Human Rights Issues – Page 19 – UAB Institute for Human Rights Blog

The Power of Technology

Movies such as Blade Runner, IRobot, or the Matrix portray a futuristic ambiance in regard to artificial intelligence overpowering humanity. At first glance, these movies can seem unrealistic and a bit absurd. However, in recent years, it appears to be less ridiculous as it hints at a bit of truth. There is no doubt that technology has advanced at a rapid speed in the last ten years. As each year passes, it seems there is a new device or software that can somehow make your life easier. Technology is used in every aspect of our life – from our homes to our work to the stores we visit. Often times, it can seem inescapable. If you turn your attention to your surroundings, you are likely to see people on their phones or computers – whether they are searching the Internet, looking through Instagram, or sending a text.

It is alarming to consider how technology affects every aspect of our lives. It even influences human rights such as the right to privacy or freedom of expression. There are numerous concerns that people have about the role and impact of artificial intelligence. People are concerned about the rise of “machine autonomy” and how gradually it can diminish “the status of humans”. Furthermore, there are concerns on the use of artificial intelligence in terms of “unjust and unequal political, military, economic and social contexts.”

For example, the U.S. seems to be moving towards an artificial arms race by using, killer robots, or lethal autonomous weapons systems (LAWS ). People concerned about giving these killer robots the power to decide whether someone lives or dies with little to no human control. Google created a military program called Project Maven, where a machine is used to analyze the drone surveillance footage which can be used for extrajudicial killings, meaning people could be killed without any legal processing. There have been aimed at Google urging them to reconsider what the data is used for. Google has since then declined to renew their contract.

Google is not the only company that has dealt with controversy in terms of technology and how it affects people’s human rights. A data firm by the name of Cambridge Analytica was caught using data from Facebook in order to build voter profiles. Employees acquired private Facebook data of millions of users, then they sold the information to political campaigns.

Freedom of Expression. Source: Flickr, Creative Commons

Another rising controversy with technology is how artificial intelligence (AI) systems have fostered “discriminatory practices”. The University of Cambridge published a study on the Malicious Use of Artificial Intelligence which details how “terrorists, criminals, and rogue states could potentially use AI’s with an intent to harm people”. It foreshadows an increase in cybercrime, misuse of drones and manipulation of elections. While the report is seen as a warning, it provides a series of recommendations: policy-makers and technical researchers working together, being mindful and proactive about the possibility of AI misuse, and expanding the stakeholders in regards to preventing and reducing the risk of malicious use of AI. The goal of their report was to grab the attention of governments, organizations, and individuals. However, we need more than a call-to-action such as effective and enforceable legislative control. We cannot deny the entanglement between our everyday lives and technology and must confront the difficulty in deciding where to draw the line between beneficial and malicious use of technology.

A Rwanda’s Minister for Justice and Attorney General, Johnston Busingye about the country-wide DNA database. In order to make this proposal work, scientists will collect DNA samples from all 12 million citizens in Rwanda, giving them access to personal medical and genetic information. Their reasoning for implementing this program is to decrease the number of crimes. There has been backlash from human rights campaigners because they believe the data could be misused by the government and violate international human rights laws. However, Busingye made a statement assuring the people that their end goal, using the data to determine who is responsible for the crimes, is genuine. The proposal has still not officially been approved but are waiting for the budget and the proper legislation to be passed in order to make it legal.

Rwanda is not alone in attempting to create a mandated DNA program whereas countries, such as China and Kuwait, have already set this program in motion.. People are concerned about how Muslim Uighur minority. Researchers believe the Uighur minority is “systematical detained in re-education camps”. In response, China denies all these claims. Similarly, four years ago, Kuwait passed a law that required their citizens and visitors to give their DNA samples; however, the law was revoked because it violated articles 30 and 31 of Kuwait’s Constitution in regards to personal liberty and privacy.

Human Rights China. Source: Wikimedia, Creative Commons

As the debate for technology and AI continues, the Human Rights Watch aims to ban developing and using these killer robots. However this technology is nothing new – the focus is on how, when, and why individuals should or should not use them. Furthermore, the question of human intervention arises. While using DNA collection in certain circumstances, such as finding criminals, can be beneficial, there poses a question of how people use the date and if it infringes on our human rights. The numerous databases worldwide have no common structure among themselves. Thus, there are concerns on how countries obtain the data and whom they share the information with. The DNA database can trace anyone through “biological tagging”, even those who innocent or have no relation in regards to the crime in question. Other possible challenges could include how the information is kept and used. For example, when determining whether or not an individual is a good fit for a job the hiring company could access the data and that affects the individual’s rights. Furthermore, the data could be used by criminal organizations. Both killer robots and DNA collection have benefits such as solving more crimes and military advances; however, it ultimately challenges the principle of privacy.

Climate Change and Refugees

Climate Change Refugees. Source: Flickr, Creative Commons

Climate Refugees

The ongoing debate about climate change never seems to become resolved because there are certain people who believe in it and others who refuse to believe it. However, both sides often forget about climate refugees, a fairly new term that has no formal definition or protection under international law. As of 2008, millions of people lose their homes to weather disasters. Other aspects such as desert expansion and sea levels rising also affect people in terms of where and how they live. Scientists say the three most endangered regions are sub-Saharan Africa, South Asia, and Latin Americ a while a World Bank report estimates that by 2050, those three endangered regions will consist of 143 million people who are displaced.

Climate Change and its effects

According to scientists, climate refugees consist of “people who must leave their homes and communities because of the effects of climate change and global warming.” Climate change pertains to the change of a climate in a region, while global warming is how the average temperature of the Earth is rising. As a result, global warming is leading to climate change. Rising temperatures due to global warming can cause glaciers to melt which can lead to flooding and the rising of sea levels. Furthermore, it can lead to droughts and desertification. These results of global warming can make the land people live on uninhabitable and make it difficult for people to survive.

In Bangladesh, thousands of people are affected by flooding each year, especially in Dhaka. In West Africa, Lake Chad is almost completely gone due to desertification. These problems are not just limited to the developing world. In the United States, approximately 2,300 Puerto Rican families who were displaced due to Hurricane Maria are looking for permanent housing. Additionally, small coastal communities in areas like Alaska and Louisiana are fading into oblivion due to rising sea levels.

In regard to droughts and desertification, individuals are not able to grow crops where they live. Thus, with no food, they are forced to move elsewhere. In China, the Gobi Desert is expanding more than 1,390 square miles every year. Farmers and merchants who live near the Gobi Desert migrate to more urban areas because the grasslands are turning into deserts. Droughts and desertification are a global problem. Also, in Morocco, Tunisia, and Libya more than 386 square miles of productive land are lost to desertification.

Desertification. Source: Wikimedia, Creative Commons

Climate Change and its ambiguity

In Europe, a journal estimated that if global temperature trends continue, applications for asylum to the European Union would increase by 28% by the year 2100. Additionally, many climate refugees live in rural or coastal communities and are forced to migrate to urban areas. Their skills, such as farming, are not beneficial in urban areas. Thus, finding a job can be difficult. Climate refugees who leave their country can face struggles when adjusting to new laws, languages, or cultures.

