16WL – Evaluation of strategies for the provision of patient/family education for parents of children newly diagnosed with cancer

Status: Filled – Intern: Jocelyn York
Intern: Jocelyn York
Faculty Name: wendy-landier-phd
UAB Department: Pediatrics
UAB School: Medicine
Campus Address: Lowder 500
Telephone Number: (205) 638-2120
Email: wlandier@peds.uab.edu or Click to Send E-Mail
For how many summers have you served as a preceptor: 1
CCC Research Area: Cancer Control and Population Science
Number of hours per week that the preceptor will personally supervise or work with the intern: 4
Other faculty, staff, or graduate students who may help to supervise the intern:
1. Lindsey Hageman
2. Smita Bhatia
Title of Project: 16WL – Evaluation of strategies for the provision of patient/family education for parents of children newly diagnosed with cancer
Project Description:

This project will involve analysis of data obtained from the study “A Nurse-Led Structured Discharge Teaching Intervention for Parents of Newly Diagnosed Pediatric Oncology Patients.” The purpose of this study was to understand the effects of implementing a structured educational program for parents of newly diagnosed pediatric oncology patients who were being discharged from the hospital for the first time post-diagnosis. Data collected from questionnaires and interviews during the conduct of this study provides a wealth of information regarding the experiences of these families. This includes information regarding parental readiness for the child’s discharge home from the hospital, parental perceived quality of the education they received, and any post-discharge coping difficulties that they may have experienced. Potential influencing factors include literacy and learning style, characteristics of the child’s medical condition and initial inpatient stay, and subsequent healthcare encounters during the 30 days following the initial hospital discharge. Additionally, qualitative data that elicited the healthcare provider perspective regarding the educational process for families of newly diagnosed pediatric oncology patients was obtained through interviews.

Project Status: Already up and running
Location of Project: Birmingham, AL (UAB)
Proposed Start Date: June 8, 2020
Proposed End Date: July 31, 2020
Expected work schedule for intern: Not very flexible, intern MUST be at work on certain days of the week and at certain times of the day (as may be necessary to interview patients, attend lab meetings, process samples, etc.) and should contribute full-time effort.
Category of Project: Clinical (Patient Care) Research
Cancer topic: Treatment, Pediatric oncology
Does this project involve human subjects: Yes
Does this project involve animal subjects: No
Duty:
1.

Identify research objective and develop analysis plan

2.

Perform a literature review to identify what is known about the selected topic

3.

Analyze data and develop a scientific abstract, poster, or manuscript describing the findings of the literature review and data analysis

Preceptor will provide intern with access to the following:
Office or desk space, Computer and printer, Supplies needed to complete project
Likelihood that intern will be included as an author on one or more publications
related to this summer research project:
Very likely
Areas in which the ideal candidates will have experience:
Childhood Cancer, Literature Review Skills, Scientific Writing Skills, Statistics and Data Management, basic knowledge