on the possibility of a triple drug combination rather than a single drug solution. In 1995-96, the Lazarus effect began to take place in patients after 30 days on the medications. The antiretroviral therapy (ART) combinations arrived too late for millions including Ryan White; however, they sustain and give life to millions of others including Magic Johnson. The decision of ACT UP activists spawned justice for humanity, not just the LGBTQ community. Staley summarizes, “…just so many good people [died]… like any war, you wonder why you came home.”

This Wednesday, October 4 at Birmingham Museum of Art, 6pm, ACT UP activist Peter Staley will participate in panel discussion “30 Years of Acting Up”. The panel is a part of the One in Our Blood exhibition taking place around the city, including AEIVA and Birmingham Civil Rights Institute.