Disability and Isolation in Our Modern World

by Marie Miguel 

a picture of a young boy sitting alone on a park bench
Source: Public Domain

There are many types of disabilities. There is no one way to be disabled. One thing is for sure, living with a disability can be challenging. The navigation of places that are not disability-friendly remains overlooked. Having a physical disability means there is a need to make sure areas and spaces are accessible, and if you have an invisible disability, like severe anxiety, there is a need to ensure that you are mentally and physically prepared against possible triggering. However, there are no guarantees.

Misunderstanding and disabilities

Having a disability isn’t easy in this world. You want others to understand you, but it’s exhausting to try to keep re-explaining your experience. Some days you want to live a regular life, and not think about how you are different from others. If you are living with a mental illness, you are often misunderstood. People do not understand what it is like to live with severe anxiety, mania, crippling depression, or PTSD. Having to fight a constant battle with your mind is extremely difficult to explain to someone who does not know or care what it is like. For example, the thought of leaving the house is terrifying for someone with agoraphobia or similar phobias, while many others have no thoughts about it.

The world is not accessible as it should be; in fact, it is quite the opposite. It is difficult to mask or pretend to be “normal.” According to NAMI, one in five people have a mental illness. Mental illnesses are considered disabilities. If your mental illness is severe enough to impact your functioning, you might isolate and fear to be around others because you’re stigmatized. It is not healthy for the human experience, as social isolation may cause loneliness, depression, physical health complications, and may lead to taking one’s life.

As a society, what can we do?

We must work to understand those living with mental illness as well as other disabilities. There is a lack of understanding of differences when it comes to our society. We expect people to be cookie cutters and the standard of “normal” does not accurately reflect our world in terms of the human experience. The human condition is that we are all unique. The ADA limited in its protections against discrimination due to the stigma surrounding the identification of disability. The “yes, I have a disability” box on applications is supposed to allow for accommodations. Yet, the fear of stigma often paralyzes many people from checking it; checking the box places you in a proverbial box. The impact of being “boxed” because of a disability can have a severe impact on a person’s state of mind and overall wellbeing. Additionally, the failure to comprehend and/or empathize with persons with disabilities can come off as judgemental and further exasperate the issues.

Preventing social isolation

It is tempting to want to isolate when you cannot seem to find a sense of community or belonging, but we, as a society, can prevent this from happening. Studies show that isolation is as harmful to our health as smoking fifteen cigarettes per day. It is important to remember that an answer is available. One of the things that we can do in addition to raising awareness for disabilities and the experiences of people living with disabilities is to pursue mental health treatment. If you have a disability, no matter what it is, talking about how society impacts you is empowering. Whether you work with a counselor in your local area or try online therapy, you deserve to be heard. Speak out and up, advocate for yourself and others with disabilities, and take care of your mental health because you deserve it.

 

Marie Miguel has been a writing and research expert for nearly a decade, covering a variety of health-related topics. Currently, she is contributing to the expansion and growth of a free online mental health resource with BetterHelp.com. With an interest and dedication to addressing stigmas associated with mental health, she continues to specifically target subjects related to anxiety and depression.

Why Language Matters to Women

by Pam Zuber 

United Nations Flag. Source: sanjitbakshi, Creative Commons.

Language matters. So do the rights of people. But in 2019, it looks like representatives of the U.S. government promoted the use of language that may affect, if not imperil, the rights of women. Every year, the Commission on the Status of Women (CSW) issues statements called agreed conclusions based on priority themes and recommendations. The CSW is part of the Economic and Social Council (ECOSOC), which itself is one of the platforms of the United Nations (UN). For the sixty-third session from March 11-22, 2019, the CSW’s agreed conclusions were “social protection systems, access to public services and sustainable infrastructure for gender equality and the empowerment of women and girls.”

