Food Insecurity: Ecuador and the Global Poor

Since 2014 and the COVID-19 pandemic, food insecurity has been steadily rising, with hundreds of millions being threatened by malnutrition and hunger. In 2020, above 30% of the global population was found to be moderately or severely food insecure. Food insecurity affects different populations in distinct ways, and in order to understand this more clearly, we examine Ecuador. Here, historical contexts have unique influences on food insecurity, but also, this nation exemplifies the reality that low-income nations face when combatting hunger. 

Facts and figures of food insecurity in Ecuador 

Hunger is an issue that is widespread globally and within Latin America and the Caribbean. In fact, researchers Akram Hernández-Vásquez, Fabriccio J. Visconti-Lopez, and Rodrigo Vargas-Fernández found that the region has the second-highest figures for food insecurity globally. The region is also predicted to be the fastest-growing in food insecurity rates. 

Ecuador is just one example of why food insecurity manifests and in which populations. The country is ranked second in the region for chronic child malnutrition: 23% of children under five and 27% of children lack access to proper nutrition. 

According to the Global Food Banking Network, an international non-profit focused on alleviating hunger, 900,000 tons of food are wasted or lost yearly in Ecuador. This is an alarming statistic considering that 33% of the population experienced food insecurity between 2018 and 2020 一 a threefold increase since 2014-2016. 

Economic conditions have only been heightened in the pandemic, leading to widespread protests across the nation by indigenous people demanding equitable access to education, healthcare, and jobs. In sum, indigenous people cannot afford to get by, exacerbating existing food insecurity.

A man holding a protest sign with a few people to the left.
Figure 1: Source: Flickr, Motoperu; Protesters holding a sign that says “No more injustice, eliminate lifetime presidential salaries,” Cuenca, Ecuador.

Maria Isabel Humagingan, a 42-year-old Indigenous Quichua from Sumbawa in Cotopaxi province described why she was protesting to Aljazeera reporter Kimberley Brown

“For fertilizer, for example, it used to be worth $15 or up to $20, now it costs up to $50 or $40. Sometimes we lost everything [the whole crop]. So we no longer harvest anything.”

During a time when global inflation is rising, it is the poorest people who are at the most risk. Even those who used to live on subsistence farming are vulnerable. The United Nations Food and Agricultural Organization (FAO) found that Ecuador’s food insecurity had risen from 20.7% to 36.8% in one year during the pandemic, and it is apparent that indigenous peoples are the most at risk during this time. 

This is not to mention the fact that during a time when global hunger is growing, there is a disproportionate impact on women. Ultimately, food insecurity, while complex and layered, is a mirror of the prejudices and inequalities of society. In order to better understand why and who is impacted, we first need to understand two components: is food available (production and imports), is the food adequate (nutritious), and is food accessible (affordability)? 

Factors behind food insecurity in Ecuador and beyond 

Environmental Racism 

Ecuador has a long history of environmental racism, and for the sake of brevity, we will be focusing on the practices of Texaco/Chevron and its impact on soil fertility. 

Victoria Peña-Parr defines environmental racism as,

“minority group neighborhoods—populated primarily by people of color and members of low-socioeconomic backgrounds—… burdened with disproportionate numbers of hazards including toxic waste facilities, garbage dumps, and other sources of environmental pollution and foul odors that lower the quality of life.”

From 1964 to 1990, Texaco (which merged with Chevron in 2001) drilled oil in the Ecuadorian Amazon. Over 16 billion gallons of toxic wastewater were dumped in water sources and unlined open pits left to seep into the soil and devastate clean water sources for people and agriculture. Additionally, 17 million gallons of crude oil were spilled in the disaster now known as “Amazon Chernobyl.” Ecuadorians, a good majority of which were indigenous peoples displaced from their land due to environmental destruction, levied a suit against Chevron which was won in February 2011. 

Indigenous people standing behind and looking at an open and unlined oil pit.
Figure 2: Source: Yahoo Images; Indigenous people overlooking one of 900 unlined, open oil pits from Chevron.

During the judicial process, 916 unlined and abandoned pits of crude oil were found. The human rights implications of this historic case and horrifying disregard for human and environmental safety are lengthy, in order to learn more read this blog by Kala Bhattar

With this brief background in mind, it is clear to see how this would impact agricultural production, particularly in rural areas where indigenous persons live. Moreover, Afro-Ecuadorians, while only making up 7.2% of the population, are 40% of those living in poverty in the entire country. Most Afro-Ecuadorians live in the province of Esmeraldas, one of the poorest in the country, where most people live off agriculture and “85% of people live below the poverty line.”

UN experts have found that this population is the most vulnerable to environmental racism, suffering from systematic contamination of water supplies and intimidation. 

As people suffer through the impacts of a ravaged environment, they must continue to rely on subsistence farming without aid. When crops fail to provide enough economically and for individual families, many go without in this impoverished region. 

Climate Change

Global warming is leading to changes in weather patterns that have a serious impact on agricultural production 一, particularly in low-income countries that rely on seasonal rains, temperature, and other factors. 

Climate change has also led to more severe and deadly disruptions, from hurricanes and earthquakes to monsoons, flooding, and mudslides. Ecuador has been suffering from these climate changes, despite only producing 2.5 metric tons of CO2 emissions per capita (the US comparatively emitted 5,222 million tons in 2020). 

Specifically, Ecuador has suffered from a lack of water, specifically irrigation water, landslides, droughts, and heavy rains. The last two aforementioned climate impacts are particularly salient issues as it has impacted seed development by not allowing them to germinate or produce

Image of a map with areas ranging from blue to deep red to indicate areas under threat by climate change. Latin America, Sub-saharan Africa, and Southeast Asia are the most threatened.
Figure 3: Source: Yahoo Images, Mannion, et al. in Trends in Ecology & Evolution; Worldmap where biodiversity is threatened the most by climate change.