According to the development expert at the Center for Strategic and International Studies, Yayboke, the biggest problem that arises is there are millions of people who are considered a climate refugee, but there is no consensus as to what we can do about them. There are currently no international laws that protect climate refugees and they can be sent back to their homelands or forced into refugee camps. The reason that the term climate change is ambiguous is due to “the effectiveness of rights and legal certainty”. Since it is not covered by the law, there are no guaranteed international protections. Another source of ambiguity arises when you need to determine why those individuals were displaced. Was it actually due to climate change or was it because of another reason? For example, say there is a drought and a farmer moves to another area in order to find other work. Did the farmer move due to climate change or because the economy has no alternatives for employment? The term “climate refugee” tends to be associated with a variety of factors and not simply just climate change. Thus, an absolute definition is hard to define.

In 2016, the UN General assembly introduced the New York Declaration for Refugees and Migrants. In this declaration, it discussed the development of two global compacts: In 2018, climate refugees became recognized in the Global Compact on Safe, Orderly, and Regular Migration. The purpose of this compact is to protect the rights of those who displaced and to determine the economic, environmental, and social factors that individuals who are forced to leave their homes face. Unfortunately, the compact does not focus on trying to control the man-made forces behind global mass migration.

Another major problem is how climate refugees are not covered by the 1951 Convention in regard to the Global Compact of Refugees. Their definition of refugees has nothing to do with individuals who are displaced due to environmental factors. Thus, the term ‘climate refugee’ does not fall under the score of the 1951 Refugee Convention and their protocol. Therefore, individuals who are displaced cannot be classified as refugees and cannot appeal for resettlement and are “trapped in worsening environmental conditions”. However, a counterargument is that those who are displaced due to the environment could rely on the protection of their national government, whereas the traditional refugee cannot rely on the national government because they tend to be the source of persecution.

Hope for the future

In 2009, the EU decided to place a greater focus on climate change as a cause of migratory flows, in terms of security. From 2011-2013, a strategy paper was created for a European Commission project whose goal included working with developing countries in regard to migration and asylum. Additionally, the paper states focusing on climate change and migration. In 2013, the Commission published a paper on internal displacement. In 2015, Jean-Claude Juncker, the European Commission President stated “Climate change is one of the root causes of a new migration phenomenon. Climate refugees will become a new challenge – if we do not act swiftly”. However, EU Member States still have not created a category for climate refugees.

Climate refugees is a vague term that is hard to define. However, the economic, social, and political consequences are apparent and need to be addressed. Based on the global compact on migration and the international climate, one of the most salient ways to address this burgeoning human rights issue is for there to be numerous regional agreements that influence the creation of international law for climate refugees.

The Global Refugee Crisis: What Can We Do?

On Monday, March 4, the Institute for Human Rights co-sponsored an event with local education, faith-based, and policy organizations at Samford University, titled Addressing the Global Refugee Crisis – Part: What Can We Do? The panel discussion, moderated by Rachel Hagues (Assistant Professor at Samford University – Department of Social Work), included Carlos Aleman (Deputy Director at Hispanic Interest Coalition of Alabama), Mary Baxter (Resettlement Specialist at World Relief Atlanta), Cesar Mata (Organizing Fellow at Adelante Alabama Worker Center), Sarai Portillo (Executive Director at Alabama Coalition for Immigrant Justice), Leida Venegas (Refugee/Birmingham Resident from Colombia), and Lynda Wilson (Chair at Refugee Interest Group), where they addressed their organizations’ roles in the current refugee crisis and how local community members can get involved.

Baxter first addressed the audience by speaking about World Relief’s origin which stemmed from a faith-based relief effort that addressed the devastation in Europe after WW2. The organization began addressing refugee resettlement in 1979 and, today, are only one of nine organizations in the country that has a contract with the U.S. State Department to help resettle refugees. World Relief does case management work that covers child development, agriculture, and nutrition as well as teaches participants about navigating housing, U.S. laws, and obtaining proper documentation. World Relief also offers legal services and English tutoring to make resettled refugees are on a supportive, sustainable path in the U.S. Finally, World Relief has a church mobilization program which helps amplify their faith-based humanitarian efforts.

Aleman informed the audience that Hispanic Interest Coalition of Alabama (HICA) is currently observing its 20^th anniversary as an organization, but there is much needed work still to be done. Although 70% of HICA’s participants are of Mexican heritage, they are here to help any and every one that is in-need of assistance. He argued that “refugee” is a political title because Cubans entering the U.S. during the Cold War were afforded this title. However, Central Americans fleeing to the U.S. currently don’t have that same benefit because the political environment has cultivated anti-immigrant rhetoric about those trying to cross the Mexico-U.S. border. HICA offers a Justice and Leadership Program that helps people achieve immigrant status as well as a Family Program that is case management-centered, the latter assisting children enroll for school and people navigating the court system.

Portillo also mentioned our current political environment by mentioning that refugees have been scapegoated for electoral purposes but that the Alabama Coalition for Immigrant Justice (ACIJ) will not be discouraged. ACIJ is a coalition of six non-profit organizations and hundreds of individual members throughout the state of Alabama. More specifically, ACIJ does preventative work, such as family emergency plans, that prepare people for economic, social, and/or legal challenges that relate to their immigrant status. You can help advance ACIJ’s mission of grassroots immigrant justice by volunteering or donating to their organization.

**Sarai Portillo addressing the audience. Source: UAB Institute for Human Rights**

Aleman of Adelante mentioned how there are many problems facing their participant community and that the existence of immigrant detention centers, much like Etowah in Gadsden, is an issue that is not exclusive to this current presidential administration. As a result, Adelante has helped organize the #SHUTDOWNETOWAH campaign which is “committed to ending the human rights abuses at the Etowah County Detention Center” due the facility’s notorious mistreatment of detainees, including inadequate medical care, poor nutrition, and verbal abuse. Adelante also offers many volunteer opportunities, including the Accompaniment Program, which assists members with transportation to court hearings and probation appointments, a worker’s assembly called Asamblea!, and a Pen Pal Program.

Wilson briefly spoke about the Unitarian Universalist Church of Birmingham’s Refugee Interest Group whose three pillars are direct support, education, and advocacy as well as the remarkable journey of an asylum-seeking mother and her two children who fled Angola to Cuba, relocated to Ecuador, then walked a grueling 1800 miles to El Paso. Following, she introduced Leida Venegas, a refugee from Colombia and current Birmingham resident, who shared the story about leaving her country because of organized crime and governmental conflict. Venegas also fled to Ecuador where she corresponded with the United Nations and U.S. government for over a year then moved to Birmingham. With only three suitcases and her children, Venegas relied on her case worker from Catholic Social Services and church volunteers who have assisted her with housing, learning English, and transportation to obtain documentation. She insisted such volunteering has been vital and is very thankful to all of those who’ve committed their time and opened the door to their home.

As demonstrated, the current refugee crisis is not only in the hands of the U.S. government but to anyone who wants to get involved. Many organizations addressing this pressing issue have limited resources so lending a helping hand could change or possibly save a life. What can you do to address the current refugee crisis?

