How can I meet other people with NF1?
It can be helpful to talk to other people and families with NF1. Here are some resources to get connected with the NF1 community and organizations created to support people with NF1.
- Children’s Tumor Foundation: https://www.ctf.org/
- Neurofibromatosis Network: https://www.nfnetwork.org/
- Includes NF Northeast, Northwest, North Central, Michigan, California, Arizona, and Central Plains
- Neurofibromatosis Midwest: https://www.nfmidwest.org/
- Texas Neurofibromatosis Foundation: https://www.texasnf.org/
- Littlest Tumor Foundation: https://littlesttumor.org/