In all, the consequences of climate change are having disproportionate effects on low-income states globally in spite of the that they have historically contributed very little to greenhouse emissions. The worst impacts are on nations surrounding the equator and countries with relatively hot climates 一 both of which tend to be low-income countries. 

Ukraine War

Due to the ongoing war in Ukraine, food prices have been rising. Ukraine is a leading wheat producer globally. It is the seventh-largest producer of wheat, supplies 16% of the world’s corn, and 40% of the world’s sunflower oil. In the summer of 2022, 22 million tons of grain were stranded in Ukrainian ports, causing mostly low-income countries to feel the growing threat of food insecurity. 

Additionally, Ukraine supplied 40% of the World Food Programme’s (WFP) wheat supply. The immediate impact of this is clear in the 45% increase in wheat prices in Africa alone, while any country that receives aid from WFP (which Ecuador has since 1964) is threatened directly by the situation. 

As food prices continue to soar, the price of food sold within lower-income nations remains the same, creating a gap between cost and production. The conflict has also led to increases in the price of fuel and fertilizer, leading to food insecurity in many countries beyond just Ecuador. The war in Ukraine has disrupted global food supply chains and led to the largest global food crisis since WWII

Hunger and the human right to food 

There has long been a precedent in the international human rights framework for the right to food, beginning with the first declaration (unanimously accepted) in 1948. In Article 25 of the Universal Declaration of Human Rights (UDHR), the right to an adequate standard of living is guaranteed to everyone with the express mention of food. Fast forward 20 years later, and once more, Article 11 of the International Covenant on Economic, Social, and Cultural Rights (ICESCR) reiterates (almost identically) the right to food. 

The ICESCR actually expounds further on a state’s responsibility to free everyone from hunger, specifically outlining that either individually or through international cooperation specific programs should be developed to address food insecurity and hunger. Moreover, the covenant addresses that food-importing and food-exporting countries should both be reviewed for problems that would impact the equitable distribution of food globally. Lastly, agrarian systems should be reformed to address nutrition and achieve maximum utilization and efficient use of agricultural resources.

 Image of a bowl with the words “Zero Hunger” from the 2015 UN Sustainable Development Goals.
Figure 4: Source: Yahoo Images, United Nations; Logo of the second Sustainable Development Goal to end hunger.

In 1999, the Committee on Economic, Social, and Cultural Rights convened to review the progress to end hunger. General Comment 12 reiterated the obligation of states to fulfill the aforementioned responsibilities. Most crucially, however, was the specific mention that states must immediately address issues of discrimination that plague food insecurity. In the case of Ecuador, it is clear that this remains a salient issue. 

Most recently, in 2015, during a historic UN summit, world leaders adopted 17 objectives to be achieved by 2030. Known as the Sustainable Development Goals (SDGs), the second objective is to create a “Zero Hunger” world by 2030. 

Conclusion: Fighting Food Insecurity 

According to the World Food Program, 60% of the world’s hungry live in areas afflicted by conflict. There is no simple way to end a conflict, but it is crucial that all states remember their commitments to the SDGs and ICESCR. This means that states need to step in to provide nutritious food when a home state will not or cannot. Just like Red Cross, journalists, and other humanitarian organizations are protected by international humanitarian law from being targeted in conflict, so too should persons ensuring food access to people. Moreover, countries should address the factors that contribute to food insecurity such as environmental racism and climate change. 

There is no one solution for this issue since there is no single cause. However, by refusing to accept these conditions, learning more about the causes and conditions of food insecurity, and demanding more, we can begin to bring about a world that truly is free from hunger.

  • Food Insecurity in Birmingham, AL by Mary Bailey
  • America: The Land of the Hungry by Kala Bhattar 
  • The Right to Food: A Government Responsibility by Zee Islam 
  • Donate to the World Food Program
  • Learn more and get directly involved with SDGs 
  • Follow @uab_ihr for Speaker events, blogs, and to learn more about supporting human rights locally and globally

 

The Right to Vote And The 2022 Midterms

Though the right to vote was codified as a fundamental human right in Article 21 of the Universal Declaration of Human Rights in the 20th century, voting has been a cornerstone of American democracy since the nation’s founding in 1776 (though it took a while to realize this right for everyone).  In order to call itself a representative democracy, the United States must represent its citizens through laws and elected officials, which is executed through free and fair elections with equal access to participating in the voting process. In this article, we will be covering the importance of ensuring voter accessibility, some upcoming voter issues from a human rights standpoint, and, of course, how your vote matters! 

Please scroll to the end of this article for information on voter registration, aid in accessing the polls, remote voting options, and how to find your local candidates and docket items.

Source: Steve Rainwater via Flickr

What are Midterms?

Midterm elections are held in the middle of Presidential terms. In midterm elections, eligible citizens vote for the House and Senate candidates that, if elected, shape national laws and policies. The 2022 midterm elections take place this year on Tuesday, November 8, 2022, and will have a major impact on citizens’ rights on both the state and national level. These elections determine which political party will hold the majority in the houses of Congress for the next two years, which can affect everything from the federal budget to national and international policy. Check the current midterms forecast here to see how the House, Senate, and your state elections are predicted to go.