The Crisis in American Journalism Is a Labor Rights Crisis (Part I)

by Andy Carr

a photo of a newsstand — news. Source: Anthony Lazaro, Creative Commons

To say American media has struggled in recent decades would be an understatement, but the past weeks of extensive newsroom layoffs cut especially deep. As CNN reported on January 24, from Monday to Thursday of that week, at least 1,000 journalists were laid off nationwide, including 15 percent of BuzzFeed News personnel (approximately 220 individuals), 7 percent of various Verizon-owned entities’ staff (including HuffPost, AOL, and Yahoo News), and widespread cuts at Gannett, America’s largest newspaper owner. At BuzzFeed News alone, the entire national news desk staff was gone by January 25, along with all but one of the LGBT-focused reporters at the company and the national security staff.

That devastating week’s news follows years of similar stories far beyond the present decade’s startups and digital innovators. Last spring, Sridhar Pappu and Jay Stowe of the New York Times provided a concise yet devastating account of the shifting media landscape since the dawn of the twenty-first century, including the collapse of marquee legacy publications like TIME magazine:

When Time Warner merged with AOL in 2000, the company seemed poised to conquer the internet. History, however, had other plans. Subscribers and advertisers turned away from the core publications. Budgets shrank. Layoffs became commonplace. In 2014, Time Inc. was spun off from the Time Warner mother ship, and in 2015 it left the Time & Life building for a comparatively modest space on Liberty Street in Lower Manhattan.

TIME, along with parent company Time Inc.’s other leading magazines, like Sports Illustrated, Fortune, and Money, had been purchased in fall 2017 by media conglomerate Meredith Corp., before putting the Time portfolio up for sale just six months later. Gannett, meanwhile, recently was described as “the most voracious acquirer of local papers in the news business,” publishing national outlets like USA Today and major-market papers “including The Arizona Republic, the Milwaukee Journal Sentinel, and The Cincinnati Enquirer.” Even Gannett is exposed to looming concerns: Alden Global Capital, a New York-based global hedge fund founded in 2007, offered a hostile bid to takeover Gannett for $1.4 billion. As The Week reported earlier in January,

[The] strategy of buying and cutting [media staff] is exactly the one that Gannett pursued as it grew into the biggest newspaper owner in the country. Alden is following Gannett’s own logic, taken to its furthest extreme. So far, wherever Digital First [Alden’s media subsidiary] has gone, ‘a bevy of job cuts’ has followed. [So, if] Alden succeeds in its bid, it will be a waking nightmare for anyone who cares about newspapers.

Many such stories have wrenched the field of journalism since the 1990s, and one need not look far back into archives to see the expansive damage. The Weekly Standard, a conservative outlet which in its waning months of operation “exhibited a cover-to-cover vibrancy that had eluded it for more than a decade,” was “snuffed” out of existence by owner Phil Anschutz last December; Glamour announced last November that the 80-year-old print version of the magazine would cease production, “shifting to a digital-only operation” after January 2019; international titles with U.S.-based parent organizations, like men’s magazine ShortList and Cosmopolitan Australia, also closed in 2018. Among America’s local and regional newspapers, the bludgeoning has proved even more draconian: approximately “1,800 local papers have closed or merged since 2004,” according to a 2018 CNN report.

As I wrote late last year, journalism—and journalists, individually—are linked inextricably to human rights concerns, as the “chroniclers” of human rights abuses, making them known to the world, as advocates and agents of human rights causes they cover, and as the targets of increasingly frequent abuses globally. The stunning decline of American news media broadly affects both deep-dive investigative journalism and analysis, along with on-the-ground reporting of current affairs. In so doing, these structural changes to the industry threaten journalism’s integral role in cataloging, reporting, and advancing human rights.

an older man reading the newspaper — Reading the newspaper. Source: Nicolas Alejandro, Creative Commons

These systemic changes to the news media landscape often have been grouped into two broad categories: the overall consolidation of American mass media, among other industries, since the end of the twentieth century (a two-time subject of John Oliver’s Last Week Tonight, back in 2017), and the massive shift to mobile and online-based advertising, where aggregate revenue overwhelmingly is concentrated in leading digital companies like Facebook and Google. According to a 2018 estimate reported in Adweek, those two companies alone account for “around 85 percent of every new digital dollar” entering the mobile and online ad spaces. Facebook in particular already functions “as one of the world’s largest distributors of information,” a reality it “acknowledged” in early 2017 “by announcing the Facebook Journalism Project.” The Project “calls for the company to forge deeper ties with publishers,” to help “develop training programs and tools for journalists,” and to “help train members of the public to find news sources they trust, while fighting the spread of fake news across its site.” While Facebook had met with thousands of publishers by mid-year 2017; actual financial support, i.e., the transfer of advertising revenue streams or any other profit-generating opportunities, remain illusory, and outside the scope of Facebook’s efforts.

Clearly, American mass media faces several structural challenges, but why is any of this relevant for human rights-related concerns? Why is the labor crisis in journalism a human rights concern unto itself? The effects are manifold. First, media consolidation has been found to affect the “viewpoint diversity” of media broadly – meaning, consolidation might restrain the variety of views and issues covered in papers and online outlets. As early as 1999, the late Senator Paul Wellstone (D-MN) wrote about his concerns about the early stages of media consolidation as a threat to American democracy. In a Federal Communications Law Journal article, Sen. Wellstone expressed grave concerns about a then-pending merger of CBS and Viacom, among a “recent wave of mergers among media companies,” all of which might pose threats “for our representative democracy” and accordingly “warrant the highest level of scrutiny by … antitrust agencies” (p. 551). The Senator continued, presciently arguing that America’s media is not just any ordinary industry. It is the life-blood of American democracy. We depend on the media for the free flow of information that enables citizens to participate in the democratic process. As James Madison wrote in 1822, ‘A popular government without popular information, or the means of acquiring it, is but a prologue to a farce or a tragedy, or perhaps both.’ That’s why freedom of the press is enshrined in our Constitution. No other industry enjoys that kind of protection (p. 551-552).

Speaking of the media’s macro-role, Sen. Wellstone concluded that, for America’s “democracy to work, we depend on the media to do two things. We depend on them to provide citizens with access to a wide and diverse range of opinions, analyses, and perspectives” and, second, “we depend on the media to hold concentrated power—whether public or private power—accountable to the people” (p. 552). Thus, “greater diversity of ownership and control” confers superior ability among journalists “to perform those functions” which are so vital. The empirical record for that proposition, admittedly, is mixed – as a 2009 study by Daniel E. Ho and Kevin M. Quinn in the Stanford Law Review found twenty years after Sen. Wellstone’s article was published. (The question remains an open, hotly debated one, nonetheless, especially among legal scholars.)

Regardless of consolidation’s effects on viewpoints in journalism, the effects on reporters’ professional capabilities—to fulfill the democratic functions outlined by Sen. Wellstone and to highlight, in particular, human rights stories at home and around the world—are less ambiguous. On the one hand, the renewed implosion of the field has exposed journalists to protracted, targeted, organized abuse online, especially through social media attacks, which journalists have used to share job opportunities and freelance gigs during the cycles of layoffs, and just as often to provide support to or commiserate with former colleagues and other industry peers. As writer and journalist Maya Kosoff put it in a January 29 tweet, she was “overwhelmed by how helpful and supportive people have been [through Twitter] over the past week” of layoffs, and dedicated to finding ways “to pay it forward” to others in the field.