During the CSW’s 2019 session, representatives of the United States requested changing the language of the commission’s agreed conclusions. They wanted to remove language that referred to “universal access to sexual and reproductive health and rights.” Writing in the Washington Post, Ariana Eunjung Cha and Lena H. Sun said that the American representatives felt that this language would promote abortion and juvenile sexual activity. According to Cha and Sun, the representatives also wanted to eliminate the term “gender-responsivein the agreed conclusions and replace it with the term “family-centered.” But this language denies our ever-evolving concept of family. Families come in all shapes and sizes. Family isn’t just the nuclear family model of a man, a woman, and children. Actually, it never was, because don’t we all know people who were raised by single parents, grandparents, aunts and uncles, siblings, or two parents of the same gender? People who lived with foster families and in group homes? People who lived with multiple generations under one roof? Denying multiple concepts of family and gender creates an inaccurate depiction of families. This depiction hurts the many, many people not included in this narrow definition.

When representatives seek to eliminate the word gender, the denial also obviously denies gender and sexual orientation. It implies that gender is binary, that the only two genders are male and female. It doesn’t acknowledge trans people, people who don’t identify with a certain gender, or people with different sexual orientations or no sexual orientation. Not acknowledging people’s existence marginalizes them, which may make it easier for people to ignore or even abuse them.

Finally, the U.S. representatives pushed to add another section to the agreed conclusions. This section stated, “women’s contribution to the home, including through unpaid care and domestic work, which is not adequately recognized, generates human and social capital.” The U.S. representatives did not get their way, but the rest of the commission did. In a document discussing the agreed conclusions, the commission stated that it wanted to “[e]nsure universal access to sexual and reproductive health and reproductive rights.” It urged entities to 

respond to the needs of women and girls and recognize and value unpaid care and domestic work, enable the mobility of women and girls, strengthen women’s participation in public and political life, as well as their economic opportunities, in particular their full and productive employment and decent work and equal pay for equal work or work of equal value, and strengthen their resilience to shocks.

Although the efforts by the United States representatives were ultimately not successful, they still sent a chilling message that could have repercussions for women in the United States and abroad. After all, while “universal access to sexual and reproductive health and reproductive rights” can mean abortion, it can also mean so much more. It can mean distributing contraception and information on how to use it. It can mean providing tests and examinations that could diagnose pregnancy or health conditions and provide early and effective treatment.

Such criticism about providing access to reproductive rights sounds similar to criticism leveled at the Planned Parenthood organization. Critics charge that Planned Parenthood performs abortions, which it does, but abortions represent only 3.4 percent of the services it provided in the 2017-18 fiscal year. People are quick to condemn the organization for providing abortions while ignoring that more than 96 percent of its work is not related to abortions but instead relates to contraception, examinations, testing, and other matters relating to health care, especially preventative health care. Reproductive health and women’s rights are at risk with each slight or purposeful alteration to words used in the creation and passage of legislation, the implementation of the laws, and the subsequent treatment of persons who identify as women. Denying such rights treats women as second-class citizens not worthy of vital forms of health care. It perpetuates the belief that women are not able – and should not be able – to make decisions about their bodies and their lives. It denies cis women opportunities. It denies the very existence of trans women and people who have nonbinary identifications. Not being able to make personal decisions may impact women’s physical and mental health. This impact could produce far-reaching consequences.

Women who lack reproductive rights cannot plan their families. They may have more children or children sooner than they intended. This may be physically and mentally draining. It may lead to poor health, lost educational opportunities, financial and career stagnation, and even conditions such as addiction that may need to be treated by addiction treatment professional facilities because women are trying to make sense of their lives or escape the realities of their lives. Women may feel trapped. They may be unable to attain a decent quality of life and achieve upward mobility, all because they lack something as basic as birth control.

A woman cleaning
Source: By Fars News Agency, CC BY 4.0, https://commons.wikimedia.org/w/index.php?curid=67475239, Creative Commons.

Why Emphasize Domestic Work?

By emphasizing domestic work, the U.S. delegation to the United Nations’ commission is sending a strong message. Again, the U.S. representatives wanted to include language that addressed its belief that “women’s contribution to the home, including through unpaid care and domestic work, which is not adequately recognized, generates human and social capital.” On one hand, the U.S. delegation to the Commission on the Status of Women recognizes that women still perform the bulk of domestic duties in most cultures throughout the world. It acknowledges that most cultures often do not recognize females’ domestic work financially, politically, socially, or emotionally. On the other hand, why is the United States so keen to emphasize domestic work?