Source: Joe Brusky via Flickr

Each Vote Matters

The most common response I receive when asking why my peers choose not to vote is the thought that, “one vote cannot make a difference”. History disagrees. The 2020 presidential election saw a record voter turnout, with nearly two thirds of all eligible voters (158.4 million people) showing up to the polls. However, midterm elections historically have 10-20% lower voter turnout than presidential elections. For example, the 2018 midterm elections only saw 113 million votes, which is roughly 53% of the eligible voter population; and that was still the highest voter turnout for a midterm election in four decades with a historic average of roughly 40%. That means the elected officials who vote on crucial national policies like minimum wage, education, housing and healthcare are only representative of less than half of Americas eligible voters.

In addition, following the Supreme Court’s decision of Dobbs vs Jackson in June 2022, we have seen a large change in voter demographics as historically conservative states like Kansas, Ohio and Alaska observe spikes in young, female voters and Democrat registrations. On September 13, 2022, Democrat Mary Peltola was sworn in as the first Alaskan Native to be elected as an Alaskan representative in Congress. States that have been dependably Republican for decades are now facing a new population of politically active citizens flocking to all forms of civil engagement in order to change their states, for the present and the future. 

The Voter Issues

As we get closer to the midterm elections, it is important that we recognize both the dangers and the potential solutions that could be determined by the vote this upcoming November. Below you will find some of the largest human rights realms that will be affected by the outcome of the midterms.

Voter Issue: Abortion Rights

In the wake of Dobbs v Jackson, the right to elective abortions has become a prioritized and contentious voting issue for the 2022 midterms. Currently, 26 states are likely, planning to, or have already restricted access to elective abortions following Dobbs. The Pew Charitable Trusts used recent data to create the map below:

Source: The Pew Charitable Trusts

For the first time in five decades, local and state representatives will now determine whether women and people who can get pregnant in your state will have access to what was considered a nationally protected right under Roe v Wade. Beyond the simple matter of legal access, those elected to your state governments have the ability to further restrict or protect the right to abortion in your state. On the national level, those elected to Congress this November will be voting on policies like the Women’s Health Protection Act; a piece of federal legislature that would protect abortion access nationwide. 

While we are still two months away from elections, there are many signals that abortion will be one of the largest voter issues this election season. The very demographic of voter registrations has shifted following the Dobbs decision in June, with a rise in female, young, and Democrat voter registrations nationwide. In Kansas, a state with a long history of voting red (56% of Kansas voters cast their ballots for Donald Trump in 2020), an anti-abortion referendum was struck down by 59% of votes. This is the first time since Dobbs was decided that restrictive abortion legislation was struck down by voters. It was also a clear display of voter participation shifting the partisan norm as a deeply conservative state was met at the polls by voters, impassioned with protecting reproductive rights.

Source: “Vote Earth Tree” by Earth Hour Global is licensed under CC BY-NC-SA 2.0.

Voter Issue: Climate Change

The United Nations passed a resolution in July of 2022 that declares a clean, healthy environment is a universal human right. In addition, the recently passed Inflation Reduction Act plans to tackle both economic and environmental issues by majorly investing in clean energy production and creating jobs in the industry. Unsurprisingly, the Pew Research Center found that energy policy and climate change are two predominant issues voters will consider when casting their votes in November.

Source: Valeriya via Getty Images/iStockphoto

Voter Issue: Healthcare

The right to health is an inclusive right, defined by the United Nations as encompassing accessibility, quality, and availability amongst other qualities. While the aforementioned Inflation Reduction Act plans to lower drug costs for Medicare recipients, America still stands alone as the only developed nation in the world that does not have Universal Healthcare.

With chronic, severe or uncommon conditions, constant full-time employment may be the only way to gain affordable insurance that provides access to vital drugs and treatments. Insulin and Epi-Pens are two life-saving essential drugs that American citizens experience being denied access to because they cannot afford out of pocket costs. A simple ambulance ride can cost upwards of $1,200, an amount many Americans could not pay without incurring debt. With bankruptcy and extreme medical woes being legitimate fears for American citizens without health insurance, it is easy to see why 60% of voters say that healthcare policy is very important to their vote in the midterm elections.

Source: Victoria Pickering via Flickr

Voter Accessibility And Suppression

Voter suppression, whether passive or active, is a real issue in 2022. It is crucial that we recognize the ways in which voter accessibility is inhibited, especially in the discussion of voter turnout and how that affects who is truly represented in the US Government. Lack of accessibility and excessive voter registration requirements are detrimental to our voter turnout, and contribute to feelings of helplessness and voter apathy.

One of the largest inhibitors of active voters is pure accessibility. The US Justice Department states that, “Title II of the ADA requires state and local governments… ensure that people with disabilities have a full and equal opportunity to vote. The ADA’s provisions apply to all aspects of voting”. While some cite mail-in voting as a solution to physically inaccessible polling locations, the DOJ continues to specify that, “Any alternative method of voting must offer voters with disabilities an equally effective opportunity to cast their votes in person,” meaning that simply offering a mail-in vote option is not just insufficient; it is illegal. Despite this, the American Bar Association has found that “persons with disabilities made up one-sixth of eligible voters in the 2016 election, yet only 40 percent of polling places were accessible.” Both persons with disabilities and the older population are greatly impacted by this lack of accessibility.

While accessibility at physical voting locations is a major issue, the voter process begins with voter registration; a procedure that can be incredibly inhibiting. Voter ID requirements are one of the primary obstructions across the board when citizens attempt to register to vote. Burdensome voter identification restrictions are explained as necessary security measures, but their policy outcome is that citizens who are eligible to vote are unable to due to the expensive and time-consuming process necessary to obtain government IDs. While the average percent of eligible voters who lack a government-issued photo ID is roughly 11% per the Brennan Center’s research, that amount is significantly higher amongst minority groups, low-income people (15%), young voters 18-24 (18%) and old voters 64 or above (18%). The highest category though is African-American citizens, who reported a staggering 25% of voting-age citizens without eligible IDs. In a nation with a history of civil rights abuses, institutional racism and voter suppression, modern voter ID laws must be re-evaluated in order to uphold the integrity of the electoral system in America.