For present purposes, worries run deeper. As writer Rebecca Traister put it in a reflective tweet amid the layoff chaos in late January, it is difficult to “fathom the number of talented journalists being taken away from the work they were in the midst of doing this week. This is a travesty” – and a harbinger of what is to come in the event of further consolidations and layoffs. To take just one example, BuzzFeed News reporter Mike Giglio—among those who were laid off last month—produced extensive, in-depth stories during his more than five years with the company. His reporting on U.S. involvement in Syria regularly touched upon the complexities of both foreign policy stratagem and the dire concerns of civilians exposed to human rights abuses. Last fall, Mr. Giglio perceptively deconstructed the geopolitical morass of the Jamal Khashoggi killing, accounting for the crosscutting interests of Turkey, Iran, Saudi Arabia, and the U.S. with deeply reported interviews and analysis.

After the BuzzFeed News desk was effectively “demolished,” dozens of talented reporters and writers like Giglio are now forced into an unforgiving job market, sitting on dormant stories and leads. Similar stories at the abovementioned outlets reeling from layoffs—from HuffPo to AOL, Gannett to the more-recent purges at McClatchy—abound. The gutting of newsrooms around America is a profound pain for writers and their families, personally. But the ongoing thinning of journalism’s most-talented ranks undermines the whole public’s access to vital information needed to hold human rights abusers to account as well. The stakes are high.

The Importance of Comfort Food

Good food. Source: Wikimedia Commons, Creative Commons

What is comfort food?

As the name suggests, comfort food is any type of food that brings the individual more contentment. They tend to be associated with nostalgia or something that is familiar that brings you comfort. This can occur with other things such as wearing your favorite pants, watching your favorite movie, or reading your favorite book. Engaging in an activity that you have good connotations with can reduce the negativity surrounding change. There is a level of stability that comes with familiar items. Regardless of what chaos happens in everyday life, you can always have that favorite item.

“Comfort foods get their power from our belief in them.”

Comfort food varies depending on the person and their preferences. A survey conducted by Brian Wansink and Cynthia Sangerman asked a population of 1,000 North Americans to choose their favorite comfort food. Generally speaking, the top choices included chips, ice cream, cookies, pizza, pasta, and burgers. However, when looking into gender, the results diverged. Females tended to pick ice cream, chocolate, and cookies. While males would pick ice cream, soup, pizza, and pasta.

As one news article from USA TODAY said, ‘Women like sugar, men like meat’.

Another interesting difference is that women tend to look to comfort food when they are feeling lonely or sad, whereas men seek comfort food as a reward. Women associate comfort food with negative emotions, while men associate it with positive emotions. A study conducted by McGill University found that individuals who have positive emotions in regards to comfort food were more likely to pick healthier options. A common misconception is that comfort foods are unhealthy, but that is not always the case. Instead, comfort food is solely based on what people find comforting.

Is there a benefit to comfort food?

A 2015 study at Sewanee found that comfort food was associated with close relationships. It reminds of us our “social ties” and helps us feel less lonely when we feel isolated. This happens when an individual connects a food item with a social gathering, their family, or people taking care of them. There is a strong association between scents and memories due to the olfactory bulb, which is a part of the limbic system that deals with memory and emotional experience. Thus, nostalgia can evoke a sense of belonging.

“The emotional benefits of comfort food are more likely to be experienced amongst those for whom consumption brings back positive associations of early social interaction”

Foods that are pleasant to taste can cause opiates to be released. Similarly, when eating sweet, high-calorie foods, opiates and serotonin are released. This can cause a mood elevation or prevent one’s mood from declining. Another example is when you drink black tea, it decreases the amount of cortisol which can reduce stress. A study conducted at the University of Minnesota had college students watch sad movie clips and then eat their favorite comfort food or just food they enjoyed. The results showed that regardless of what people had eaten, their mood improved. This study was repeated, but instead of having the second group eat something they enjoy, they did not eat anything; the results were the same. However, there were some limitations to this study. They only looked at people who watched sad movie clips, when in reality other things can cause a negative mood. Furthermore, researchers did not look at how people eat comfort foods, meaning that going to get the comfort food could have an effect. Either way, while we are not definitively sure of the psychological effects, there is a link between food and memory.

Influence of Comfort Food

Everyone needs to eat; it is a biological necessity. However, what people eat varies depending on certain aspects such as one’s location, culture, and religion. For example, African and Afro Caribbean groups usually eat more meats, whet, and rice, whereas eastern groups will consume more herbs and spices. Something as simple as smelling a freshly baked apple pie or turmeric and onions can cause you to reminisce about a certain memory surrounding the food. Food is an important part of culture. Traditional foods are passed down from generation to generation. Immigrants bring the food they eat with them wherever they go. The food becomes a symbol of their culture amidst the unfamiliarity of their new place. Ultimately, everyone has a right to their culture and their food.

People eating. Source: Flickr, Creative Commons

When people hear the term comfort food, their mind goes to unhealthy food that you eat when stressed or upset. An article by Triosi and Wright pointed out that people either define comfort food as lacking in nutritional value or a food that has meaning, whether it is traditional, familiar, or cultural. They too found that there is a tie between relationships and belongingness in regards to comfort food. The need to belong is so strong that people have associated foods as reminders of others, not necessarily on their mood. Furthermore, their findings also shed light on how comfort food can range in flavor and taste. Thus, the importance is based on what people perceive the food as, not what the food actually is. An interesting finding was that comfort food can reduce loneliness but for those who are securely attached, not for those who are insecurely attached. Additionally, people who are secure tend to eat more comfort food overall especially when feeling lonely.

Importance of Comfort Food

Comfort food isn’t just about eating something because you enjoy it. Instead, it is intertwined with other aspects of one’s life through emotions, memory, and culture. “Food can be nostalgic and provide important connections to our family or our nation.” When you move to a new country, everything is unfamiliar; however, through food have a way to preserve your culture and it can help provide a sense of familiarity. Food and culture “makes up an important part of who we are, how we connect, what we value, and how we express ourselves as human beings.

Disability Rights, Identities, and Narratives

Disability rights is an increasingly important issue in our society. According to the U.S. Census Bureau, one in four people in this country have a disability. With such a large segment of our population facing a type of disability, it is crucial for the expansion and protection of disability rights. One way in which support for people with disabilities (PwD) can be increased is through the sharing of personal narratives of the experiences and lives of individuals with a disability. Narratives help to educate the public and prevent unintentional bias or stereotypes from causing harm to this community. Giving an individual with a disability an opportunity to open up and share their stories will help empower many of our friends, families, and neighbors and show that every single member of society matters and is appreciated.

Personal narratives are a great way to bridge the gap and inform the general population about disability issues. Oftentimes what people know about disabilities stems from limited education in schools or medical commercials. These outlets tend to focus on statistics and don’t address the issue on a personal level because most of the times they are not consulting an individual with a disability. Even though one in 4 people in this country have a disability, people lack a personal connection that allows them to fully understand the discrimination and ignorance that a person with a disability faces. In fact, it is common for individuals with a disability to have stories where people have stared at them, gawked at them, pointed at them, laughed at them, or even flat out harassed them in public. In all of these cases, PwD are not treated like normal people and are often made to feel ostracized. This disconnect needs to change and this mistreatment of people with disabilities needs to end. If people hear these stories from the viewpoint of a disabled person, then a personal connection is far easier to establish.