Women perform domestic work. But they also perform countless other kinds of work. Around 74.6 women were in the U.S. workforce in 2017, reported the U.S. Department of Labor. These totals amounted to about 47 percent of the United States workforce. Since women already account for about half of the nation’s workers, it’s impossible to ignore their numbers. It’s shortsighted and dangerous to overlook this impact and to deny or downplay women’s contributions. Speaking of contributions, does the U.S. delegates’ proposed language portray their beliefs about what woman should be doing? In this view, women should handle domestic work and men should work outside of the home. Again, this is a very traditional view that was never the case for 100 percent of U.S. families. While stay-at-home wives and mothers may have been more prevalent in the past, many women have always worked outside of the home due to necessity or desire.

Source: ArtsyBee, Creative Commons.

What Do Choices Mean for Women?

As an alternative, what about supporting language that acknowledges the many roles that today’s women actually perform? Yes, women perform domestic work and raise families. But they also work outside of the home and pursue educations. They also do many of these things at the same time. Some choose not to marry, live with partners, or have children, or they are partners with other women, or they have multiple partners or participate in other arrangements. They may identify as cis, trans, or nonbinary, or have other identities. They may not live in traditional nuclear families, but their families and their choices are not any less valid – or any more valid. They’re just living their lives. They’re happy, successful people who contribute to society. Ignoring their ideas of family and gender, and ignoring the contributions they make through their work and other efforts, ignores them as a whole. And they shouldn’t be ignored, because non-nuclear families are now more common than nuclear ones. The Pew Research Center reported that only forty-six percent of U.S. children eighteen years old or younger lived with two parents in their first marriage in 2014.

Instead of ignoring women, maybe the U.S. delegation and other representatives should consider promoting inclusive language that acknowledges choice. If women have options, they can better control their destinies. In most societies throughout history, men have had more agency in steering the course of their lives and communities. But how are women supposed to have agency if authorities do not allow them to control any aspect of their lives, including their own bodies? Providing opportunities for women to work, to pursue educations, to choose whether to have families or not, to run for office, all give women control and power. This can create additional control and power, as women will have the knowledge, skills, connections, agency, and confidence to live the lives they want to live and help others do the same. Women will be independent, not dependent. They will not have to rely on husbands, fathers, or brothers but will have the resources to thrive on their own.

Allowing women full access to reproductive care and other types of health care and encouraging them to pursue a wide range of career opportunities enables women to live the fullest lives possible. Using language to deny these opportunities harms women and future generations. When U.S. representatives use certain language and deny other types of language, they threaten freedom, self-determination, and other American ideals. They forget that what’s right for women is what’s right for the United States as a whole.

 

Pamela Zuber is a writer and an editor who has written about human rights, health and wellness, gender, and business.

The Global Refugee Crisis: What Can We Do?

On Monday, March 4, the Institute for Human Rights co-sponsored an event with local education, faith-based, and policy organizations at Samford University, titled Addressing the Global Refugee Crisis – Part: What Can We Do? The panel discussion, moderated by Rachel Hagues (Assistant Professor at Samford University – Department of Social Work), included Carlos Aleman (Deputy Director at Hispanic Interest Coalition of Alabama), Mary Baxter (Resettlement Specialist at World Relief Atlanta), Cesar Mata (Organizing Fellow at Adelante Alabama Worker Center), Sarai Portillo (Executive Director at Alabama Coalition for Immigrant Justice), Leida Venegas (Refugee/Birmingham Resident from Colombia), and Lynda Wilson (Chair at Refugee Interest Group), where they addressed their organizations’ roles in the current refugee crisis and how local community members can get involved.

Baxter first addressed the audience by speaking about World Relief’s origin which stemmed from a faith-based relief effort that addressed the devastation in Europe after WW2. The organization began addressing refugee resettlement in 1979 and, today, are only one of nine organizations in the country that has a contract with the U.S. State Department to help resettle refugees. World Relief does case management work that covers child development, agriculture, and nutrition as well as teaches participants about navigating housing, U.S. laws, and obtaining proper documentation.  World Relief also offers legal services and English tutoring to make resettled refugees are on a supportive, sustainable path in the U.S. Finally, World Relief has a church mobilization program which helps amplify their faith-based humanitarian efforts.