Additional voter restriction issues include lack of public transportation to polling sites, deceptive practices, racial and partisan gerrymandering, employers not providing time off, long lines, prolific jailed, previously jailed and ex-felon disenfranchisement.  A representative democracy must represent its people, and to do that its people must be able to vote.

Resources:

  • Please click HERE to register to vote. If you are interested in absentee or mail in voting options, please check out this page where you can speak to an agent if you have any additional questions!
  • VoteRiders is an amazing nonprofit that helps voters to obtain their necessary documentations, and can help provide rides to the DMV to obtain photo IDs and rides to the polls through their volunteer service! Their organization will also cover any fees necessary in the ID process, so please check them out if their resources would be helpful to you or if you are interested in volunteering with them! You can also reach their help line at 888-338-8743
  • Rock the Vote provides helpful information on voting in your state, walks you through the registration process and provides helpful reminders for upcoming voter deadlines!
  • To learn more about voter suppression or to join the fight against voter ID restrictions and voter suppression nationwide, please check out the ACLU and the Brennan Center today!
  • Find the forecast for your State’s midterm election results here

 

Injustice in the Justice System: Issues of Access for People with Disabilities

The image shows the sculpture of a women holding scales, which is supposed to represent justice. In the background are the pillars of the Supreme Court of the United States.
Lady Justice before the Supreme Court of the United States, symbolizing impartiality and fairness. “Lady Justice” by justindc is licensed under CC BY-NC-SA 2.0

As Brady Mistic got out of his car, he was immediately met with the blinding glare of  police lights. Being a person with deafness, Brady relied mostly on his sight to interact with the world around him, so the bright light was confusing to say the least. He moved towards the light to inquire about the disturbance. Within the next seven seconds, Brady would find himself shoved to ground and tased by the police as they barked commands that were completely inaccessible to him, even as he tried to communicate that he was deaf. Within seven seconds, Brady acquired three charges, including resisting arrest, and was sentenced to four months in prison. Within seven seconds, the police officers’ inability to identify the need for, and establish, alternate forms of communication lead to a physical altercation and incarceration. Although these charges were waived after almost two years, Brady’s story is indicative of a widespread, disproportionate impact of the justice system on people with disabilities.

In fact, while only 20% of Americans have disabilities, 32% of federal inmates and 40% of jail inmates report at least one disability. The difference in these numbers is no coincidence. In this and a subsequent article, we will see that people with disability are not only overrepresented in prison and jail systems, but also treated unfairly at every step in the process of incarceration and reintegration into society. This article connects Mistic’s inaccessible encounter with the police with a broader, systemic lack of accommodations in the criminal justice system; the second will focus on the school-to-prison pipeline for kids with disabilities and the experiences of people with intellectual and development disabilities.

Mistic and Accessibility in the Criminal Justice System

Mistic’s encounter with the police was not the only incident of law enforcement getting into a violent altercation due to their inability to communicate with a disabled individual. In 2017, Oklahoma City police fatally shot Magdiel Sanchez, an individual with deafness, after he failed to respond to verbal commands to drop the stick in his hand and get on the ground. He was later found to have not been involved in the hit-and-run case for which the police were called. Witnesses who were present at the time of the event were even yelling to the police officers, saying that Sanchez was deaf and could not understand their spoken words. The lack of appropriate communication and the haste in action which is evident in both of these cases points to an underlying deficit in police training. Despite the fact that individuals with any type of disability are legally entitled to receive the same access to legal enforcement services as people without disabilities, most of the training around disability and crisis intervention training programs are not mandatory and are focused on psychological disabilities. Law enforcement training is not comprehensive with regards to disability and fails to equip officers with the necessary skills to interact with people who have intellectual, developmental, or other types of disabilities, which can potentially lead to fatal consequences.

Sadly, the lack of access in Mistic’s interaction with the criminal justice system did not end at his encounter with the police. Mistic was denied an interpreter when interacting with his lawyer while in jail. Like other aspects of Mistic’s case, this too points to an institutionalized barrier that prevents people with disabilities from being treated justly. Inaccessibility in the court and prison system is rampant. This was evident in the case of Abreham Zemedagegehu, an Ethiopian man with deafness whose first language was Ethiopian Sign Language. He was not allowed an interpreter during his six weeks in jail, making it very difficult for him to hear announcements for meals, contact his friends and family, and receive medication for his back pain.

Through multiple lawsuits over the years, prisoners with deafness reported not being able to understand the prison-wide safety instructions, to take part in classes in prison, and to defend themselves in disciplinary proceedings because a sign language interpreter was not present. In 2010, a prison in Virginia became the first in the country to have a videophone after it settled a lawsuit by a group of deaf inmates. It is difficult to imagine that this basic mode of accessible communication for people with deafness was unavailable at one point in any prison in the US and is still not available in many prisons. The lack of accessible communication methods impacts the success of people with disability as they reintegrate into society as well. One individual with blindness had the opportunity to enroll in community college courses but did not receive appropriate accommodations during classes. Another individual with a disability sought to find out how to apply for social security benefits but was denied information by their counselor, who believed they should apply for a job instead.