A personal connection between both communities is crucial. Empathy and understanding are needed to end fear and uncomfortable feelings when engaging with people with disabilities. It is important for people to realize that disabilities aren’t diseases you can catch. In fact, PwD pose no risk whatsoever to those around them. Listening to PwD talk about their conditions, lives, and how they overcome their disabilities to live a fulfilling life dispels all rumors and falsehoods about disabilities. Stereotypes and prejudice disappear when people see that disabled people are just like them and that disabilities do not define an individual. Each PwD has their own unique identity that is not affected by their disability.

To combat the lack of understanding, misinformation, and stereotypes about PwD and diminish the gap that exists between both communities. It is important to create a safe place for this community. A safe place is an environment where PwD feel comfortable enough to express themselves and share their stories without any fear of judgment or repercussions. Such an environment would make them feel normal and not different from the people around them. It is high time that disabilities were normalized and that PwD are given the same treatment as anyone else. Creating a PwD inclusive space allows the PwD community to strengthen. The benefit of this is that it lets PwD not only advocate for themselves but also to advocate for other people in their community so they might not have to go through the same prejudices.

To create this safe place for PwD it is imperative to promote representation and educate people about individuals with disabilities so that disabilities are normalized in the public eye. Increasing the population’s amount of interaction with PwD is not difficult and is much needed. The earlier this takes place, the better. If society’s youth is brought up surrounded by their peers with disabilities, it would allow both communities to learn a lot from each other. Teaching younger generations how to interact with PwD is a good place to start. Treating these lessons like any other instance where you would educate a younger person about manners and social cues can prevent a lot of uncomfortable situations for people with disabilities. It can also prevent harmful biases from growing in a young child’s mind since their exposure and prior knowledge makes them understand that individuals with disabilities are humans too.

Often times, disability policies have typically been developed for people with disabilities without their direct participation. An element to creating a better environment for people with disabilities is to ensure that they are active in all sectors of the economy. It is a great thing that most public areas are now required to be accessible to PwD. The use of ramps, elevators, sloping curbs, lifts for public transportation, and other methods are required by law to ensure that PwD can navigate through their everyday lives regardless of movement impairments. However, even though these fixtures for creating a more accessible space is mandated by the law, there are many instances where there is only one wheelchair accessible table at a restaurant, or a ramp inconveniently located at the backside of an establishment. It is not only about making space accessible, it is also about how conveniently these resources are accessible to PwD. The reason that disability friendly spaces are sometimes difficult to come by is that people with disabilities are often not the ones designing these spaces. However, having a person with a disability as someone in charge or as a consultant for these issues can help the ball get rolling. So far society has expected people with disabilities to modify themselves to fit in, but having society bend the rules to accommodate people with disabilities can be beneficial to the growth of this community. Therefore, having people with disabilities in charge and active in leadership roles can spearhead this campaign.

Representation is incredibly important for people with disabilities. The marginalization and ostracism of people with disabilities severely hinder their representation in media and pop culture. People with disabilities are the largest minority group in the United States. Yet, the 2017-2018 GLAAD report (report that analyzes diversity in television) found that only 1.8% of characters have a disability making them the least represented minority group in the TV industry. Representation shows the disabled community that they are welcome and belong just as much as any other community. Representation is not only about quantity, but also about being represented accurately without perpetuating any negative stereotypes. More often than not, people with disabilities are depicted in TV shows and movies as these characters that are trying to overcome their disability. It would be more appropriate to show these characters embracing themselves and having a purpose bigger than overcoming their disability. This supports the argument for having more individuals with disabilities as writers, directors, producers, or media consultants. When someone without a disability creates media from the perspective of an individual with a disability, they struggle to paint a truthful picture. This may cause someone without a disability to make assumptions and maintain stereotypes. Having better quality and quantity of disability representation will expose the population to more realistic experiences of individuals with disabilities. This can help generate truthful interchange between communities.

A simple change in the public’s perception of disabled individuals would go a long way in accomplishing the goal of increasing rights and opportunities for PwD. If people can see past the disabilities and focus on the person, then most of the discrimination, awkward moments, and harmful stereotypes facing the disabled community can be resolved. Both communities advocating for change will allow greater access and accommodations for disabled individuals to pursue higher education, enter the workforce, and engage in public events and venues. People need to learn how to respect the rights of these individuals and help them when needed. It is essential to campaign and use powerful narratives to enact greater protections and rights to this community of people. Effectively normalizing disability by tackling these issues head-on can lead to widespread positive changes.

Keep up with the latest announcements related to the upcoming Symposium on Disability Rights by following the IHR on Facebook, Twitter, and Instagram!

Book Review: Barracoon by Zora Neale Hurston

February is Black History Month. For the next few posts, I will review books by Black women who provide insight into the Black experience.

a photo of the book Barracoon by Zora Neale Hurston — Source: Ajanet Rountree

Zora Neale Hurston (ZNH) was a cultural anthropologist. With her very being, Hurston occupied a space of protest of the normative within the field of anthropology as she traversed through society and academia as a Black woman from the South. The intersectionality of her life may remain lost on some; however, it is essential to understanding her as an ethnographer, folklorist, and local colorist. She studied under Franz Boas alongside Ruth Benedict and Margaret Mead, but there is often an exclusion of her work. When listing the cohort of the generations of anthropologists or ethnographers, ZNH is often not among those listed, as the categories for her work are The Harlem Renaissance, folklore, or African American literature. To Boas, ZNH was an anthropologist who, through the application of anthropological methods and techniques, gave insight into Black life in a way no White person could do. In this way, she achieves “racial vindication” and qualitative results through the application of anthropological methods like observation and participation, unstructured interviews, and ethnographic data collection.

Barracoon is the oral history of Cudjo Lewis—or Oluale Kossola–the only living African “cargo” of the slave ship, Clotilda. Kossola was not born into enslavement. He was sold and captured from Dahomey (presently Benin) and brought to Mobile Bay in Alabama. His testimony offers a completely new perspective and firsthand account of colonization. Hurston first reveals insight into her reflexive research on Kossola’s life and story in her autobiography, Dust Tracks on a Road. “One thing impressed me strongly…The white people had held my people in slavery here in America. But the inescapable fact that stuck in my craw, was: my people had sold me and the white people bought me. That did away with the folklore I had been brought up on. It was a sobering thought” (164-8). Employing her trademark of writing phonetically, ZNH allows Kossola to tell his story in his language and style, rarely interrupting his stream of consciousness. This methodology would later become known as emic ethnography. Spending three months in one-on-one interviews solely with Kossola, a Yoruba by birth and a resident of Affriky town, she learns about his life in Africa, his survival of the Middle Passage and enslavement, and his life as a ‘free’ man.