Aleman informed the audience that Hispanic Interest Coalition of Alabama (HICA) is currently observing its 20th anniversary as an organization, but there is much needed work still to be done. Although 70% of HICA’s participants are of Mexican heritage, they are here to help any and every one that is in-need of assistance.  He argued that “refugee” is a political title because Cubans entering the U.S. during the Cold War were afforded this title. However, Central Americans fleeing to the U.S. currently don’t have that same benefit because the political environment has cultivated anti-immigrant rhetoric about those trying to cross the Mexico-U.S. border. HICA offers a Justice and Leadership Program that helps people achieve immigrant status as well as a Family Program that is case management-centered, the latter assisting children enroll for school and people navigating the court system.

Portillo also mentioned our current political environment by mentioning that refugees have been scapegoated for electoral purposes but that the Alabama Coalition for Immigrant Justice (ACIJ) will not be discouraged. ACIJ is a coalition of six non-profit organizations and hundreds of individual members throughout the state of Alabama. More specifically, ACIJ does preventative work, such as family emergency plans, that prepare people for economic, social, and/or legal challenges that relate to their immigrant status. You can help advance ACIJ’s mission of grassroots immigrant justice by volunteering or donating to their organization.

Sarai Portillo addressing the audience. Source: UAB Institute for Human Rights

 

Aleman of Adelante mentioned how there are many problems facing their participant community and that the existence of immigrant detention centers, much like Etowah in Gadsden, is an issue that is not exclusive to this current presidential administration. As a result, Adelante has helped organize the #SHUTDOWNETOWAH campaign which is “committed to ending the human rights abuses at the Etowah County Detention Center” due the facility’s notorious mistreatment of detainees, including inadequate medical care, poor nutrition, and verbal abuse. Adelante also offers many volunteer opportunities, including the Accompaniment Program, which assists members with transportation to court hearings and probation appointments, a worker’s assembly called Asamblea!, and a Pen Pal Program.

Wilson briefly spoke about the Unitarian Universalist Church of Birmingham’s Refugee Interest Group whose three pillars are direct support, education, and advocacy as well as the remarkable journey of an asylum-seeking mother and her two children who fled Angola to Cuba, relocated to Ecuador, then walked a grueling 1800 miles to El Paso. Following, she introduced Leida Venegas, a refugee from Colombia and current Birmingham resident, who shared the story about leaving her country because of organized crime and governmental conflict. Venegas also fled to Ecuador where she corresponded with the United Nations and U.S. government for over a year then moved to Birmingham. With only three suitcases and her children, Venegas relied on her case worker from Catholic Social Services and church volunteers who have assisted her with housing, learning English, and transportation to obtain documentation. She insisted such volunteering has been vital and is very thankful to all of those who’ve committed their time and opened the door to their home.

As demonstrated, the current refugee crisis is not only in the hands of the U.S. government but to anyone who wants to get involved. Many organizations addressing this pressing issue have limited resources so lending a helping hand could change or possibly save a life. What can you do to address the current refugee crisis?

Disability Rights, Employment, and Housing in a Cross-Cultural Perspective

three men unpacking soda for distribution
“Men at Work” by Andreas Wulff, Creative Commons

The ability to be rewarded for making meaningful contributions to society and to choose our own private residence are two facets of life many of us often take for granted.  However, many individuals with a form of disability often encounter barriers during their journey locating work and housing.  These barriers can arise from social isolation, discriminatory and / or inadequate governmental policies, economic hardship, or simply a lack of awareness of resources designed to aid persons with disabilities to find employment and housing.  These material and immaterial barriers fall under the broad umbrella of ableism, defined here as “the intentional or unintentional discrimination or oppression of individuals with disabilities”.  The following post explores four case studies surrounding the themes of housing and employment and how various cultures have either failed to address these needs or offered innovative solutions to persons with disabilities.  Finally, for the purpose of this blog, disability is defined, in accordance with the Washington Group (2018), as “problems, such as impairment, activity limitation or participation restrictions that include the negative aspects of functioning” in the following six domains: (a) walking; (b) seeing; (c) hearing; (d) cognition; (e) self-care; and (f) communication.  This blog post offers an anthropologically-informed context for to upcoming panel ‘Disability Rights, Employment, and Housing in a Cross-Cultural Perspective’ at the Institute for Human Right’s Symposium on Disability Rights.