The image shows a corridor lines on either side by prison cells. There are two levels of prison cells. The prison cells have metal bars from the floor to the ceiling, and also some metal bars running along the length of the cells. Some of the entrances to the cells are open. There are no people in the image. The image has a very grim and foreboding atmosphere.
Prison cells in Alcatraz, San Francisco. Source: Unsplash

Access to Health Services

Decreased access to medication and health services in prisons, as Zemedagegehu experienced, disproportionally impacts people with disabilities, risking the deterioration of health problems. When 91% of jailers report they have in their facilities individuals with serious psychological disabilities who are at risk of committing suicide, it becomes imperative – a matter of life or death – to ensure adequate health services are delivered in time. The status of accommodations is no better, as many prisons deemed essential accommodations (including wheelchair, prosthetics, exercise equipment, other assistive technology) as no longer “medically necessary” in order to cut costs. Health services are placed further out of the reach of inmates due to exorbitant co-pay rates, which can be as high as a month’s labor, and additional fees incurred by prosthetics and other accommodation.  The results of these factors is best portrayed in a Bureau of Justice System study which looked into health issues of prisoners and jail inmates. Only two-thirds of participants reported receiving necessary medical treatment, whereas 11% reported that their illness was not being treated because they were not being given medication. While the overrepresentation of people with disabilities in jails and prisons may largely be attributed to unjust treatment of people with disabilities, it is possible that the conditions within the jails and prisons, including the lack of access to health resources, are contributing to the development of disabilities in inmates.

Perhaps the most shocking experience of Zemedagegehu during his time in jail is that he was forced to receive an injection, which he later found out was a tuberculosis test, after refusing to sign a medical consent form because it was not presented in a way that he could comprehend. This blatant human rights violation, of forced medical procedures and ignorance of patient autonomy, underscores the necessity of sweeping changes in the jail and prison system’s treatment of individuals with disabilities.

Inaccessibility in the justice system, however, is an issue not only for arrested and incarcerated individuals with disabilities, but also to citizens seeking justice. According to a Bureau of Justice study, people with disabilities are victims of violence at twice the rate as people without disabilities. Clearly, individuals with disabilities stand to benefit from the services offered by the court system, services which they are entitled to but cannot always access due to the failure of the criminal justice system in being inclusive to all members of the community.

The issues of inaccessibility discussed in this article violate the rights afforded to all individuals, including article seven of the Human Rights Declaration which promises that everyone is “entitled without any discrimination to equal protection of the law”. Reforms to the criminal justice system need to take into account the needs of people with disabilities at every level, from law enforcement to court systems to jails and prisons. Individual citizens can contribute to pushing for such reforms as well. Find your local legislators and advocate for issues of access in the criminal justice system by writing to or phoning their office. Recent prison reforms in Alabama, including a bill allocating approximately $800 billion to the construction of two new facilities that will reduce overcrowding in prisons, offer hope for progress. Whether or not accessibility becomes a priority in the future depends on you and I to organize, stand as allies, and demand change.

 

 

Asking For Help When You Have A Mental Illness

** The mental health relationship between public health and human rights is often misunderstood. Humanity can begin to see the underlying and overarching interconnections among poverty, its relation to lack of health insurance and untreated mental health issues, and individual and public safety. This blog seeks to provide insight and resources that help bridge the gap and offer solutions that remove stigma and shame. – AR

by Marie Miguel

a picture of someone reaching out to help
Help. Source: Leo Hildago, Creative Commons

It’s difficult to ask for help when you’re suffering from the symptoms of mental illness, whether that be depression, PTSD, Schizophrenia, Bipolar Disorder, or Anxiety. Sometimes, mental illness can leave you feeling hopeless and at the mercy of your symptoms. Some people have a great ability to see outside of their symptoms and ask their support system for help, but there are challenges when getting help for mental illness. We will explore what it takes to acknowledge that you have an issue and get the help that you need in this article. 

Acknowledging that you need help

It’s difficult to admit that you need help when you have a mental illness. Here’s an example of where someone with mental illness Let’s say that you’re living with Bipolar Disorder, and you’re in an episode of mania. You’re spending lots of money, engaging in risky behavior, and you find that your life is out of control. Your friends are put off by your excessive spending habits and your wild behavior that’s out of control. You know that you have a problem and you don’t know how to ask for the help that you need because you’re in the midst of a manic episode. What do you do? Well, you reach out to a loved one first, and say: “I need help.” they might not know how to help you, but at least you’re admitting that there is a problem, and trying to get the help that you need starts with talking about the issue. They might not have a solution, but it’s time to admit that there’s something that you have to address. Next, maybe you and your loved one go to your doctor and discuss the issues. That’s assuming that you have health; this is all the optimal scenario. Then, your doctor refers you to a psychiatrist, who can treat your symptoms, and you find a therapist that works together with your psychiatrist. So, this is an ideal scenario in which you have insurance, you have a support system, and you find the mental health providers that you need. Not everybody is so lucky, and we need to see how those who don’t have access to good healthcare fare in our system. 

When you don’t have resources

Let’s examine the same scenario when you don’t have appropriate resources. So, let’s say that you have Bipolar disorder, you’re going through a manic episode, and you’ve alienated your friends and family. There’s nobody to reach out to for help, and you don’t have insurance. How might you feel? Isolated. You don’t know what to do or who to turn to for help. These are the things that we have to think about in terms of getting people with mental illness help because sometimes, the symptoms of mental illness are destructive and you end up alienating those who can help you. So if you notice that a friend or family member is doing something self-destructive, it’s one thing to be angry with them and another thing to have compassion. If you can, even if they’re acting in a way that’s not kind, try to get them the help that they need because, in a way, the person may be crying out for it even if they’re cruel in the process. Now, don’t put yourself at risk or in harm’s way – there are times to draw boundaries with people if somebody is acting in a that is unsafe and they intend to harm themselves or others. If somebody is suicidal, for example, it’s time to get them to a hospital because you won’t be able to provide them with the help that they need. Many times, it’s about finding the right resources. Some people don’t know where to find the right resources for their problems. The problem is that sometimes there aren’t enough resources available.