Oluale Kossola was a man to many, but to others, he was an exploit of their contrabanded flesh: “’the black ivory,’ ‘the coin of Africa,’ had no market value.” He and the other enslaved were “Africa’s ambassadors to the New World,” sold as “brisk trade” by the King of Dahomey (5-9). Although she refers to him by his American name, Cudjo, throughout the book, ZNH makes a point to state that upon her initial reunification with him, “I hailed him by his African name as I walked up to the steps of his porch.” As his eyes filled with joyful tears, he exclaimed,

“Oh Lor’, I know it you call my name. Nobody don’t callee me my name from cross de water but you. You always callee me Kossula, jus’ lak I in de Affica soil” (17).

By the time ZNH sits down with Cudjo, he is the only one left and finds himself surprised and moved that someone would want to learn about his life. Hurston writes that she told him that she wanted to know all about him, to which he responded:

“Thankee Jesus! Somebody come ast about Cudjo! I want tellee somebody who I is, so maybe dey go in the Afficky soil some day and callee my name and somebody dere say, ‘Yeah, I know Kossula.’ I want you everywhere you go to tell everybody whut Cudjo say, and how come I in Americky soil since de 1859 and never see my people no mo’. I can’t talkee plain, you unnerstand me, but I calls it word by word for you so it won’t be too crooked for you. My name, is not Cudjo Lewis. It Kossula. When I gittee in Americky soil, Mr. Jim Meaher he try callee my name, but it too long, you unnerstand me, so I say, ‘Well, I yo’ property?’ He say, ‘Yeah.’ Den I say, ‘You callee me Cudjo. Dat do.’ But in Affricky soil my mama she name me Kossula” (19-20).

a photo of a barracoon — barracoon. Source: Creative Commons

Kossola’s narrative differs from the account of Olaudah Equiano and the former slave narratives of Frederick Douglass, Harriet Jacobs, and Booker T. Washington. Additionally, it is unlike the ethnographic work of Eatonville, Florida as written about in Mules and Men and her most famous novel, Their Eyes Were Watching God. Scholars Natalie S. Robertson and Sylviane A. Diouf provide extensive supportive evidence about the 1927-28 anthropological research of ZNH, the Clotilda and the establishment of Africa town in Alabama in their respective books, The Slave Ship Clotilda and the Making of AfricaTown, USA and Dreams of Africa in Alabama. Although both books preceded Barracoon’s 2018 publication, they build upon the foundation laid and the way paved for by ZNH, even mentioning current residents of Africatown who met her during the visit. Robertson accurately identifies Kossula as a griot or native African storyteller, trusted to keep and share the stories of tribes over generations. There is “genius that is contained in oral tradition as chroniclers of phenomena and as vehicles for education in Africa…without dependency on written records. Because Cudjo hailed from West Africans who are masters of the spoken word, it was not difficult for him, even as a nonagenarian, to recall the circumstances that led to his capture and forced migration to Alabama” (9). As Diouf points out, slave and former slave narratives reveal what life was like during and after enslavement but the narrative of Clotilda survivors like Kossola “represents a unique group of people who grew up free, spent the majority of their years in bondage during the Civil War, and soon became free again.” Their perspectives also reveal the parts of African culture that adapted, sustained them and continued to unify them (4).

In her signature way, ZNH accomplishes several things with this book. First, she continually restores the humanity that enslavement and separation from Africa stripped away. With the one action of calling him by his African name, she imparted both his personal and cultural identity. By transcribing his narrative in his dialect, she maintains his character and dignity. Second, she allows Kossula to tell his story. Oral history and narrations are cultural and personal heritage. Kossula was the last survivor of the Clotilda; therefore, if ZNH had not traveled to Africatown when she did, this one-of-a-kind perspective might not have been told. Third, she does not gloss over or shy away from the brutality of colonization and the dehumanization that comes with the financial trading of human beings and comes to identify with him. As echoed in Dust Tracks, “Truth is a letter from courage” (31). Regardless of her role as an anthropologist and observer, she finds herself drawn in and experiencing his pain, tragedy, and joy. It is for these reasons that Boas concluded that the work of ZNH contributed to the “knowledge of the true inner life of the Negro” because she was not only a student of history but could “enter into the homely life of the southern Negro as one of them and was fully accepted” (xiii-xiv).

Hurston could have selected any group of people to study, anywhere in the U.S. or world, yet, she chose to return home and study the people she knew and the town she loved. In doing this, ZNH gave value and voice to the “inferior”—people who shared the same skin color and occupied the same category of within the social construction. She reflexively offers a distinct perspective on Blackness because she was Black and studied Black people to know herself more and to debunk the myths and stereotypes about who Black people were, how they arrived here, how they live and continue to live.

Additional resources include African American Pioneers in Anthropology and The History of White People

Disability Rights, Health, and Medicine

Disability Symbols. Wikipedia, Creative Commons.

What is a disability?

“A disability is a condition of the body or mind that makes it more difficult for the individual to do certain activities and interact with the world around them.”

Approximately one in five adults in the United States has some type of disability. There are numerous types of disabilities that impact people’s daily lives through sight, movement, learning, or communication, although there are many others. Furthermore, even if two people have the same disability that doesn’t mean they are impacted the same way. Thus, individuals who have a disability do not consist of one general population, but instead a diverse population with various needs. Now the focus is more on how the word disability refers to the three components mentioned in the next paragraph and how there are numerous factors that go into having a disability.

The World Health Organization created the International Classification of Functioning, Disability, and Health (ICF). The ICF introduces the word disability into three main categories that are impairment, activity limitation, and participation restrictions. The term disability and impairment do not mean the same thing. Before the 1970s, the common view was that a disability is measured by whether or not an individual has an impairment or a health condition. In the 1970s there was the disability rights movement, which geared people away from this medical view. However, many people still focus on the more traditional, medical model of disability.

Disability and Health

Those with disabilities tend to face health care disparities such as less access to adequate care, both in terms of promoting health and preventing diseases. Some people even go as far as labeling those with disabilities as a medically underserved population. There has been some research on how people with disabilities usually have a lower quality of health and are more likely to experience secondary conditions. Some examples of the health disparities include not having interpreters during medical examinations, adults with developmental disabilities being at risk for secondary conditions such as obesity, seizures, and cardiovascular disease, and women who have disabilities are less likely to get Pap tests and mammograms. Furthermore, some other issues include misconceptions and stigmas surrounding the word disability, shortage of suitable training, lack of proper medical equipment and facilities, lack of accessibility, and little to no individualized accommodations.

The Stigma

While there are medical advances over the years in regards to individuals with disabilities, there is a stigma surrounding people with disabilities. They tend to be seen as individuals incapable of making decisions or helpless. There are implicit or even unconscious biases against individuals who have a disability. Furthermore, there are several articles on how the medical community treats those with disabilities as having less value than non-disabled people. The medical interpretation of a disability is viewed as a pathological disorder and so this perspective focuses on how one can treat or cure it, rather than a social problem. In contrast to the medical model, there is the social model of disability, which focuses on how disability is formed from a social situation or construct, rather than a person’s characteristics. This viewpoint focuses on dividing impairment from disability, rather than recognizing that one is a component of the other.

The National Council on Disability says, “people with disabilities comprise the largest and most important health care consumer group in the United States, yet the Institute of Medicine and others have warned that Federal agencies, policymakers, and health care systems have not yet responded to the broad-ranging implications, for individuals, and for society, of the demographic increase in disability as the population ages.”

