The following blog was contributed by Gwendolyn Brown, Family Navigator for the UAB Regional Autism Network
Autism conversations on social media can be a whirlwind. Comments about Autism Awareness and Autism Acceptance spark both hope and frustration. Many people believe that April is the sole month for going the extra mile for autism, but for countless families, the effort for understanding and inclusion is an ongoing journey all year long.
There’s a bittersweet nature to the progress we see; heartwarming moments of connection and gratitude remind us of our collective achievements, yet they also underscore that discrimination still exists—even if in subtler forms. As a parent and self-advocate, I experience a wide range of emotions. Some conversations with families leave me uplifted by simple acts of gratitude—a chance for someone to exhale, cry, connect, or discover new resources during conversations. Other times, tears remind me of the pain faced by families who continue to struggle, igniting a deep desire to ease that burden and inspire hope.
Reflecting on my role as a family navigator for UAB Regional Autism Network (RAN), I am reminded of the rare, transformative moments where I witnessed change on both personal and communal levels. These experiences have connected my past with my present, reinforcing my commitment to helping other families, providers, and grandparents navigate the complexities of autism. While doing our best to serve many callers, the heartfelt moments happen when we feel a little lost and eager to have an answer not so easily found.
There is immense joy in pursuing work that stems from a personal connection—having an autistic son who has taught me more about life and myself than I ever imagined. His journey has been a testament to resilience, an invitation to embrace everything from despair to overwhelming joy, peace and a guide toward a profound understanding of what it means to truly accept and include. It is never a desire for pity, for moments to be seen as a token, or as something being owed to my son and many autistic people.
Today, as society awakens to autism like never before, I stand as a witness to the ongoing evolution of both public perception and personal growth for families. Autism acceptance and awareness should always be intertwined with inclusion and a sense of belonging. These concepts are not mutually exclusive; they are all parts of a spectrum that reflects the fullness of human experience.
I watch my adult autistic son yearn for independence and genuine connection, aware of the challenges that come with navigating a world that often feels increasingly foreign. Even in moments of uncertainty, I remember the many milestones we have achieved together—and those we will continue to reach—reminding everyone that a diagnosis is only a part of someone’s story. Every autistic individual has a unique purpose, a contribution that goes far beyond what is often acknowledged.
For me, April is a powerful reminder: it’s not just about autism acceptance and awareness but about embracing and including. If we truly want to shift world views on autism, we must work actively to create spaces where autistic voices are heard, recognized, and celebrated—be it in the workplace or within our communities. If a provider claims to focus on autism, pause and consider: Have they opened their doors to autistic voices—not just as clients, but as colleagues, volunteers, or leaders? True inclusion isn’t just about advocacy—it’s about action. If no autistic individuals are part of the team, what does that say about the depth of their commitment? Inclusion must begin with us, by us, and for us—only then can the world begin to witness the brilliance and potential that so many autistic individuals have to offer. Let’s honor the diverse talents and perspectives that enrich our world by extending the invitation to belong to everyone.