The resources need to be there

If you have insurance, use it. One of the things that we have to remember is that even if you have a mental illness, it doesn’t make you powerless. You can, if you have insurance, look for a provider to help you with your mental illness, whether that’s PTSD, Bipolar Disorder, Schizophrenia, or Anxiety. Find a psychiatrist who’s able to talk with you about your symptoms and get you help. So, that’s one thing that you can do, and speak with your psychiatrist and find a treatment plan that works for you. Have your psychiatrist and therapist work together and understand that a treatment plan takes time to develop. You’ll be able to figure out what your treatment plan is over time and get better. 

Creating resources when there are none

There are instances where people cannot get help because there’s overcrowding in hospitals or they can’t find a provider that takes their insurance that doesn’t have a five-month-long waitlist. It can happen to people that have “good” insurance. So what do we need to do as a society to create more resources so that people can get the help that they need? Well, one thing is, we need to train more therapists. So, we need to understand that and value the jobs of mental health professionals. One resource we can use is online therapy. It is affordable, and it is accessible to many people. Some people don’t have the luxury of choosing from a plethora of therapists. 

Online therapy

One alternative to traditional face-to-face therapy is online therapy. Online therapy is an excellent space for people that have a mental illness to get the support that they need affordably from the privacy of their own home. Companies like BetterHelp are an excellent place for people to find a therapist that they can talk to and feel comfortable sharing their problems with so that they can get better. Our world is changing, and technology can be used for good. Let’s try to make space for people who have a mental illness to get the support that they need. Everyone deserves access to quality healthcare, which includes their mental health.

 

Marie Miguel has been a writing and research expert for nearly a decade, covering a variety of health-related topics. Currently, she is contributing to the expansion and growth of a free online mental health resource with BetterHelp.com. With an interest and dedication to addressing stigmas associated with mental health, she continues to specifically target subjects related to anxiety and depression.

International Day of Persons with Disabilities 2018

Today, December 3, 2018, is the International Day of Persons with Disabilities (IDPD), an observance promoted by the United Nations (UN). This year’s theme, “Empowering persons with disabilities and ensuring inclusiveness and equality,” accommodates the 2030 Agenda for Sustainable Development’s pledge to “leave no one behind” which envisions sustainable urbanization, namely through a smart-city approach that prioritizes digitalization, clean energy, technologies, and service delivery. Such ambition is salient to persons with disabilities because, above all, achieving these goals will result in communities that are more accessible and inclusive for everyone.

It is argued the main contribution to why persons with disabilities have been excluded from public life is the practice of the medical model of disability (MMD) which embraces the perspective of non-disabled persons, reducing persons with disabilities to dysfunctional people in-need of medical treatment, with emphasis on normative functioning of the body. As a result, persons with disabilities are often assigned a sick role that exempts them from activities and expectations of productivity, leaving them as passive recipients of medical goods and services. These medicalized expectations of normality, restoration, and functional independence can devalue the lived experiences of persons with disabilities, thus inviting discrimination into their daily lives.

On the contrary, the social model of disability (SMD) challenges the knowledge/power differential employed by medical authorities and suggests empowerment for persons with disabilities, ultimately strengthening the patient role and influencing changes in treatment paradigms. Furthermore, the SMD argues that social practices are what disable persons with impairments, placing many persons with disabilities into isolating circumstances and preventing full civil participation. Whether it be employment in Alabama or being a refugee in Kenya, the SMD challenges the MMD by suggesting persons with disabilities are an oppressed group that experiences discrimination and deserving of equal treatment.

On December 13, 2006, the UN adopted the Convention on Rights of Persons with Disabilities (CRPD), an international agreement which details the rights of persons with disabilities and lists codes for implementation, suggesting both states and disabled people’s organizations (DPOs) are to coordinate to fulfill such rights. In the following years, nations spanning the globe have ratified the CRPD, such as Jordan (2008) and Ireland (2018), thus strengthening protections for persons with disabilities. Although the United States is one of the only nations to have yet ratified the CRPD, this international document is largely modeled after the Americans with Disabilities Act (ADA), signed in 1990, which prohibits discrimination toward persons with disabilities. As a result, we are only seeing the beginning of what is to come for accessibility and inclusion for persons with disabilities, both domestically and globally.

Disabled people celebrate the passage of The Rights of Persons with Disabilities Bill, 2016 by the Lok Sabha, in New Delhi. Source: Hindustan Times, Creative Commons

 

To commemorate IDPD 2018, the Institute for Human Rights is holding a blog series today that addresses access, inclusion, and representation for persons with disabilities, namely through the influence of media and power of politics.

“Let the shameful wall of exclusion finally come tumbling down.” – George H.W. Bush at the signing of the ADA

A 29th Floor Perspective

 

1st Ave from the 29th Floor of the UN
1st Ave from the 29th Floor of the UN. Photo by Ajanet Rountree.

The United Nations (UN) Conference on State Parties (CoSP10) experience began on the 29th floor for me. I say this because I lived in New York City and toured the UN on a couple of occasions. Additionally, living a life that is inclusive of persons with disabilities is in my wheelhouse. A friend and mentor utilizes crutches to help him walk because an accident, when he was younger, took the full use of his legs. Cancer took the use of B’s legs when she was a baby, and a motorcycle accident left my uncle paralyzed from the waist, making them both wheelchair users. I lead with all of this to say that making room in my world for persons with disabilities is something I have done for decades. My familiarity, in a sense, is akin to the knowledge gained by a couple of tours of the UN lobby and gift shop. Therefore, walking into CoSP10, I was prepared or so I thought.