Health Insurance

Another barrier is that people with disabilities tend to lack health insurance or adequate coverage for healthcare. The National Council on Disability conducted research and found that few health care training programs address disability issues in their curriculum and most federally funded health disparities research do not look at people with a disability as a disparity population. Furthermore, while Medicaid and Medicare cover some people with disabilities, these programs do not cover those who have private insurance. Private group plan insurances are usually given through employers; however, not all employers offer health insurance and not all people who have disabilities are working. Those who have private group plans through their employer are required to cover basic care for the average working population. Medical equipment such as wheelchairs, ventilators, and crutches are limited in terms of annual payments.

Individual plans charge higher premiums to individuals with disabilities. Persons with emotional disabilities consist of those most uninsured, closely followed by persons with visual or hearing disabilities.

The three key elements of health care insurance are availability, affordability, and coverage for critical benefits. Important benefits can include long-term care, mental health, and medications. There have been national surveys that found people with disabilities have a hard time figuring out the insurance system, visiting specialists, and obtaining medical equipment that is durable. Additionally, numerous essential health care services can be out of their budget, meaning that they go without certain things because they simply cannot afford it.

According to the Journal of Disability Policy Studies, “estimates suggest that these factors obstruct or delay care for as many as 30 – 50 percent of adults with disabilities.”

The Henry J Kaiser Family Foundation conducted a national survey that found, “health insurance is inadequate for more than one in three people with disabilities who reported delaying care, skipping medication, or going without needed equipment because of cost.”

Accessibility

Accessibility can be broken down into many different components. The two main sections to focus on are communication and physical access.

Physical barriers are objects that are either natural or manmade that hinder or block mobility or access. These barriers can include inadequate transportation, accessibility to the facility and offices, and lack of accessible exams. Something as simple as getting a mammogram exam can provide numerous difficulties because the mammogram machine cannot adjust for height or health professionals are not adequately trained for lifting assistance. Thus, some health professionals conduct exams while patients are in their wheelchairs, which can yield inaccurate results. Other physical barriers include parking at the medical facility, entering the building, and the bathroom facilities, making it more difficult for someone with a disability to receive proper care.

Proper communication and education are required to make a change. Individuals with disabilities should feel they can discuss their challenges without fearing discrimination, while, those in the healthcare field should appropriately discuss, support, and address the challenges people with disabilities face. Research shows there is a lack of awareness and inadequate instruction among health care providers. For example in Connecticut, “91% of primary care physicians said they had no training in intellectual and developmental disabilities.” Without proper training, people tend to make assumptions about people with disabilities and often times they are incorrect. Some stereotypes include thinking that those with developmental disabilities cannot feel pain so they do not need anesthesia, people who are deaf have problems with their cognitive functioning because they are not fluent in standard English, or women who have disabilities do not need reproductive care because they are assumed to be sexually inactive. Making assumptions is not only harmful to the health of the patient but also it undermines who they are as a person. This can lead to damaging the patient-provider trust and provoke people with disabilities to not even bother to seek care. Ultimately, having access to appropriate health care can prevent new health conditions and could possibly stop current health conditions to worsen. In order to be effective and efficient, health care must be inclusive and accessible.

Keep up with the latest announcements related to the upcoming Symposium on Disability Rights by following the IHR on Facebook, Twitter, and Instagram.

At the Intersection of Disability and Everything Else

Kiribati 2009. A blind man sitting at a Braille machine — Kiribati 2009. Photo: Jodie Gatfield, AusAID. Source: Department of Foreign Affairs and Trade, Creative Commons.

When someone says the word intersectionality, do human rights come to mind? Maybe but probably not. For some people, intersectionality is a just buzzword used by protest movements or the liberal media, while for others is a means of social identification. It is okay if you have never heard of it or do not understand it or know how to define it, you are not alone. Although it is an identifier and has mainstream vernacular usage, scholars like sociologist Patricia Hill Collins acknowledge that intersectionality is challenging to define, and only slightly easier to identify when recognized. Hill Collins asserts that “scholars and practitioners think they know intersectionality when they see it. More importantly, they conceptualize intersectionality in dramatically different ways when they use it.” Thus, an essential aspect of societal understanding and identification of intersectionality is our knowledge of its dependent relationship to power and inequity. Intersectionality must have a subject (a person or group of people) that experiences inequality (subjugation/oppression) because of its/their relation to power (the dominant with the hierarchical structure).

Intersectionality relies heavily on social constructions like race or gender, but not as a singular point of inequality. The term “intersection” demands another point—an interlocking point–of inequality. For example, intersectionality must critically examine the subjugation experienced by a person with blindness who is a Hispanic trans woman as well as a teenage girl who is Arab and a wheelchair user, respectively. Both are members of marginalized populations: ethnicity – Hispanic and Arab, gender/sexuality – a trans woman and teenage girl, and disability – blindness and wheelchair user; therefore, the intersectional analysis must include at least two points of oppression. The and makes the difference. For this to occur effectively, individuals must determine how they will employ intersectionality as a definition, in addition to a research tool.

In her essay, Hill Collins sheds light on three possible frameworks for intersectionality: a field of study that examines both content and themes that might be characteristic, an analytical strategy reliant upon intersectional frameworks to explain the social world, and a form of critical praxis connected to social justice practice via scholarship. Intersectionality has increased in popularity as society becomes more aware of the work of critical race theorist, Dr. Kimberlé Crenshaw, and with the rise of protest movements. Many people identify Crenshaw as the creator of the term intersectionality, but Black feminist scholars point to Anna Julia Cooper, Audre Lorde, and the Combahee River Collective, among others as describing the concept in their works years and centuries before Crenshaw.

First, as a field of study, intersectionality has positives and negatives. The positives lay in its complementary adaptability with other disciplines and areas of study, yet, it is here that many of the negatives exist as well. Citing Edward Said, Hill Collins notes that “theories can lose their originality and critical stance as they travel from one domain to another” (6). This travel can result in the misrepresentation of the original intent and the exclusion of some scholarship as has happened over time in fields of study like Black feminism.

Second, as an analytical framework, intersectionality must “rethink” constructs, not only as concepts of work and family but violence and identity, and in direct relation to “underutilized” categories of analysis like class and age. It is at this juncture that disability rights activists and scholars demand an increased inclusion. Using Stuart Hall’s theory of articulation, Hill Collins questions how it is possible for two sets of ideas, the expressed and unexpressed, to create the necessary knowledge needed for an intersectional canon (15). Hill Collins questioning aligns with Ellen Samuels’ assertion that disability remains underrecognized as a “legitimate or relevant position from which to address broad subjects” and Michael Berube’s pronouncement that disability must continually battle against gender, race, and sexuality in various areas. Historically, there has been an imbalanced pattern of research due to the heavy focus on the intersections of race and gender; yet, when considering that one in five human beings live with a disability, multiple constraints apply and extend beyond gender and race.

Lastly, as a praxis, intersectionality can contribute perspective by elucidating areas of social inequality as activists and scholars increase their political engagement. Sociologists Hae Yeon Choo and Myra Marx Ferree observe three ways that intersectionality is/can become practiced: group-centered, process-centered, and system-centered. They caution that even in practice, neglect occurs in facets of the intersectional analysis despite best efforts to adequately include, analyze, and identify because as Crenshaw notes, sometimes conflicting political agendas detract from the areas of oppression.