Disability Rights & Employment: South Africa

South Africa’s government of apartheid came to power in 1948 and institutionalized a cultural and political zeitgeist of xenophobia, discrimination, and violence towards the Other.  Throughout apartheid’s hold on South Africa, systems of cultural and structural violence were erected both within social life and in bureaucratic policy.  Apartheid is most infamous for its impact on racially-motivated violence; however, other forms of discrimination were enabled by apartheid policy and philosophy as well.  Engelbrecht (2006) notes that education systems institutionalized apartheid policies in curricula development and inclusivity within schools.  This specifically barred children with disabilities from actively participating in the education system, from primary through tertiary levels.  Englebrecht (2006) contends children with disabilities were actively excluded from South African governmentally-controlled education systems.  This means children with disabilities during the apartheid regime did not receive adequate preparation for entering into the workforce, thus placing these individuals at a low ‘tract’ and preventing them from seeking or acquiring meaningful employment.  Englebrecht (2006) emphasizes that discriminatory and / or prejudicial national policies focused on one marginalized population (e.g. apartheid) often seep into the experiences of other marginalized populations as well.  In short, government-sanctioned racist policies immobilized the disability community.  To repress one group is to repress all groups.

The South African Human Rights Commission (SAHRC) was inaugurated in October of 1995, as mandated by the South African Constitution’s Human Rights Commission of 1994.  The SAHRC is charged with monitoring, preventing violations of, and educating the public about human rights within the South African context.  A specific function of the SAHRC is to examine how apartheid-era policies impacted South African civil society and how to eliminate the vestiges of structural violence still propagated by the former apartheid regime.  The SAHRC provides further evidence supporting Engelbrecht’s (2006) theory that the repression of children with disabilities would negatively impact South African workforce.  The SAHRC (2017) summarizes trends of disability employment, demonstrating that workforce equity (equally considering and making efforts to hire marginalized populations, such as the disability community) is nowhere near the South African Department of Labor’s goal of 7% by the year 2030.  In 2017, workplace equity was still under 2%, with 8 in 10 persons with disabilities unable to find employment (SAHRC, 2017).  A variety of reasons are given for this abysmally low number, including: lack of reasonable accommodation, inequality and discrimination, and a persistent inability to obtain a quality education.  The ghost of apartheid, it seems, haunts the disability community within South Africa, preventing a vast majority of persons with disabilities from obtaining education, training, and gainful employment.

The Liffey River, Dublin, Ireland
“Dublin – The Big Snow of 2010 – Along the Liffey” by William Murphy, Creative Commons

Disability Rights & Employment: Ireland

In 2017, the British Conservative government announced plans to cut the Employment and Support Allowance for persons with disabilities who were deemed ‘capable of preparing to return to work’ by 30£ / week (~$40 / week).  The British government implemented this policy as a ‘motivational tool’ for persons with disabilities and as an austerity measure, despite the fact that previous disability allowances (akin to welfare or social security measures in the United States) left 1/3 of allowance recipients struggling to afford food.  However, the ministers of Ireland, taking cue from their outraged constituents, have chosen a different path to empower persons with disabilities to find employment.  Instead of the ‘pull yourself up by the bootstraps’ strategy of British Conservative MPs, Irish Minister for Social Protection Regina Doherty and Minister of State for People with Disabilities Finian McGrath have chosen to listen to persons with disabilities themselves to assess the best way to promote gainful employment within the disability community.  In response to a 2017 policy brief Make Work Pay, Doherty, McGrath, and other policy-makers are distributing questionnaires to adults with disabilities and parents of young children with disabilities to assess the employment needs of the disability community (Clougherty, 2017).  This approach to governance, one defined by inclusivity and direct participation of the disability community, shows promise in exploring the complicated relationship between disability and employment.