I had never been on the 29th floor. The perspective is much different up there.

The Division of Economic and Social Affairs (DESA) is located on the 29th floor of the UN. The DESA team is responsible for both the economic and social affairs of persons with disabilities for all the UN member states as directly related to the Convention on the Rights of Persons with Disabilities (CRPD). They write and disseminate policies and ideas to the member states as suggested modes of implementation. Each policy and suggestion lies within the UN mandated Sustainable Development Goals (SDG) which is an extension of the 1945 UN Charter. SDGs are the 17 goals all member states, through collaboration, seek to achieve by 2020 as a means of ensuring “no one is left behind” while honoring the Universal Declaration of Human Rights (UDHR) and CRPD. Sitting in the conference room, I am inspired by the opportunity but not fully awake to what is about to take place.

Enter Daniela Bas.

Bas is the DESA director. During her chat with us, she disclosed a couple of points that stand out to me. First, the UN, as an employing entity, is beginning to put into action many of the policies and measures, tasked to member states for implementation. Most specifically, employing persons with disabilities in key leadership positions of which she is one. Second, the UN is an organization led by human beings seeking to do the right thing. With full acknowledgment, she reminds that the UN is not perfect but that the process of coalescing 196 backgrounds, traditions, religious affiliations, and attitudes to make significant strides at securing human rights and making the world more peaceful, is an accomplishment. Lastly, when compared to men and boys, and those who are able-bodied, discrimination against women and girls with disabilities doubles, and even triples if they belong to a minority race or class in their country. This last point, triple discrimination for women and girls with disabilities will become a recurring theme in the conference for me. The harsh reality of this fact remains an echo in my soul to this moment.

Confrontation with another person’s truth requires an adjustment to what is known through experience and education, and assumed through familiarity.

On the floor. Photo by Ajanet Rountree

I study and view life and the world with a gendered perspective in mind. I look for the role of women, our impact on families and societies, and our visibility and invisibility when it comes to equality. I am aware of the trials of living life at intersections. Intersectionality complicates because discrimination is complicated. I believe there is a temptation to separate the intersections so to obtain a solid understanding; however, it is in the attempt to separate that understanding is lost. Gaining a complete understanding of the dynamics of discrimination requires a holistic not segmented perspective.

Girls, irrespective of ability, are not as valuable or visible in many societies as boys are. Nora Fyles, head of the UN Girls Education Initiative (UNGEI) Secretariat, asserts invisibility is the fundamental barrier to education for girls with disabilities. She confirms this assertion when explaining the search for partnership on the gendered perspective education project by stating that 1/350 companies had a focus on girls with disabilities. For Bas, the failure to identify girls and women with disabilities is a failure to acknowledge their existence. Subsequently, if they do not exist, how can we expect them to hear their need? She suggests addressing crosscutting barriers. Leonard Cheshire Disability (LCD), in partnership with the World Bank, UNICEF, and UNGEI, hosted a side-event where they released their findings regarding a lack of inclusive education opportunities for girls with disabilities. Still Left Behind: Pathways to Inclusive Education for Girls with Disabilities sheds light on the present barriers girls, specifically those with disabilities, experience when seeking an education.

Article 26 of the UDHR lists education as a human right. Bas believes if knowledge is power, and power comes from education, the fact that 50% of women with a disability complete primary school and 20% obtain employment, reflects social and economic inequality. Ola Abu Al-Ghaib of LCD emphasizes policies, cultural norms, and attitudes about persons with disabilities perpetuate crosscutting barriers for girls with disabilities to receive an education. She concludes that schools are a mirror of society. In the absence of gendered sensitivity, boys advance and girls do not. Every failed attempt to address and correct the issue is a disservice to girls generally, and girls with disabilities, specifically.

It is imperative to remember that the spectrum of disability is multifaceted. Most people recognize developmental and physical disabilities like Downs Syndrome, Autism, visual and hearing impairment, and wheelchair users, but fail to consider albinism and cognitive disabilities as part of the mainstream disability narrative. Bulgaria is focusing on implementing Article 12 of CRPD regarding legal capacity. Legal consultant and lawyer, Marieta Dimitrova explains that under Bulgarian law, only reasonable persons have the right to independence; therefore, persons with cognitive disabilities receive the “unable” descriptor under assumption they are unable to reason and understand, thereby placing them under a guardian. Guardianship removes the right to participate in decisions regarding quality of life, which is a deprivation of liberty. She resolves that although full implementation into law awaits, stakeholders are seeking renewal in the new government because pilot projects have proven that an enjoyment of legal capacity in practice yields lower risk of abuse, changed attitude within communities, personal autonomy and flexibility.

Not all disabilities result from birth or accidents. War and armed conflict factor into 20% of individuals maimed while living in and fleeing from violence. A lack of medical access leave 90% of maimed individuals permanently disabled. Stephane from the International Committee of the Red Cross (ICRC) submits that for refugees with disabilities, access to essential services can be difficult on the journey and in camps, but also for those who are unable to flee. He infers a “double disability” inflicted upon refugees with disabilities: first as a refugee, and second as a person with a disability. Human Rights Watch advocates that refugee camps produce a humiliating and degrading existence for persons with physical disabilities because the “tricks” employed prior to arrival in the camps, are no longer applicable as wheelchairs sink in the mud and crutches break on rocky grounds. The Lebanese Association for Self-Advocacy (LASA) reports the underrepresentation of women and girls is significant when receiving information and access to assistance.