The Intersection of Disability and Everything Else

In many societies today, disability, like most categories of marginalization, boxes members as differing from the norm or as the needy and helpless Other. In many ways, disability has become a fetishized difference and a source of ‘inspiration porn’ when foregrounded in the mainstream via social media, television, and movies. What if activists and scholars began to utilize the constellation of knowledge as outlined by Hill Collins and Choo and Ferree through the employment of an analysis of the intersection of disability and everything else? Persons with disabilities are the global majority when accounting for the entire spectrum of disability; thus, we as individuals who make up the collective, have a chance to bring those surviving on the margins into the center of analysis and discussion.

Humanity must begin to see the inclusion of disability as a prerequisite for the dismantling of structural violence and social injustice. Black feminist and lesbian Lorde, in her comments to a New York conference audience, protested that “survival is not an academic skill. It is learning how to stand alone, unpopular and sometimes reviled, and how to make common cause with those others identified as outside the structures in order to define and seek a world in which we can all flourish. It is learning how to take our differences and make them strengths. For the master’s tools will never dismantle the master’s house. Racism and homophobia are real conditions of all of our lives in this place and time. I urge each one of us here to reach down into that deep place of knowledge inside herself and touch that terror and loathing of any difference that lives there. See whose face it wears. Then the personal as the political can begin to illuminate all our choices” (112-3). If disability replaced either racism or homophobia in Lorde’s quote, how does the level of analysis and research begin to change the conversation surrounding our social understanding of these areas of oppression and subjugation? Intersectionality forces humanity to come to terms with the lack of knowledge about difference while confronting the terror and loathing of difference which lurks inside us as barriers and outside of us as social institutions and societal norms. In whatever form intersectionality finds usage, it is imperative that it remains a tool that dismantles injustice at the personal and political level.

**Keep up with the latest announcements related to the upcoming Symposium on Disability Rights by following the IHR on Facebook, Twitter, and Instagram.

Disability Rights: A Personal Perspective

* This is a repost from summer 2017

“The purpose of the present Convention is to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity.” When I was hired by the UAB Institute for Human Rights, I never dreamed that we would take the trip to the United Nations for the 10^th Convention of States Parties on the Convention on the Rights of Persons with Disabilities. Visiting the United Nations has always been a dream for me, but being able to take part in an international effort to promote disability rights was an unbelievable opportunity to me personally.

Disability has always intersected my life. My sister and I were born with Ehlers-Danlos Syndrome, which is basically a fancy way of saying that all the connective tissue in our bodies are about as stable as a limp noodle. Because of EDS, chronic pain is just a part of my life. I am unable to run, walk, or jump without a joint in my body threatening to dislocate. I suffer from sleep disorders and chronic fatigue along with a host of gastrointestinal issues. It also affects my heart and my autonomic nervous system; I tend to feel like a walking time bomb of anxiety, heart palpitations, and general malaise all wrapped up in a spaghetti-based body. I have lived my whole life without complaining for the most part. Most people in my life don’t know the extent of my disability, or even about it at all. I keep my pain hidden because I do not want anyone’s pity. I continue physically far beyond what my body’s real limits are because I do not want people to think I am lazy or helpless. It takes too much time to explain my disability to everyone I meet, so I deal with my pain with a smile on my face. This is the reality that most people with disabilities face—a life of “oh, I’m so sorry for you!” when they learn of your disability and “why can’t you do this?” when they do not understand your limits. My struggle as a woman with a disability is the reason why the Convention meant so much to me. Before the Convention, I had never in my life been around more than two people with disabilities or ever felt like anyone truly understood what I was going through. Seeing so many other people with disabilities raising their voices, sharing their pain and suffering, and demanding change gave me hope that one day I will no longer feel like I need to hide my disability.

Photo of the team at lunch at the United Nations.

I have always known that having a disability does not mean you cannot be strong and independent. Not being able to walk for long periods does not make me lazy, and my joint instability does not make me weak. I know these things, but sometimes the able-bodied world undermines these beliefs and makes me feel like I will never be good enough. The champions of disability rights who I met gave me such courage to fight those fears. The utter strength and bravery of these people were so encouraging to someone like me. I could see myself in Daniela Bas, the head of DESA and wheelchair user. Ms. Bas has managed to overcome so many obstacles as a woman with a disability yet constantly dazzles people with her charismatic personality and fierce intellect. Ms. Bas gave her knowledge on the importance of international cooperation in dismantling the cross-cutting barriers faced by women with disabilities. Her policy-based approach and political science background gave me hope that one day I could follow in her footsteps. Ms. Mia Farah, of the Lebanese Association for Self-Advocacy, gave me such encouragement from her passion, skills, and independence as a woman with Down Syndrome. Ms. Farah organized one of the most enjoyable and successful side events I attended, despite the challenges that her intellectual disability can bring. Her story of her successes resonated with me because I have always feared my limitations. Mia Farah showed me that limitations that others place on you because of your disability don’t have to define you.

I not only found inspiration during my time at the UN but a wealth of new knowledge as well. Every individual gave new insight on disability rights that I had never considered before. Natalie Draisin spoke on road safety for women and girls with disabilities, and how unsafe roads and transportation can be fatal—an important issue that many ignore when discussing disability rights. I was touched by the story of Flavia Cintra, a Brazilian journalist, whose doctor told her to abort because he believed that tetraplegics should never have children. Ms. Cintra shared how Brazilian mothers with disabilities often lose custody of their children and have their reproductive rights stolen from them through deceptive paperwork. Some wedding officiators even refuse to marry people paralyzed below the waist because they are believed to be unable to bear children. I never knew any of these issues before speaking with Ms. Cintra. As a reproductive rights activist, Ms. Cintra’s story made me understand the importance of including people with disabilities in our activism. All of the stories and experiences that were shared with me hit deeply and gave me such insight into international policies on disability rights.

Audience view during the side event by IHR and IDPPS teams’ “Making Disability Rights Real: Implementing the CRPD through Regional Cooperation with Lessons Learned from ASEAN.”

The global environment for people with disabilities is harsh, whether one is in Brooklyn, Bogota, or Bangkok. All over the world, people with disabilities deal with compound discrimination, lack of adequate healthcare, limited access to resources, sexual abuse and assault, and the negation of their independence. Having this opportunity to partake in the implementation of policies on disability rights was genuinely life changing. Viewing the inner workings of the United Nations made me realize that I wanted to make a career in the international nonprofit organizations that work with the UN to effect change. It was incredible to see people from so many different places, all speaking in different languages. I could be listening to a speaker in Chinese, and put on a headset to have it translated live into French, Russian, English, and several more. Watching the sign language interpreters onstage during meetings was so thrilling— not only was it beautiful to watch, it also was critical in making the events accessible to the deaf and hard of hearing. These events made me realize how necessary sign language is to have a successful career in advocacy, because the inclusion of nonverbal people is vital. I will always look back on this trip to the United Nations as the moment when I found my calling. As I have always tried to ignore my disability, I had never realized until now how central disability rights are to my life. Being around such fearless role models brought to life a passion to fight for the rights of women and girls with disabilities around the world.