The following blog was written by Katie Sibley, 2024-25 LEND Nutrition Trainee
The Center for Excellence in Developmental Disabilities (CEDD) at UAB coordinated the annual Simpson-Ramsey Symposium in April, and I had the privilege of attending for the first time as a LEND nutrition trainee. The Simpson-Ramsey Symposium highlights current research in the neurodevelopmental disabilities field, bringing in excellent researchers and lecturers both locally and from across the country. Current and former LEND trainees also presented projects they have been working on, giving a spotlight to the fruit of the LEND training efforts. Each year this event attracts a wide audience of healthcare professionals as well as academics and students, who gather to learn more about the emerging research in neurodevelopmental disabilities.
As a participant, I learned so much about research related to Tuberous Sclerosis Complex, improving healthcare access, and the meaning of autism biomarkers as well as different projects trainees are working on and the personal story of a former trainee who is both a healthcare provider and parent of neurodivergent individuals. The Symposium was very encouraging by bringing together many individuals who are passionate about the care of the neurodevelopmental disabilities community. It was also encouraging to see the progress in research and knowledge and how we know and understand more today than we did even 10 years ago. However, it was clear throughout the presentations that there is more work that needs to be done, and more research is needed to understand development and neuroscience related to disabilities.
A highlight of the Symposium was when former trainee John Derrick shared an inspiring message about his experience raising two neurodivergent children whom he and his wife adopted. His story provided both real-life situations and challenges and built compassion and understanding in the audience. For caregivers in the audience, he created a space of understanding and a sense of feeling known by sharing honestly the challenges his family faced. In many ways, it provided a sense of reality in the midst of learning about recent research. His story provided faces and individual stories to match to the research presented. I believe everyone who participated in the Symposium will be forever impacted by John’s story.
There was opportunity for networking throughout the day as well. Many healthcare providers, caregivers, and students were able to connect and learn more about the different areas of expertise in the room. Just being present at the Symposium gave every participant a commonality that was shared: a passion for providing care for neurodevelopmental disabilities with dignity and compassion. I thoroughly enjoyed my experience at the Symposium and hope to attend again in the years to come!