Of particular importance in the employment-disability nexus is accounting for an individual’s preference for work and her or his form of disability.  The Irish ministers understand that low-functioning persons with disabilities will, for the entirety of their life, be simply unable to work.  These individuals require assistance from the government thereby ensuring these persons are included in society and are able to participate in decisions regarding their lives and livelihoods.  On the other hand, some individuals are temporarily disabled and do not require the same social security from governments.  By asking for input from persons with disabilities themselves, the Irish policy-makers are better equipped to make educated, inclusive, and effective policies and programs aimed at insuring equitable and equal employment within the disability community.

The Al-Saraya al-Hamra Fortress in Tripoli, Libya
“Al-Saraya al-Hamra Fortress, Tripoli” by David Stanley, Creative Commons

Disability Rights & Housing: Libya

The State of Libya, located at the Northern-most tip of Africa and bordered by the Mediterranean Sea, is in the midst of rebuilding civil society following the catastrophic Libyan Civil War of 2011.  For over forty years, Muammar Gaddafi ruled over Libya, attempting to introduce a socialist regime and command economy to the Libyan State.  During his reign, Gaddafi allegedly sought to implement a political philosophy of jamahiriya (جماهيرية‎), meaning “state of the masses” in Arabic – akin to ‘direct democracy’.  Through this system, Gaddafi created the national General People’s Congress, whose directives (including any form of a Libyan Constitution) could be superseded by the Basic People’s Congress, municipally-led executive and legislative bodies.  Hypothetically, this system placed most political power at the local level; however, Gaddafi’s actual dictatorial rule inverted the political equation.  In the past half century, this political system (again, on paper) aimed to enshrine the rights of persons with disabilities through the passage of the 1981 “Law on Disabled People”, arranging for “government provision of housing, home care, education, prosthetic limbs and rehabilitation for people with disability in Libya” (Hamed el-Sahly & Cusick, 2016, p. 12).  In political practice, Libyan persons with disabilities suffered major human rights violations, including lack of housing and home care, due to insufficient mechanisms of care and cultural taboos.

Although political and economic recovery may well be on the horizon for post-conflict Libya, cultural barriers prevent many Libyans with disabilities from securing independent and safe housing.  In a comparative study, many Libyans express unfavorable attitudes towards persons with disabilities along three dimensions: (1) lower ratings of willingness to empower the disability community; (2) higher ratings of exclusion; and (3) lower ratings of similarity between disabled and non-disabled people (Benomir, Nicholson & Beail, 2016).  Most pertinent to issues related to housing, Libyan participants scored high on the ‘need to shelter’ persons with disabilities – meaning intentionally secluding these individuals from broader society for fear of communal judgement and the social stigma attached to disability.  Furthermore, efforts to facilitate the transition from being ‘sheltered’ (living with a family member) to an autonomous home life is seen as a problem ‘for and by’ the disability community – i.e., it is the responsibility of the disability community alone to solve social issues related to their situation in life (Cusick & Hamed el-Sahly, 2018).  This demonstrates that governmental policies intending to enshrine disability rights are insufficient – societies themselves must be willing to tackle these issues head on.

A Hopi House
“Grand Canyon Hopi House 0073” by Grand Canyon National Park, Creative Commons

Disability Rights & Housing: Native Americans

Persons with disabilities with another form of marginalized identity (e.g. members of an indigenous group) are placed at a heightened risk for social isolation / exclusion, for physical and mental health concerns, and having disability-related needs go unmet (US Department of Health & Human Services, 2017).  Within American Indian / Alaska Native (AIAN) communities, this translates specifically into housing issues, as AIAN reservations already suffer from a lack of resources and infrastructural investment to provide for non-disabled AIAN individuals (US Department of Health & Human Services, 2017).  An estimated 21 – 69% of homes on reservations are overcrowded and have serious physical deficiencies compared with 5.9% of non-reservation US homes nationally (US National Council on Disability, 2003).  To address these intersecting concerns, the AIAN community, in tandem with the US government, have prepared and started implementing policy prescriptions to provide affordable, safe, and dignified housing to AIAN with disabilities.