In a refugee simulation seminar, LASA informed that on the ground, confusion is high given that humanitarian organizations do not consult with each other, making communication difficult and non-supportive. For families with a person with a disability, nonexistence communication means a prevalence to fall victim to violence and harassment. Jakob Lund of UN Women divulges that humanitarian aid can be ineffective for women with disabilities, while Sharon with OHCHR suggests a clear dichotomy between the rights of the able-bodied and the rights of persons with disabilities holds central to the ineffectiveness. At the core of a lack of communication and accessibility is invisibility. Stephane concludes that there is an obvious need for a necessary and systematic retraining specific to educating others on how to see the invisible.

a picture of Chinatown, NYC and Brooklyn Bridge
Chinatown, NYC, and Brooklyn Bridge. Source: Madhu Nair, Creative Commons

The process of inclusion and equality relates directly to the decision to acknowledge a person’s existence. Retraining the mind to see any human being with a physical disability takes decisive action so I put myself to the test. First, I thought of all the famous women with a physical disability I could think of, and arrived at about six, including Heather Whitestone and Bethany Hamilton. I then googled celebrity women with disabilities which yielded a Huffington Post piece that identified Marlee Matlin, Frida Kahlo, Helen Keller, and Sudha Chandran as 4/10 “majorly successful people with disabilities”. I had Marlee Matlin and Helen Keller. What is more interesting is that I arrived at seven when naming men with physical disabilities. Here is the point: society is not inclusive of persons with disabilities if we have to strain our brains to remember the last time we sat next to, opened the door for, ate a meal with, or saw on the television/movie screen/church platform a person who did not look like us physically.

Perspective changes everything because perspective is everything.

Accessibility: A Paradigm Shift

a picture of the inside of the UN General Assembly Hall
Photo by Tyler Goodwin

I was given the opportunity to work as a rapporteur for the Conference of State Parties to the Rights of Persons with Disabilities (CRPD) at the United Nations in New York City. As a rapporteur, it was my duty to report on each event and assembly that I attended by drafting a summary of what took place respectively. I was able to attend the opening ceremony in the General Assembly Hall, which is where the meetings of the 193 Member States originally take place; an event on data mining, which is when one uses a large database to come to conclusions, and the importance of technology for persons with disabilities, where Dr. Reuter presented her research; a Roundtable Debate, where each party was able to ask questions and address any concerns they may have; and finally, a panel discussion with members, one of which was Dr. Reuter, who had the opportunity to present their findings from their research and answer questions from the audience.

When we were getting our duties and learning our roles, the Director for the United Nations Department of Economic and Social Affairs (DESA) Division for Social Policy and Development, Daniela Bas, came in to speak to us. It was a humbling experience, as she made an effort to get to know everyone in the room. I was also able to meet delegates from Canada, Zambia, and New Zealand. I remember Zambia’s representatives standing out specifically, for many reasons. Zambia is a country in southeastern Africa, where resources are limited. However, with the resources they have left, they have made efforts to allocate some of them to persons with disabilities. They also reported on their progress in implementing the CRPD, and it claimed to have many positive strides despite the fact that there is still much to be done.

During the Roundtable Debate, the issue of travel complications was raised. It was an eye-opening moment for me personally, as someone who loves to travel. I learned that a lot of individuals and families must plan business trips and vacations around accessible places and there will more than likely still be difficulties during their travels due to accessibility issues. Catalina Devandas Aguilar, who is the Special Rapporteur on the Rights of Persons with Disabilities then spoke on how there must be a greater political commitment to combat this issue. As the Special Rapporteur, she is trusted to be impartial and knowledgeable when she reports on a country’s trials. She was not speaking of a certain country in this case, but what she had examined across the globe. She also called for more respect, dignity, and a gender-equal approach when concerning persons with disabilities and the obstacles they face. It is important for all of these prongs to be met for persons with disabilities as they are seen as lesser or incapable at times. In reality, it is not feasible for persons with disabilities to accomplish something due to inaccessibility.

a picture of the stone wall outside of the UN
Photo by Tyler Goodwin

Prior to my week of working for the United Nations, I had a vague idea about how it was operated. I assumed it was similar to a business, but on a much larger scale. I imagined that the employees, directors, and delegates would be strictly focused on the Conference. I now have a small, but a clearer understanding of how the United Nations works. Those mentioned were certainly focused, but they were open to chatting and encouraging to others. Ms. Bas went out of her way to come speak to us, and the employees that I sat beside during the events were extremely welcoming and helpful. They asked about who I was, where I am from, and what I hope to accomplish one day. I expected to have to aggressively network to get to meet higher-up employees, but they were the ones who made the efforts to get to know me and the rest of the team. It changed my perspective of the United Nations in a positive way and fanned the fire inside of me to want to work there more. I was unsure of what a day at the United Nations would be like for an employee, and I only received a small glimpse of it, but I am thrilled to have gotten the experience.

Throughout the course of the Conference, I was able to see the importance of a global approach to handling persons with disabilities’ rights and implementing the CRPD. When it comes to a community so large and diverse, the United Nations must act cohesively to reach the 2030 agenda of sustainable development, and this Conference was a testament to their commitment. Doing so would ensure the world would be more accessible for all and lessen the issues faced by persons with disabilities.

This opportunity was heavily impactful for me. I was introduced to the world of the United Nations, and the humanitarian world outside of it. I met people who are involved in advocacy and fighting for rights around the globe, whether they are employed by the United Nations or not. I always envisioned myself being truly fulfilled by working for the United Nations alone, but I learned that there are many different outlets to accomplish the types of things I want to one day. It is still my end goal to be employed by them, but I have realized that I can have a fulfilling career. I am beyond grateful to Dr. Reuter for her research and advocacy, as she is truly making a difference. I am also grateful to have had her bring me along to experience the United Nations from the perspective I was given.