Of primary concern in planning homes for persons with disabilities is utilizing principles of universal design – “guidelines for housing construction that would create a livable, marketable environment for everyone regardless of ability, age, or size” (US National Council on Disability, 2003, p. 94).  Currently, the American Indian Disability Technical Assistance Center provides assessments of universal design within reservations and makes design prescriptions if the home in question is not fully accessible.  Implementation of these prescriptions may fall to the American Indian Disability Legislation Project (AIDLP), a culturally-informed taskforce mandated to draft and pass legislation standardizing disability-related care (including autonomous and accessible housing) on Indian reservations (US Department of Health & Human Services, 2017).  The AIDLP, in addition to ensuring reservations adhere to the Americans with Disabilities Act, acts as a cultural liaison between the disability community and AIAN community to ensure disability concerns are handled in a culturally-appropriate manner.  Finally, the AIDLP and other AIAN-affiliated, disability-related advocacy groups ground their research and implementation efforts by tackling both material (e.g. physical accessibility) and immaterial (e.g. cultural stigma) barriers (US Department of Health & Human Services, 2017).

Towards a Global Culture of Disability Empowerment

The preceding case studies illustrate that disability rights, especially related to employment and housing, are high complicated issues.  Historical events, such as apartheid and civil war, interact with governmental policies, such as austerity measures and indigenous sovereignty.  Underlying each of these examples is the ‘culture’ surrounding disability – how peoples across the world value or stigmatize the experiences and perspectives of the disability community.  In some cases, such as South Africa, systems of discrimination have erected structural barriers holding back people with disabilities, even though disability-related stigma may have lost its potency.  In other cases, such as American Indian / Alaska Native communities, an additional marginalized identity may facilitate an even greater emphasis on seeking justice and equity for persons with disabilities.  As local, national, and global disability movements aim to eliminate social exclusion and promote equality in life and livelihood, the myriad cultures of disability must be unpacked and explained.  This post argues that moving towards a global cultural of disability empowerment is indeed possible.  Once this culture of empowerment has been adopted, disability-related concerns, such as employment and housing, will be addressed and rectified across the globe.

Keep up with the latest announcements related to the upcoming Symposium on Disability Rights by following the IHR on Facebook, Twitter, and Instagram.  And don’t forget to tag your Symposium-related posts with our event hashtag: #DisabilityRightsBHM

References

Benomis, A. M., Nicolson, R. I. & Beail, N. (2016). Attitudes towards people with intellectual disability in the UK and Libya: A cross-cultural comparison. Research in Developmental Disabilities, 2016, 1-9.

Clougherty, T. (2017). Make Work Pay: A New Agenda for Fairer Taxes. Cork, Ireland: Center for Policy Studies.

Cusick, A. & Hamed el-Sahly, R. M. (2018). People with disability are a medicalized minority: Findings of a scoping review. Scandinavian Journal of Disability Research, 20(1), 182-196.

Engelbrecht, P. (2006). The implementation of inclusive education in South Africa after ten years of democracy. European Journal of Psychology of Education, 21(3), 253-264.

Hamed el-Sahly, R. M. & Cusick, A. (2016). Rehabilitation services in Benghazi, Libya: An organizational case study. Middle East Journal of Family Medicine, 14(9), 11-18.

South African Human Rights Commission (2017). Research Brief of Disability and Equality in South Africa. Braamfontein, South Africa: South African Human Rights Commission.

US Department of Health & Human Services (2017). Emerging LTSS Issues in Indian Country: Disability and Housing. Spokane, WA: Kauffman & Associates, Incorporated.

US National Council on Disability (2003). Understanding Disabilities in American Indian & Alaska Native Communities. Washington, DC: National Council on Disability.

Washington Group (2018, December 4). Statement of rationale for the Washington Group general measure on disability. Retrieved from http://www.washingtongroup-disability.com/wp-content/uploads/2016/01/Rationale_WG_Short-1.pdf